Human capabilities of South African parents who have children with developmental disabilities
Background: Parenting a child with a developmental disability (DD) has a substantial influence on the lives of the parents or caregivers, as well as on how the family operates. This is frequently because of the adjustments in some daily practices that are crucial for parents’ or caregivers’ human ca...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
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AOSIS
2023-06-01
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| Series: | African Journal of Disability |
| Subjects: | |
| Online Access: | https://ajod.org/index.php/ajod/article/view/1155 |
| _version_ | 1797788830301945856 |
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| author | Lumka Magidigidi Nicolette V. Roman Inge K. Sonn |
| author_facet | Lumka Magidigidi Nicolette V. Roman Inge K. Sonn |
| author_sort | Lumka Magidigidi |
| collection | DOAJ |
| description | Background: Parenting a child with a developmental disability (DD) has a substantial influence on the lives of the parents or caregivers, as well as on how the family operates. This is frequently because of the adjustments in some daily practices that are crucial for parents’ or caregivers’ human capabilities to provide for childcare. There is not enough research done on human capabilities of parents or children with DD in South Africa.
Objectives: This study investigated the available support in improving the human capabilities of parents or caregivers with children with DD and the bodily health and bodily integrity human capabilities of parents or caregivers with children with DD.
Method: Qualitative interviews were conducted with 11 parents or caregivers of children aged between 1 and 8 years old with DD. This study used snowball sampling. Thematic data analysis was chosen to analyse the data collected.
Results: The results of the study indicate that participants have difficulties bringing up their children because of the emotional strain that goes along with parenting a child with DD. In addition, participants were not able to afford decent and satisfactory shelter and had limited access to good quality food because they could not afford it.
Conclusion: A lack of social support and care burden influences parents’ or caregivers’ ability to raise their child with developmental disability.
Contribution: The study contains helpful information about families of children with DD in under-resourced locations. The information may be of significance to policymakers who are accountable for designing and executing policies that are targeted at assisting parents or caregivers of children with DD. |
| first_indexed | 2024-03-13T01:42:03Z |
| format | Article |
| id | doaj.art-b9a984a8590d46fa813c3d364becefeb |
| institution | Directory Open Access Journal |
| issn | 2223-9170 2226-7220 |
| language | English |
| last_indexed | 2024-03-13T01:42:03Z |
| publishDate | 2023-06-01 |
| publisher | AOSIS |
| record_format | Article |
| series | African Journal of Disability |
| spelling | doaj.art-b9a984a8590d46fa813c3d364becefeb2023-07-03T14:04:39ZengAOSISAfrican Journal of Disability2223-91702226-72202023-06-01120e1e1010.4102/ajod.v12i0.1155354Human capabilities of South African parents who have children with developmental disabilitiesLumka Magidigidi0Nicolette V. Roman1Inge K. Sonn2Centre for Interdisciplinary Studies of Children, Families and Society, Faculty of Community and Health Sciences, University of the Western Cape, Cape TownCentre for Interdisciplinary Studies of Children, Families and Society, Faculty of Community and Health Sciences, University of the Western Cape, Cape TownCentre for Interdisciplinary Studies of Children, Families and Society, Faculty of Community and Health Sciences, University of the Western Cape, Cape TownBackground: Parenting a child with a developmental disability (DD) has a substantial influence on the lives of the parents or caregivers, as well as on how the family operates. This is frequently because of the adjustments in some daily practices that are crucial for parents’ or caregivers’ human capabilities to provide for childcare. There is not enough research done on human capabilities of parents or children with DD in South Africa. Objectives: This study investigated the available support in improving the human capabilities of parents or caregivers with children with DD and the bodily health and bodily integrity human capabilities of parents or caregivers with children with DD. Method: Qualitative interviews were conducted with 11 parents or caregivers of children aged between 1 and 8 years old with DD. This study used snowball sampling. Thematic data analysis was chosen to analyse the data collected. Results: The results of the study indicate that participants have difficulties bringing up their children because of the emotional strain that goes along with parenting a child with DD. In addition, participants were not able to afford decent and satisfactory shelter and had limited access to good quality food because they could not afford it. Conclusion: A lack of social support and care burden influences parents’ or caregivers’ ability to raise their child with developmental disability. Contribution: The study contains helpful information about families of children with DD in under-resourced locations. The information may be of significance to policymakers who are accountable for designing and executing policies that are targeted at assisting parents or caregivers of children with DD.https://ajod.org/index.php/ajod/article/view/1155human capabilitiesfreedomsopportunitiesdevelopmental disabilityparentschildren with disabilitiesfamilycapabilities approachsouth africa. |
| spellingShingle | Lumka Magidigidi Nicolette V. Roman Inge K. Sonn Human capabilities of South African parents who have children with developmental disabilities African Journal of Disability human capabilities freedoms opportunities developmental disability parents children with disabilities family capabilities approach south africa. |
| title | Human capabilities of South African parents who have children with developmental disabilities |
| title_full | Human capabilities of South African parents who have children with developmental disabilities |
| title_fullStr | Human capabilities of South African parents who have children with developmental disabilities |
| title_full_unstemmed | Human capabilities of South African parents who have children with developmental disabilities |
| title_short | Human capabilities of South African parents who have children with developmental disabilities |
| title_sort | human capabilities of south african parents who have children with developmental disabilities |
| topic | human capabilities freedoms opportunities developmental disability parents children with disabilities family capabilities approach south africa. |
| url | https://ajod.org/index.php/ajod/article/view/1155 |
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