Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children.
Prenatal screening of pregnant women in Sweden has improved the detection of major congenital heart defects (CHD). The aim was to explore parental experiences and need for information following a prenatal diagnosis of CHD.Semi-structured interviews conducted with six fathers and five mothers to seve...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2015-01-01
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| Series: | PLoS ONE |
| Online Access: | http://europepmc.org/articles/PMC4333226?pdf=render |
| _version_ | 1818613454220558336 |
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| author | Tommy Carlsson Gunnar Bergman Ulla Melander Marttala Barbro Wadensten Elisabet Mattsson |
| author_facet | Tommy Carlsson Gunnar Bergman Ulla Melander Marttala Barbro Wadensten Elisabet Mattsson |
| author_sort | Tommy Carlsson |
| collection | DOAJ |
| description | Prenatal screening of pregnant women in Sweden has improved the detection of major congenital heart defects (CHD). The aim was to explore parental experiences and need for information following a prenatal diagnosis of CHD.Semi-structured interviews conducted with six fathers and five mothers to seven prenatally diagnosed children. Data were analyzed through content analysis.Three themes and 9 categories emerged. Theme 1, Grasping the facts today while reflecting on the future, containing five categories: Difficulties sorting out information when in emotional chaos; Respectful information regarding termination of pregnancy; Early information is crucial; Understanding the facts regarding the anomaly; Preparing for the future. Theme 2, Personal contact with medical specialists who give honest and trustworthy information is valued, containing two categories: Trust in information received from medical specialists and Truth and honesty is valued. Theme 3, An overwhelming amount of information on the Internet, containing two categories: Difficulties in finding relevant information and Easy to focus on cases with a poor outcome when searching the Internet.Early and honest information in line with individual preferences is crucial to support the decisional process regarding whether to continue or terminate the pregnancy. The use of illustrations is recommended, as a complement to oral information, as it increases comprehension and satisfaction with obtained information. Furthermore, the overwhelming amount of information on the Internet calls for compilation of easily accessible and reliable information sources via the Internet. |
| first_indexed | 2024-12-16T16:02:22Z |
| format | Article |
| id | doaj.art-bbdaefdb2dd3437bb40a1cc6df5efb1f |
| institution | Directory Open Access Journal |
| issn | 1932-6203 |
| language | English |
| last_indexed | 2024-12-16T16:02:22Z |
| publishDate | 2015-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj.art-bbdaefdb2dd3437bb40a1cc6df5efb1f2022-12-21T22:25:26ZengPublic Library of Science (PLoS)PLoS ONE1932-62032015-01-01102e011799510.1371/journal.pone.0117995Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children.Tommy CarlssonGunnar BergmanUlla Melander MarttalaBarbro WadenstenElisabet MattssonPrenatal screening of pregnant women in Sweden has improved the detection of major congenital heart defects (CHD). The aim was to explore parental experiences and need for information following a prenatal diagnosis of CHD.Semi-structured interviews conducted with six fathers and five mothers to seven prenatally diagnosed children. Data were analyzed through content analysis.Three themes and 9 categories emerged. Theme 1, Grasping the facts today while reflecting on the future, containing five categories: Difficulties sorting out information when in emotional chaos; Respectful information regarding termination of pregnancy; Early information is crucial; Understanding the facts regarding the anomaly; Preparing for the future. Theme 2, Personal contact with medical specialists who give honest and trustworthy information is valued, containing two categories: Trust in information received from medical specialists and Truth and honesty is valued. Theme 3, An overwhelming amount of information on the Internet, containing two categories: Difficulties in finding relevant information and Easy to focus on cases with a poor outcome when searching the Internet.Early and honest information in line with individual preferences is crucial to support the decisional process regarding whether to continue or terminate the pregnancy. The use of illustrations is recommended, as a complement to oral information, as it increases comprehension and satisfaction with obtained information. Furthermore, the overwhelming amount of information on the Internet calls for compilation of easily accessible and reliable information sources via the Internet.http://europepmc.org/articles/PMC4333226?pdf=render |
| spellingShingle | Tommy Carlsson Gunnar Bergman Ulla Melander Marttala Barbro Wadensten Elisabet Mattsson Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children. PLoS ONE |
| title | Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children. |
| title_full | Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children. |
| title_fullStr | Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children. |
| title_full_unstemmed | Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children. |
| title_short | Information following a diagnosis of congenital heart defect: experiences among parents to prenatally diagnosed children. |
| title_sort | information following a diagnosis of congenital heart defect experiences among parents to prenatally diagnosed children |
| url | http://europepmc.org/articles/PMC4333226?pdf=render |
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