The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development Approach
BackgroundWith the global rise in chronic health conditions, health care is transforming, and patient empowerment is being emphasized to improve treatment outcomes and reduce health care costs. Patient-centered innovations are needed. We focused on patients with chronic myeloid leukemia (CML), a chr...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
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JMIR Publications
2020-05-01
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| Series: | Journal of Medical Internet Research |
| Online Access: | https://www.jmir.org/2020/5/e15895 |
| _version_ | 1818886803759824896 |
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| author | Ector, Geneviève ICG Westerweel, Peter E Hermens, Rosella PMG Braspenning, Karin AE Heeren, Barend CM Vinck, Oscar MF de Jong, Jan JM Janssen, Jeroen JWM Blijlevens, Nicole MA |
| author_facet | Ector, Geneviève ICG Westerweel, Peter E Hermens, Rosella PMG Braspenning, Karin AE Heeren, Barend CM Vinck, Oscar MF de Jong, Jan JM Janssen, Jeroen JWM Blijlevens, Nicole MA |
| author_sort | Ector, Geneviève ICG |
| collection | DOAJ |
| description | BackgroundWith the global rise in chronic health conditions, health care is transforming, and patient empowerment is being emphasized to improve treatment outcomes and reduce health care costs. Patient-centered innovations are needed. We focused on patients with chronic myeloid leukemia (CML), a chronic disease with a generally good long-term prognosis because of the advent of tyrosine kinase inhibitors. However, both medication adherence by patients and guideline adherence by physicians are suboptimal, unnecessarily jeopardizing treatment outcomes.
ObjectiveThe aim of this study was to develop a patient-centered innovation for patients with CML using a design thinking methodology.
MethodsThe 5 phases of design thinking (ie, empathize, define, ideate, prototype, and test) were completed, and each phase started with the patient. Stakeholders and end users were identified and interviewed, and observations in the care system were made. Using tools in human-centered design, problems were defined and various prototypes of solutions were generated. These were evaluated by patients and stakeholders and then further refined.
ResultsThe patients desired (1) insights into their own disease; (2) insights into the symptoms experienced, both in terms of knowledge and comprehension; and (3) improvements in the organization of care delivery. A web-based platform, CMyLife, was developed and pilot-tested. It has multiple features, all targeting parts of the bigger solution, including a website with reliable information and a forum, a guideline app, personal medical records with logs of symptoms and laboratory results (including a molecular marker and linked to the guideline app), tailored feedback based on the patients’ symptoms and/or results, screen-to-screen consulting, delivery of medication, and the collection of blood samples at home.
ConclusionsThe multifeatured innovation, CMyLife, was developed in a multidisciplinary way and with active patient participation. The aim of developing CMyLife was to give patients the tools to monitor their results, interpret these results, and act on them. With this tool, they are provided with the know-how to consider their results in relation to their personal care process. Whether CMyLife achieves its goal and the evaluation of the added value will be the focus of future studies. CML could become the first malignancy for which patients are able to monitor and manage their disease by themselves. |
| first_indexed | 2024-12-19T16:27:09Z |
| format | Article |
| id | doaj.art-b751b1cd61bd48cba836a6d50704e876 |
| institution | Directory Open Access Journal |
| issn | 1438-8871 |
| language | English |
| last_indexed | 2024-12-19T16:27:09Z |
| publishDate | 2020-05-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | Journal of Medical Internet Research |
| spelling | doaj.art-b751b1cd61bd48cba836a6d50704e8762022-12-21T20:14:18ZengJMIR PublicationsJournal of Medical Internet Research1438-88712020-05-01225e1589510.2196/15895The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development ApproachEctor, Geneviève ICGWesterweel, Peter EHermens, Rosella PMGBraspenning, Karin AEHeeren, Barend CMVinck, Oscar MFde Jong, Jan JMJanssen, Jeroen JWMBlijlevens, Nicole MABackgroundWith the global rise in chronic health conditions, health care is transforming, and patient empowerment is being emphasized to improve treatment outcomes and reduce health care costs. Patient-centered innovations are needed. We focused on patients with chronic myeloid leukemia (CML), a chronic disease with a generally good long-term prognosis because of the advent of tyrosine kinase inhibitors. However, both medication adherence by patients and guideline adherence by physicians are suboptimal, unnecessarily jeopardizing treatment outcomes. ObjectiveThe aim of this study was to develop a patient-centered innovation for patients with CML using a design thinking methodology. MethodsThe 5 phases of design thinking (ie, empathize, define, ideate, prototype, and test) were completed, and each phase started with the patient. Stakeholders and end users were identified and interviewed, and observations in the care system were made. Using tools in human-centered design, problems were defined and various prototypes of solutions were generated. These were evaluated by patients and stakeholders and then further refined. ResultsThe patients desired (1) insights into their own disease; (2) insights into the symptoms experienced, both in terms of knowledge and comprehension; and (3) improvements in the organization of care delivery. A web-based platform, CMyLife, was developed and pilot-tested. It has multiple features, all targeting parts of the bigger solution, including a website with reliable information and a forum, a guideline app, personal medical records with logs of symptoms and laboratory results (including a molecular marker and linked to the guideline app), tailored feedback based on the patients’ symptoms and/or results, screen-to-screen consulting, delivery of medication, and the collection of blood samples at home. ConclusionsThe multifeatured innovation, CMyLife, was developed in a multidisciplinary way and with active patient participation. The aim of developing CMyLife was to give patients the tools to monitor their results, interpret these results, and act on them. With this tool, they are provided with the know-how to consider their results in relation to their personal care process. Whether CMyLife achieves its goal and the evaluation of the added value will be the focus of future studies. CML could become the first malignancy for which patients are able to monitor and manage their disease by themselves.https://www.jmir.org/2020/5/e15895 |
| spellingShingle | Ector, Geneviève ICG Westerweel, Peter E Hermens, Rosella PMG Braspenning, Karin AE Heeren, Barend CM Vinck, Oscar MF de Jong, Jan JM Janssen, Jeroen JWM Blijlevens, Nicole MA The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development Approach Journal of Medical Internet Research |
| title | The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development Approach |
| title_full | The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development Approach |
| title_fullStr | The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development Approach |
| title_full_unstemmed | The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development Approach |
| title_short | The Development of a Web-Based, Patient-Centered Intervention for Patients With Chronic Myeloid Leukemia (CMyLife): Design Thinking Development Approach |
| title_sort | development of a web based patient centered intervention for patients with chronic myeloid leukemia cmylife design thinking development approach |
| url | https://www.jmir.org/2020/5/e15895 |
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