Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis Patients
Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease. Among others, dysarthria and dysphagia (i.e. bulbar dysfunction) represent common clinical manifestations of ALS. Gradual impairment or even loss of speech functions puts ALS patients in the position of serious candidate...
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| Format: | Article |
| Language: | ces |
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Association of Speech-Language Pathologists of Czech Republic
2022-06-01
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| Series: | Listy klinicke logopedie |
| Subjects: | |
| Online Access: | https://casopis.aklcr.cz/en/artkey/lkl-202201-0007_alternative-and-augmentative-communication-in-amyotrophic-lateral-sclerosis-patients.php |
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| author | Naděžda Lasotová Adam Betík Eva Vlčková |
| author_facet | Naděžda Lasotová Adam Betík Eva Vlčková |
| author_sort | Naděžda Lasotová |
| collection | DOAJ |
| description | Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease. Among others, dysarthria and dysphagia (i.e. bulbar dysfunction) represent common clinical manifestations of ALS. Gradual impairment or even loss of speech functions puts ALS patients in the position of serious candidates for the implementation of Alternative and Augmentative Communication (AAC). Regular follow-up with the assessment of speech functions and AAC recommendation and settings in the relevant cases provided by the Clinical Speech Therapist are recommended in all ALS patients, from the onset of the disease. Maintaining the possibility of communication and interaction with the family and friends throughout the disease significantly improves the quality of life of patients and their caregivers. The paper presents the results of the long-term follow-up of a group of 89 ALS patients with bulbar impairment, focused on the use of AAC and the timing of AAC onset. Almost one-half of our patients started to use AAC in the follow-up period. Not surprisingly, the AAC methods were used mainly by patients with severe dysarthria or anarthria. In the study sample, patients started to use AAC approximately 16 months after the onset of bulbar symptoms. However, the time to onset of AAC was significantly variable individually, and a few patients did not use any AAC methods, even in the interval of more than 8 years from the onset of clinical bulbar impairment. |
| first_indexed | 2024-04-14T07:39:49Z |
| format | Article |
| id | doaj.art-bbb72e6906e64775994ab9185bd8f65f |
| institution | Directory Open Access Journal |
| issn | 2570-6179 |
| language | ces |
| last_indexed | 2024-04-14T07:39:49Z |
| publishDate | 2022-06-01 |
| publisher | Association of Speech-Language Pathologists of Czech Republic |
| record_format | Article |
| series | Listy klinicke logopedie |
| spelling | doaj.art-bbb72e6906e64775994ab9185bd8f65f2022-12-22T02:05:33ZcesAssociation of Speech-Language Pathologists of Czech RepublicListy klinicke logopedie2570-61792022-06-0161394510.36833/lkl.2022.014lkl-202201-0007Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis PatientsNaděžda Lasotová0Adam Betík1Eva Vlčková2Neurologická klinika Fakultní nemocnice Brno; Katedra speciální a inkluzivní pedagogiky, Pedagogická fakulta Masarykovy univerzity Brno, Česká republikaNeurologická klinika Fakultní nemocnice Brno; Lékařská fakulta Masarykovy univerzity Brno, Česká republika.Neurologická klinika Fakultní nemocnice Brno; Lékařská fakulta Masarykovy univerzity Brno, Česká republika.Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease. Among others, dysarthria and dysphagia (i.e. bulbar dysfunction) represent common clinical manifestations of ALS. Gradual impairment or even loss of speech functions puts ALS patients in the position of serious candidates for the implementation of Alternative and Augmentative Communication (AAC). Regular follow-up with the assessment of speech functions and AAC recommendation and settings in the relevant cases provided by the Clinical Speech Therapist are recommended in all ALS patients, from the onset of the disease. Maintaining the possibility of communication and interaction with the family and friends throughout the disease significantly improves the quality of life of patients and their caregivers. The paper presents the results of the long-term follow-up of a group of 89 ALS patients with bulbar impairment, focused on the use of AAC and the timing of AAC onset. Almost one-half of our patients started to use AAC in the follow-up period. Not surprisingly, the AAC methods were used mainly by patients with severe dysarthria or anarthria. In the study sample, patients started to use AAC approximately 16 months after the onset of bulbar symptoms. However, the time to onset of AAC was significantly variable individually, and a few patients did not use any AAC methods, even in the interval of more than 8 years from the onset of clinical bulbar impairment.https://casopis.aklcr.cz/en/artkey/lkl-202201-0007_alternative-and-augmentative-communication-in-amyotrophic-lateral-sclerosis-patients.phpamyotrophic lateral sclerosisdysarthriaaugmentative and alternative communicationquality of life |
| spellingShingle | Naděžda Lasotová Adam Betík Eva Vlčková Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis Patients Listy klinicke logopedie amyotrophic lateral sclerosis dysarthria augmentative and alternative communication quality of life |
| title | Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis Patients |
| title_full | Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis Patients |
| title_fullStr | Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis Patients |
| title_full_unstemmed | Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis Patients |
| title_short | Alternative and Augmentative Communication in Amyotrophic Lateral Sclerosis Patients |
| title_sort | alternative and augmentative communication in amyotrophic lateral sclerosis patients |
| topic | amyotrophic lateral sclerosis dysarthria augmentative and alternative communication quality of life |
| url | https://casopis.aklcr.cz/en/artkey/lkl-202201-0007_alternative-and-augmentative-communication-in-amyotrophic-lateral-sclerosis-patients.php |
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