The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees
Plain English summary We interviewed 10 individuals associated with studies that were funded through the Ontario Strategy for Patient Oriented Research (SPOR) Unit. We asked them about how they had engaged patients, families or caregivers in their study, how this engagement had influenced their stud...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2022-09-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-022-00381-7 |
| _version_ | 1828735392976732160 |
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| author | Stuart G. Nicholls Grace Fox Zarah Monfaredi Evelyn Poole Chantelle Garritty Alies Maybee Justin Presseau Beverley Shea Dean A. Fergusson |
| author_facet | Stuart G. Nicholls Grace Fox Zarah Monfaredi Evelyn Poole Chantelle Garritty Alies Maybee Justin Presseau Beverley Shea Dean A. Fergusson |
| author_sort | Stuart G. Nicholls |
| collection | DOAJ |
| description | Plain English summary We interviewed 10 individuals associated with studies that were funded through the Ontario Strategy for Patient Oriented Research (SPOR) Unit. We asked them about how they had engaged patients, families or caregivers in their study, how this engagement had influenced their study, the challenges they faced, and advice for other researchers considering engaging with patients, families and caregivers. We found that patients had been engaged in a variety of ways and at different times. The changes brought about by the patient engagement varied between studies but tended to reflect an improvement in how relevant the study was to patients. Researchers also shared how engagement with patients, families, and caregivers had changed their approaches to future research. Key challenges facing researchers included finding partners that were appropriate for the study, as well making sure that the approach to engagement overcame issues such as financial or logistical barriers that could prevent patients, families or caregivers from partnering with the study. |
| first_indexed | 2024-04-12T23:06:01Z |
| format | Article |
| id | doaj.art-ba37cb9407d44ab8a1f93c469df18fbd |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-04-12T23:06:01Z |
| publishDate | 2022-09-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-ba37cb9407d44ab8a1f93c469df18fbd2022-12-22T03:12:55ZengBMCResearch Involvement and Engagement2056-75292022-09-018111210.1186/s40900-022-00381-7The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardeesStuart G. Nicholls0Grace Fox1Zarah Monfaredi2Evelyn Poole3Chantelle Garritty4Alies Maybee5Justin Presseau6Beverley Shea7Dean A. Fergusson8Clinical Epidemiology Program, Ottawa Hospital Research InstituteClinical Epidemiology Program, Ottawa Hospital Research InstituteFaculty of Health Sciences, Simon Fraser UniversityFaculty of Arts and Science, Queen’s UniversityGlobal Health and Guidelines Division, Public Health Agency of CanadaPatient PartnerClinical Epidemiology Program, Ottawa Hospital Research InstituteClinical Epidemiology Program, Ottawa Hospital Research InstituteClinical Epidemiology Program, Ottawa Hospital Research InstitutePlain English summary We interviewed 10 individuals associated with studies that were funded through the Ontario Strategy for Patient Oriented Research (SPOR) Unit. We asked them about how they had engaged patients, families or caregivers in their study, how this engagement had influenced their study, the challenges they faced, and advice for other researchers considering engaging with patients, families and caregivers. We found that patients had been engaged in a variety of ways and at different times. The changes brought about by the patient engagement varied between studies but tended to reflect an improvement in how relevant the study was to patients. Researchers also shared how engagement with patients, families, and caregivers had changed their approaches to future research. Key challenges facing researchers included finding partners that were appropriate for the study, as well making sure that the approach to engagement overcame issues such as financial or logistical barriers that could prevent patients, families or caregivers from partnering with the study.https://doi.org/10.1186/s40900-022-00381-7Patient engagementQualitative researchEvaluationRepresentationImpact |
| spellingShingle | Stuart G. Nicholls Grace Fox Zarah Monfaredi Evelyn Poole Chantelle Garritty Alies Maybee Justin Presseau Beverley Shea Dean A. Fergusson The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees Research Involvement and Engagement Patient engagement Qualitative research Evaluation Representation Impact |
| title | The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees |
| title_full | The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees |
| title_fullStr | The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees |
| title_full_unstemmed | The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees |
| title_short | The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees |
| title_sort | impact of patient engagement on trials and trialists in ontario canada an interview study with impact awardees |
| topic | Patient engagement Qualitative research Evaluation Representation Impact |
| url | https://doi.org/10.1186/s40900-022-00381-7 |
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