Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study
Abstract Background Treatment of type 1 diabetes is a process involving not only sick children, but also their caregivers. Aim To assess the burden of care and sense of loneliness in caregivers of children with type 1 diabetes. Also, an analysis was conducted of the connection between sociodemograph...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2023-10-01
|
| Series: | BioPsychoSocial Medicine |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s13030-023-00291-4 |
| _version_ | 1797558822200410112 |
|---|---|
| author | Ewa Kobos Sylwia Rojkowska Alicja Szewczyk Beata Dziedzic |
| author_facet | Ewa Kobos Sylwia Rojkowska Alicja Szewczyk Beata Dziedzic |
| author_sort | Ewa Kobos |
| collection | DOAJ |
| description | Abstract Background Treatment of type 1 diabetes is a process involving not only sick children, but also their caregivers. Aim To assess the burden of care and sense of loneliness in caregivers of children with type 1 diabetes. Also, an analysis was conducted of the connection between sociodemographic factors characterizing caregivers and the clinical factors characterizing sick children and between the burden of care and the sense of loneliness. Materials and methods The study included 125 caregivers of children with type 1 diabetes. In order to collect the research data, the Caregiver Burden Scale and the Revised UCLA Loneliness Scale were used. Results In the research group, the total result in the caregiving burden scale was 2.14, which remains within the average burden level. Caregivers showed the highest burden level in the General Strain Subscale. The analysis showed that mothers experience a greater burden of care than fathers in the General Strain Subscale and that caregivers of younger children are more burdened with care within the Isolation and Disappointment Subscales. Moderate high degree of loneliness was shown in 4.8% of caregivers. A higher burden of care for caregivers of children with type 1 diabetes is accompanied by a higher sense of loneliness. Conclusions The results of this study may help healthcare professionals plan a holistic, family-centered care program that will take into account factors that increase the burden of care: younger age of the affected child, motherhood, caregiver unemployment, feelings of loneliness, lower education, caregiver unemployment, blood glucose meter measurements, and frequent night-time blood glucose measurements. |
| first_indexed | 2024-03-10T17:36:49Z |
| format | Article |
| id | doaj.art-b8548d47eff941d9a177c9bd7681e5c4 |
| institution | Directory Open Access Journal |
| issn | 1751-0759 |
| language | English |
| last_indexed | 2024-03-10T17:36:49Z |
| publishDate | 2023-10-01 |
| publisher | BMC |
| record_format | Article |
| series | BioPsychoSocial Medicine |
| spelling | doaj.art-b8548d47eff941d9a177c9bd7681e5c42023-11-20T09:50:43ZengBMCBioPsychoSocial Medicine1751-07592023-10-0117111010.1186/s13030-023-00291-4Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional studyEwa Kobos0Sylwia Rojkowska1Alicja Szewczyk2Beata Dziedzic3Department of Development of Nursing, Social and Medical Sciences, Faculty of Health Sciences, Medical University of WarsawCentral Clinical Hospital of the MSWiAPolish Federation for Diabetes EducationDepartment of Development of Nursing, Social and Medical Sciences, Faculty of Health Sciences, Medical University of WarsawAbstract Background Treatment of type 1 diabetes is a process involving not only sick children, but also their caregivers. Aim To assess the burden of care and sense of loneliness in caregivers of children with type 1 diabetes. Also, an analysis was conducted of the connection between sociodemographic factors characterizing caregivers and the clinical factors characterizing sick children and between the burden of care and the sense of loneliness. Materials and methods The study included 125 caregivers of children with type 1 diabetes. In order to collect the research data, the Caregiver Burden Scale and the Revised UCLA Loneliness Scale were used. Results In the research group, the total result in the caregiving burden scale was 2.14, which remains within the average burden level. Caregivers showed the highest burden level in the General Strain Subscale. The analysis showed that mothers experience a greater burden of care than fathers in the General Strain Subscale and that caregivers of younger children are more burdened with care within the Isolation and Disappointment Subscales. Moderate high degree of loneliness was shown in 4.8% of caregivers. A higher burden of care for caregivers of children with type 1 diabetes is accompanied by a higher sense of loneliness. Conclusions The results of this study may help healthcare professionals plan a holistic, family-centered care program that will take into account factors that increase the burden of care: younger age of the affected child, motherhood, caregiver unemployment, feelings of loneliness, lower education, caregiver unemployment, blood glucose meter measurements, and frequent night-time blood glucose measurements.https://doi.org/10.1186/s13030-023-00291-4Type 1 diabetesChildCaregiverBurden of careLoneliness |
| spellingShingle | Ewa Kobos Sylwia Rojkowska Alicja Szewczyk Beata Dziedzic Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study BioPsychoSocial Medicine Type 1 diabetes Child Caregiver Burden of care Loneliness |
| title | Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study |
| title_full | Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study |
| title_fullStr | Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study |
| title_full_unstemmed | Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study |
| title_short | Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study |
| title_sort | burden of care and a sense of loneliness in caregivers of children with type 1 diabetes a cross sectional study |
| topic | Type 1 diabetes Child Caregiver Burden of care Loneliness |
| url | https://doi.org/10.1186/s13030-023-00291-4 |
| work_keys_str_mv | AT ewakobos burdenofcareandasenseoflonelinessincaregiversofchildrenwithtype1diabetesacrosssectionalstudy AT sylwiarojkowska burdenofcareandasenseoflonelinessincaregiversofchildrenwithtype1diabetesacrosssectionalstudy AT alicjaszewczyk burdenofcareandasenseoflonelinessincaregiversofchildrenwithtype1diabetesacrosssectionalstudy AT beatadziedzic burdenofcareandasenseoflonelinessincaregiversofchildrenwithtype1diabetesacrosssectionalstudy |