How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study
Lindsay D Apps,1 Samantha L Harrison,1 Johanna EA Williams,1 Nicky Hudson,2 Michael Steiner,1 Mike D Morgan,1 Sally J Singh1,31National Institute of Health Research CLAHRC-LNR Pulmonary Rehabilitation Research Group, University Hospitals of Leicester NHS Trust, 2School of Applied Social Sciences, De...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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Dove Medical Press
2014-02-01
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| Series: | International Journal of COPD |
| Online Access: | http://www.dovepress.com/how-do-informal-self-care-strategies-evolve-among-patients-with-chroni-a15959 |
| _version_ | 1811258430651891712 |
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| author | Apps LD Harrison SL Williams JE Hudson N Steiner M Morgan MD Singh SJ |
| author_facet | Apps LD Harrison SL Williams JE Hudson N Steiner M Morgan MD Singh SJ |
| author_sort | Apps LD |
| collection | DOAJ |
| description | Lindsay D Apps,1 Samantha L Harrison,1 Johanna EA Williams,1 Nicky Hudson,2 Michael Steiner,1 Mike D Morgan,1 Sally J Singh1,31National Institute of Health Research CLAHRC-LNR Pulmonary Rehabilitation Research Group, University Hospitals of Leicester NHS Trust, 2School of Applied Social Sciences, De Montfort University, Leicester, 3Applied Research Centre Health & Lifestyle Interventions, Coventry University, Coventry, UKBackground: There is much description in the literature of how patients with chronic obstructive pulmonary disease (COPD) manage their breathlessness and engage in self-care activities; however, little of this is from the perspective of those with less severe disease, who are primarily managed in primary care. This study aimed to understand the self-care experiences of patients with COPD who are primarily managed in primary care, and to examine the challenges of engaging in such behaviors.Methods: Semistructured interviews were carried out with 15 patients with COPD as part of a larger project evaluating a self-management intervention. Thematic analysis was supported by NVivo software (version 8, QSR International, Melbourne, Australia).Results: Three main themes are described, ie, experiencing and understanding symptoms of COPD, current self-care activities, and the importance of family perceptions in managing COPD.Conclusion: Self-care activities evolved spontaneously as participants experienced symptoms of COPD. However, there was a lack of awareness about whether these strategies would impact upon symptoms. Perceptions of COPD by family members posed a challenge to self-care for some participants. Health care professionals should elicit patients' prior disease experiences and utilize spontaneous attempts at disease management in future self-management. These findings have implications for promoting self-management and enhancing quality of life.Keywords: chronic obstructive pulmonary disease, self-care, qualitative interviews, primary care |
| first_indexed | 2024-04-12T18:13:18Z |
| format | Article |
| id | doaj.art-b8b7c4a00d1b426ea624e375db7c9ec1 |
| institution | Directory Open Access Journal |
| issn | 1178-2005 |
| language | English |
| last_indexed | 2024-04-12T18:13:18Z |
| publishDate | 2014-02-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | International Journal of COPD |
| spelling | doaj.art-b8b7c4a00d1b426ea624e375db7c9ec12022-12-22T03:21:44ZengDove Medical PressInternational Journal of COPD1178-20052014-02-012014default25726315959How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative studyApps LDHarrison SLWilliams JEHudson NSteiner MMorgan MDSingh SJLindsay D Apps,1 Samantha L Harrison,1 Johanna EA Williams,1 Nicky Hudson,2 Michael Steiner,1 Mike D Morgan,1 Sally J Singh1,31National Institute of Health Research CLAHRC-LNR Pulmonary Rehabilitation Research Group, University Hospitals of Leicester NHS Trust, 2School of Applied Social Sciences, De Montfort University, Leicester, 3Applied Research Centre Health & Lifestyle Interventions, Coventry University, Coventry, UKBackground: There is much description in the literature of how patients with chronic obstructive pulmonary disease (COPD) manage their breathlessness and engage in self-care activities; however, little of this is from the perspective of those with less severe disease, who are primarily managed in primary care. This study aimed to understand the self-care experiences of patients with COPD who are primarily managed in primary care, and to examine the challenges of engaging in such behaviors.Methods: Semistructured interviews were carried out with 15 patients with COPD as part of a larger project evaluating a self-management intervention. Thematic analysis was supported by NVivo software (version 8, QSR International, Melbourne, Australia).Results: Three main themes are described, ie, experiencing and understanding symptoms of COPD, current self-care activities, and the importance of family perceptions in managing COPD.Conclusion: Self-care activities evolved spontaneously as participants experienced symptoms of COPD. However, there was a lack of awareness about whether these strategies would impact upon symptoms. Perceptions of COPD by family members posed a challenge to self-care for some participants. Health care professionals should elicit patients' prior disease experiences and utilize spontaneous attempts at disease management in future self-management. These findings have implications for promoting self-management and enhancing quality of life.Keywords: chronic obstructive pulmonary disease, self-care, qualitative interviews, primary carehttp://www.dovepress.com/how-do-informal-self-care-strategies-evolve-among-patients-with-chroni-a15959 |
| spellingShingle | Apps LD Harrison SL Williams JE Hudson N Steiner M Morgan MD Singh SJ How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study International Journal of COPD |
| title | How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study |
| title_full | How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study |
| title_fullStr | How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study |
| title_full_unstemmed | How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study |
| title_short | How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study |
| title_sort | how do informal self care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care a qualitative study |
| url | http://www.dovepress.com/how-do-informal-self-care-strategies-evolve-among-patients-with-chroni-a15959 |
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