Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guide
The rising prevalence of inflammatory bowel diseases (IBD), including Crohn’s disease and ulcerative colitis, among adolescents and young adults illuminates the growing need for psychosocial and structural support for these patients as they navigate both higher education and entering the workforce....
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2023-01-01
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| Series: | Health Care Transitions |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S294992322300017X |
| _version_ | 1797235419356594176 |
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| author | Sydney Reed Sneha Dave Amy Bugwadia |
| author_facet | Sydney Reed Sneha Dave Amy Bugwadia |
| author_sort | Sydney Reed |
| collection | DOAJ |
| description | The rising prevalence of inflammatory bowel diseases (IBD), including Crohn’s disease and ulcerative colitis, among adolescents and young adults illuminates the growing need for psychosocial and structural support for these patients as they navigate both higher education and entering the workforce. In a roundtable discussion hosted by the Crohn’s and Colitis Young Adults Network (CCYAN), medical professionals (physicians, nurses, psychologists, trainees/medical students) and young adult patients with IBD came together to identify best practices for leveraging existing resources to support patients in higher education and their early careers. The discussion explored the topics of ableism and existing barriers in higher education and the workplace, including accommodation processes and the significance of proactive planning and collaboration between patients and their pediatric or adult care providers; the crucial role of establishing a therapeutic alliance; highlighting the importance of adopting a ''whole person'' care approach and normalizing discussions about the psychosocial facets of IBD; and finally, addressing the challenges associated with disease disclosure to empower patients and further build their self-efficacy. |
| first_indexed | 2024-04-24T16:47:39Z |
| format | Article |
| id | doaj.art-b80e61d6059a486d8cfcb6a71e470425 |
| institution | Directory Open Access Journal |
| issn | 2949-9232 |
| language | English |
| last_indexed | 2024-04-24T16:47:39Z |
| publishDate | 2023-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Health Care Transitions |
| spelling | doaj.art-b80e61d6059a486d8cfcb6a71e4704252024-03-29T05:52:40ZengElsevierHealth Care Transitions2949-92322023-01-011100017Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guideSydney Reed0Sneha Dave1Amy Bugwadia2Generation Patient, United States; Corresponding author.Generation Patient, United StatesStanford University School of Medicine, Generation Patient, United StatesThe rising prevalence of inflammatory bowel diseases (IBD), including Crohn’s disease and ulcerative colitis, among adolescents and young adults illuminates the growing need for psychosocial and structural support for these patients as they navigate both higher education and entering the workforce. In a roundtable discussion hosted by the Crohn’s and Colitis Young Adults Network (CCYAN), medical professionals (physicians, nurses, psychologists, trainees/medical students) and young adult patients with IBD came together to identify best practices for leveraging existing resources to support patients in higher education and their early careers. The discussion explored the topics of ableism and existing barriers in higher education and the workplace, including accommodation processes and the significance of proactive planning and collaboration between patients and their pediatric or adult care providers; the crucial role of establishing a therapeutic alliance; highlighting the importance of adopting a ''whole person'' care approach and normalizing discussions about the psychosocial facets of IBD; and finally, addressing the challenges associated with disease disclosure to empower patients and further build their self-efficacy.http://www.sciencedirect.com/science/article/pii/S294992322300017XCollegeYoung adults with IBDAdolescents with IBDPatient-led researchStudents with IBDYoung adults with Crohn’s |
| spellingShingle | Sydney Reed Sneha Dave Amy Bugwadia Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guide Health Care Transitions College Young adults with IBD Adolescents with IBD Patient-led research Students with IBD Young adults with Crohn’s |
| title | Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guide |
| title_full | Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guide |
| title_fullStr | Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guide |
| title_full_unstemmed | Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guide |
| title_short | Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician’s guide |
| title_sort | best practices to support inflammatory bowel disease patients in higher education and the workplace a clinician s guide |
| topic | College Young adults with IBD Adolescents with IBD Patient-led research Students with IBD Young adults with Crohn’s |
| url | http://www.sciencedirect.com/science/article/pii/S294992322300017X |
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