Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)

Background: The present study aimed to translate the cystic fibrosis questionnaire-revised (CFQ-R) for children with cystic fibrosis (CF) into Persian and evaluate the reliability and validity of the instrument.Methods: About eighty individuals including children and their parents were enrolled in t...

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Main Authors: Saeedeh Talebi, Seyed Javad Sayedi, Golnaz Ranjbar, Majid Khadem Rezaeian, Hanie Bbarghchi, golnaz Kazemi sefat, Mohammad Safarian, Hamidreza Kianifar
Format: Article
Language:English
Published: Mashhad University of Medical Sciences 2021-12-01
Series:International Journal of Pediatrics
Subjects:
Online Access:https://ijp.mums.ac.ir/article_19226_3d068fd26780599d3e9d0979b0c9c6b7.pdf
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author Saeedeh Talebi
Seyed Javad Sayedi
Golnaz Ranjbar
Majid Khadem Rezaeian
Hanie Bbarghchi
golnaz Kazemi sefat
Mohammad Safarian
Hamidreza Kianifar
author_facet Saeedeh Talebi
Seyed Javad Sayedi
Golnaz Ranjbar
Majid Khadem Rezaeian
Hanie Bbarghchi
golnaz Kazemi sefat
Mohammad Safarian
Hamidreza Kianifar
author_sort Saeedeh Talebi
collection DOAJ
description Background: The present study aimed to translate the cystic fibrosis questionnaire-revised (CFQ-R) for children with cystic fibrosis (CF) into Persian and evaluate the reliability and validity of the instrument.Methods: About eighty individuals including children and their parents were enrolled in this cross-sectional study. Demographic characteristic and disease severity parameters of the subjects were recorded. After translation of the CFQ-R to Persian, the participants completed the parent or child translated version of the CFQ-R, as well as the PedsQL 4.0. Reliability and validity analyses were, then, carried out.Results: The forward-backward translation was employed in this study. The total content validity ratio (CVR) and content validity index (CVI) were above 0.8 and at least 0.49, respectively. The internal reliability of each domain was acceptable (Cronbach alpha coefficients 0.65-0.91). Appropriate domains of the CFQ-R and pediatric quality of life inventory (PedsQL 4.0) were correlated, indicating the acceptable concurrent validity (r=0.5-0.7). In addition, test-retest reliability was assessed using correlation-coefficients, which were considered significant for both the child version (r=0.88; P˂0.001) and parent version (r=0.78; P˂0.001). Moreover, the CFQ-R scales showed significant correlations with the clinical indices and the construct of disease severity in the child and parent version.Conclusion: According to the results, the Persian version of the child and parent CFQ-R has acceptable reliability and validity indices; and may be suggested to be used in clinical trials for the clinical evaluations and follow-ups of Iranian children with CF.
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spelling doaj.art-b931c5f1813b413d8c5e2cc741e2afa12022-12-22T04:34:22ZengMashhad University of Medical SciencesInternational Journal of Pediatrics2345-50472345-50552021-12-01912150031501410.22038/ijp.2021.61497.473119226Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)Saeedeh Talebi0Seyed Javad Sayedi1Golnaz Ranjbar2Majid Khadem Rezaeian3Hanie Bbarghchi4golnaz Kazemi sefat5Mohammad Safarian6Hamidreza Kianifar7Department of Nutrition, Faculty of medicine, Mashhad University of Medical Sciences, Mashhad, IranAssistant Prof of Pediatric Pulmonology, Mashhad University of Medical SciencesDepartment of Nutrition, Faculty of medicine, Mashhad University of Medical sciences, Mashhad, Iranclinical research development unit of Akbar hospital Research Center, Mashhad University of Medical Sciences, Mashhad, IranNutrition department, Faculty of medicine Mashhad University of Medical Sciences (MUMS), Mashhad, IranDepartment of Molecular Medicine, Faculty of Advanced Technology, Iran University of Medical SciencesDepartment of Nutrition, Mashhad University of Medical Sciences, Mashhad, IranDepartment of Gastroenterology,Faculty of medicine,Mashhad university of medical sciences,Mashhad,IranBackground: The present study aimed to translate the cystic fibrosis questionnaire-revised (CFQ-R) for children with cystic fibrosis (CF) into Persian and evaluate the reliability and validity of the instrument.Methods: About eighty individuals including children and their parents were enrolled in this cross-sectional study. Demographic characteristic and disease severity parameters of the subjects were recorded. After translation of the CFQ-R to Persian, the participants completed the parent or child translated version of the CFQ-R, as well as the PedsQL 4.0. Reliability and validity analyses were, then, carried out.Results: The forward-backward translation was employed in this study. The total content validity ratio (CVR) and content validity index (CVI) were above 0.8 and at least 0.49, respectively. The internal reliability of each domain was acceptable (Cronbach alpha coefficients 0.65-0.91). Appropriate domains of the CFQ-R and pediatric quality of life inventory (PedsQL 4.0) were correlated, indicating the acceptable concurrent validity (r=0.5-0.7). In addition, test-retest reliability was assessed using correlation-coefficients, which were considered significant for both the child version (r=0.88; P˂0.001) and parent version (r=0.78; P˂0.001). Moreover, the CFQ-R scales showed significant correlations with the clinical indices and the construct of disease severity in the child and parent version.Conclusion: According to the results, the Persian version of the child and parent CFQ-R has acceptable reliability and validity indices; and may be suggested to be used in clinical trials for the clinical evaluations and follow-ups of Iranian children with CF.https://ijp.mums.ac.ir/article_19226_3d068fd26780599d3e9d0979b0c9c6b7.pdfchildcystic fibrosishealth-related quality of life (hrqol)parentsquality of life
spellingShingle Saeedeh Talebi
Seyed Javad Sayedi
Golnaz Ranjbar
Majid Khadem Rezaeian
Hanie Bbarghchi
golnaz Kazemi sefat
Mohammad Safarian
Hamidreza Kianifar
Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)
International Journal of Pediatrics
child
cystic fibrosis
health-related quality of life (hrqol)
parents
quality of life
title Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)
title_full Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)
title_fullStr Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)
title_full_unstemmed Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)
title_short Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)
title_sort towards the validation of the persian version of the revised cystic fibrosis quality of life questionnaire for children and parents cfq r
topic child
cystic fibrosis
health-related quality of life (hrqol)
parents
quality of life
url https://ijp.mums.ac.ir/article_19226_3d068fd26780599d3e9d0979b0c9c6b7.pdf
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