Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators”
Translational medicine works through the definition of unmet medical needs, their understanding and final resolution. In this complex and multi-disciplinary process patients have always been regarded as “end-users” or no more than “data provider.” Considering that the translational practice is nowad...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2019-05-01
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| Series: | Frontiers in Medicine |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/article/10.3389/fmed.2019.00110/full |
| _version_ | 1818512689858609152 |
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| author | Manuela Battaglia Pat Furlong Nico Martinus Wulffraat Felicitas Bellutti Enders |
| author_facet | Manuela Battaglia Pat Furlong Nico Martinus Wulffraat Felicitas Bellutti Enders |
| author_sort | Manuela Battaglia |
| collection | DOAJ |
| description | Translational medicine works through the definition of unmet medical needs, their understanding and final resolution. In this complex and multi-disciplinary process patients have always been regarded as “end-users” or no more than “data provider.” Considering that the translational practice is nowadays highly inefficient (i.e., large intellectual and economical resources are wasted with limited impact on people health) here we propose to reverse the process: start from patients, engage them, and keep them at the center. A new partnership needs to be formed between the patients and the health care professionals, as well as the treating physicians, to make the most out of the current “health resources.” New patient-centric approaches are emerging but they remain isolated phenomena often difficult to implement. Here—with this perspective—we aim at thinking differently and learning from new experiences. We will provide some successful examples of change, and we will discuss new approaches to create a radical change in the way translational medicine is managed and how this would significantly impact people health and health care systems. |
| first_indexed | 2024-12-10T23:50:27Z |
| format | Article |
| id | doaj.art-b990adf379d84e25b4c8d93a3786358d |
| institution | Directory Open Access Journal |
| issn | 2296-858X |
| language | English |
| last_indexed | 2024-12-10T23:50:27Z |
| publishDate | 2019-05-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Medicine |
| spelling | doaj.art-b990adf379d84e25b4c8d93a3786358d2022-12-22T01:28:46ZengFrontiers Media S.A.Frontiers in Medicine2296-858X2019-05-01610.3389/fmed.2019.00110429996Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators”Manuela Battaglia0Pat Furlong1Nico Martinus Wulffraat2Felicitas Bellutti Enders3Diabetes Research Institute, IRCCS San Raffaele Scientific Institute, Milan, ItalyParent Project Muscular Dystrophy, Hackensack, NJ, United StatesDepartment of Pediatric Immunology, Wilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, NetherlandsAllergy Unit, Department of Dermatology, University Hospital, Basel, SwitzerlandTranslational medicine works through the definition of unmet medical needs, their understanding and final resolution. In this complex and multi-disciplinary process patients have always been regarded as “end-users” or no more than “data provider.” Considering that the translational practice is nowadays highly inefficient (i.e., large intellectual and economical resources are wasted with limited impact on people health) here we propose to reverse the process: start from patients, engage them, and keep them at the center. A new partnership needs to be formed between the patients and the health care professionals, as well as the treating physicians, to make the most out of the current “health resources.” New patient-centric approaches are emerging but they remain isolated phenomena often difficult to implement. Here—with this perspective—we aim at thinking differently and learning from new experiences. We will provide some successful examples of change, and we will discuss new approaches to create a radical change in the way translational medicine is managed and how this would significantly impact people health and health care systems.https://www.frontiersin.org/article/10.3389/fmed.2019.00110/fulltranslational medicinepatient-centric approachesshared decision medicinethe innovation journeypatient advocacy |
| spellingShingle | Manuela Battaglia Pat Furlong Nico Martinus Wulffraat Felicitas Bellutti Enders Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators” Frontiers in Medicine translational medicine patient-centric approaches shared decision medicine the innovation journey patient advocacy |
| title | Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators” |
| title_full | Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators” |
| title_fullStr | Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators” |
| title_full_unstemmed | Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators” |
| title_short | Improving the Translational Medicine Process: Moving Patients From “End-Users” to “Engaged Collaborators” |
| title_sort | improving the translational medicine process moving patients from end users to engaged collaborators |
| topic | translational medicine patient-centric approaches shared decision medicine the innovation journey patient advocacy |
| url | https://www.frontiersin.org/article/10.3389/fmed.2019.00110/full |
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