Self-Advocacy in Inclusive Research

The literature on inclusive research has established its relationship with self-advocacy for people with intellectual disabilities. Self-advocacy has been described as both a requirement and a result of inclusive research. Additionally, the process of becoming an inclusive researcher can be seen as...

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Main Authors: Courtney Krueger, Lieke van Heumen, Claire van den Helder
Format: Article
Language:English
Published: MDPI AG 2024-02-01
Series:Social Sciences
Subjects:
Online Access:https://www.mdpi.com/2076-0760/13/3/134
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author Courtney Krueger
Lieke van Heumen
Claire van den Helder
author_facet Courtney Krueger
Lieke van Heumen
Claire van den Helder
author_sort Courtney Krueger
collection DOAJ
description The literature on inclusive research has established its relationship with self-advocacy for people with intellectual disabilities. Self-advocacy has been described as both a requirement and a result of inclusive research. Additionally, the process of becoming an inclusive researcher can be seen as self-advocacy for people with intellectual disabilities. As inclusive research continues to become more prominent, and more people with intellectual disabilities become inclusive researchers, we need to continue to consider this fundamental relationship and how self-advocacy and inclusive research can inform and support each other. In this paper, we first discuss the history of self-advocacy and inclusive research and what inclusive researchers have shared about the relationship between self-advocacy and inclusive research. We then present the experiences of an inclusive researcher with intellectual disability with self-advocacy and how the process of becoming an inclusive researcher impacted those experiences. We conclude the paper with reflections on how future inclusive research should consider the role of self-advocacy.
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spelling doaj.art-b721eb93434749e8aaa0c925ff43d7a92024-03-27T14:04:37ZengMDPI AGSocial Sciences2076-07602024-02-0113313410.3390/socsci13030134Self-Advocacy in Inclusive ResearchCourtney Krueger0Lieke van Heumen1Claire van den Helder2Special Olympics Illinois, USADepartment of Disability and Human Development, University of Illinois Chicago, 1640 W. Roosevelt Rd, Chicago, IL 60608, USADepartment of Disability and Human Development, University of Illinois Chicago, 1640 W. Roosevelt Rd, Chicago, IL 60608, USAThe literature on inclusive research has established its relationship with self-advocacy for people with intellectual disabilities. Self-advocacy has been described as both a requirement and a result of inclusive research. Additionally, the process of becoming an inclusive researcher can be seen as self-advocacy for people with intellectual disabilities. As inclusive research continues to become more prominent, and more people with intellectual disabilities become inclusive researchers, we need to continue to consider this fundamental relationship and how self-advocacy and inclusive research can inform and support each other. In this paper, we first discuss the history of self-advocacy and inclusive research and what inclusive researchers have shared about the relationship between self-advocacy and inclusive research. We then present the experiences of an inclusive researcher with intellectual disability with self-advocacy and how the process of becoming an inclusive researcher impacted those experiences. We conclude the paper with reflections on how future inclusive research should consider the role of self-advocacy.https://www.mdpi.com/2076-0760/13/3/134inclusive researchself-advocacyintellectual disabilitieshistoryplain language summariesresearch with people with intellectual disabilities
spellingShingle Courtney Krueger
Lieke van Heumen
Claire van den Helder
Self-Advocacy in Inclusive Research
Social Sciences
inclusive research
self-advocacy
intellectual disabilities
history
plain language summaries
research with people with intellectual disabilities
title Self-Advocacy in Inclusive Research
title_full Self-Advocacy in Inclusive Research
title_fullStr Self-Advocacy in Inclusive Research
title_full_unstemmed Self-Advocacy in Inclusive Research
title_short Self-Advocacy in Inclusive Research
title_sort self advocacy in inclusive research
topic inclusive research
self-advocacy
intellectual disabilities
history
plain language summaries
research with people with intellectual disabilities
url https://www.mdpi.com/2076-0760/13/3/134
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AT clairevandenhelder selfadvocacyininclusiveresearch