Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive Improvement
This research critically explores deficiencies in the palliative care system, focusing on evaluation and treatment aspects for both adult and paediatric patients. Using a qualitative methodology, the study engages healthcare professionals and family caregivers to uncover perspectives on the existing...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
MDPI AG
2023-12-01
|
| Series: | Healthcare |
| Subjects: | |
| Online Access: | https://www.mdpi.com/2227-9032/12/1/65 |
| _version_ | 1797358820016521216 |
|---|---|
| author | Laura Llop-Medina Paula García-Muñoz Francisco Ródenas-Rigla Jorge Garcés-Ferrer |
| author_facet | Laura Llop-Medina Paula García-Muñoz Francisco Ródenas-Rigla Jorge Garcés-Ferrer |
| author_sort | Laura Llop-Medina |
| collection | DOAJ |
| description | This research critically explores deficiencies in the palliative care system, focusing on evaluation and treatment aspects for both adult and paediatric patients. Using a qualitative methodology, the study engages healthcare professionals and family caregivers to uncover perspectives on the existing state of palliative care. Conducted through three focus groups and a semi-structured in-depth interview with participants recruited from Virgen de la Arrixaca University Clinical Hospital, this research illustrates critical issues, highlighting the insufficient healthcare workforce and resources to meet the comprehensive needs of patients and their families. Recommendations include holistic care addressing social, emotional, psychological, socio-familiar, and economic dimensions, supported by embedded support groups and the enforcement of relationships with palliative associations. This study also advocates for improved health institutional coordination, social worker support, and ongoing health professional satisfaction monitoring. In paediatric care, specific demands involve specialised units, medical team continuity, 24 h paediatrician care, and a more professional paediatric approach. Beyond problem identification, this study offers valuable insights for shaping health policies and tools, incorporating new indicators and introducing grief bereavement support in clinical reports, contributing to the advancement of patient evaluation in palliative care. |
| first_indexed | 2024-03-08T15:06:40Z |
| format | Article |
| id | doaj.art-ba27784e1aed47dfb094ebab7f26bd3b |
| institution | Directory Open Access Journal |
| issn | 2227-9032 |
| language | English |
| last_indexed | 2024-03-08T15:06:40Z |
| publishDate | 2023-12-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Healthcare |
| spelling | doaj.art-ba27784e1aed47dfb094ebab7f26bd3b2024-01-10T14:57:27ZengMDPI AGHealthcare2227-90322023-12-011216510.3390/healthcare12010065Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive ImprovementLaura Llop-Medina0Paula García-Muñoz1Francisco Ródenas-Rigla2Jorge Garcés-Ferrer3Polibienestar Research Institute, University of Valencia, 46022 Valencia, SpainPolibienestar Research Institute, University of Valencia, 46022 Valencia, SpainPolibienestar Research Institute, University of Valencia, 46022 Valencia, SpainPolibienestar Research Institute, University of Valencia, 46022 Valencia, SpainThis research critically explores deficiencies in the palliative care system, focusing on evaluation and treatment aspects for both adult and paediatric patients. Using a qualitative methodology, the study engages healthcare professionals and family caregivers to uncover perspectives on the existing state of palliative care. Conducted through three focus groups and a semi-structured in-depth interview with participants recruited from Virgen de la Arrixaca University Clinical Hospital, this research illustrates critical issues, highlighting the insufficient healthcare workforce and resources to meet the comprehensive needs of patients and their families. Recommendations include holistic care addressing social, emotional, psychological, socio-familiar, and economic dimensions, supported by embedded support groups and the enforcement of relationships with palliative associations. This study also advocates for improved health institutional coordination, social worker support, and ongoing health professional satisfaction monitoring. In paediatric care, specific demands involve specialised units, medical team continuity, 24 h paediatrician care, and a more professional paediatric approach. Beyond problem identification, this study offers valuable insights for shaping health policies and tools, incorporating new indicators and introducing grief bereavement support in clinical reports, contributing to the advancement of patient evaluation in palliative care.https://www.mdpi.com/2227-9032/12/1/65palliative care systemadults palliative carepaediatric palliative carequality improvementevaluator indicatorsfamily caregivers |
| spellingShingle | Laura Llop-Medina Paula García-Muñoz Francisco Ródenas-Rigla Jorge Garcés-Ferrer Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive Improvement Healthcare palliative care system adults palliative care paediatric palliative care quality improvement evaluator indicators family caregivers |
| title | Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive Improvement |
| title_full | Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive Improvement |
| title_fullStr | Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive Improvement |
| title_full_unstemmed | Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive Improvement |
| title_short | Enhancing the Adult and Paediatric Palliative Care System: Spanish Professionals’ and Family Caregivers’ Suggestions for Comprehensive Improvement |
| title_sort | enhancing the adult and paediatric palliative care system spanish professionals and family caregivers suggestions for comprehensive improvement |
| topic | palliative care system adults palliative care paediatric palliative care quality improvement evaluator indicators family caregivers |
| url | https://www.mdpi.com/2227-9032/12/1/65 |
| work_keys_str_mv | AT laurallopmedina enhancingtheadultandpaediatricpalliativecaresystemspanishprofessionalsandfamilycaregiverssuggestionsforcomprehensiveimprovement AT paulagarciamunoz enhancingtheadultandpaediatricpalliativecaresystemspanishprofessionalsandfamilycaregiverssuggestionsforcomprehensiveimprovement AT franciscorodenasrigla enhancingtheadultandpaediatricpalliativecaresystemspanishprofessionalsandfamilycaregiverssuggestionsforcomprehensiveimprovement AT jorgegarcesferrer enhancingtheadultandpaediatricpalliativecaresystemspanishprofessionalsandfamilycaregiverssuggestionsforcomprehensiveimprovement |