Transition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping review

Abstract Introduction After being diagnosed with dementia, patients need a medical professional to empathetically address their fears and get initial questions answered. This scoping review therefore addresses how patients newly diagnosed with dementia are cared for in the general practitioner (GP)...

Full description

Bibliographic Details
Main Authors: Flora-Marie Hegerath, Chantal Giehl, Michael Pentzek, Horst Christian Vollmar, Ina Carola Otte
Format: Article
Language:English
Published: BMC 2024-01-01
Series:BMC Geriatrics
Subjects:
Online Access:https://doi.org/10.1186/s12877-023-04638-y
_version_ 1797355530489954304
author Flora-Marie Hegerath
Chantal Giehl
Michael Pentzek
Horst Christian Vollmar
Ina Carola Otte
author_facet Flora-Marie Hegerath
Chantal Giehl
Michael Pentzek
Horst Christian Vollmar
Ina Carola Otte
author_sort Flora-Marie Hegerath
collection DOAJ
description Abstract Introduction After being diagnosed with dementia, patients need a medical professional to empathetically address their fears and get initial questions answered. This scoping review therefore addresses how patients newly diagnosed with dementia are cared for in the general practitioner (GP) setting and how the communication between different healthcare professionals and the GP is handled. Methods The scoping review was conducted based on the PRISMA Extension for Scoping Reviews checklist. After developing a search algorithm, literature searches were performed in PubMed, Scopus, Web of Science, Cochrane Library, PsychInfo, GeroLit and Cinahl using defined search criteria, such as a focus on qualitative study designs. After the removal of duplicates, title/abstract and full text screening was carried out. Results Final data extraction included 10 articles out of 12,633 records. Strategies regarding the post-acute care of newly diagnosed patients included providing clarity and comfort to the patients and giving support and information both pre- and post-diagnosis. Care efforts were focused on advanced care planning and deprescribing. Involving people with dementia and their caregivers in further care was seen as crucial to provide them with the support needed. GPs emphasised the importance of listening to concerns, as well as ensuring wishes are respected, and autonomy is maintained. All studies found communication between the GP setting and other healthcare professionals regarding post-acute care to be inadequate. Lack of information sharing, clinical notes and recommendations for the GP setting resulted in inefficient provision of support, as GPs feel limited in their ability to act. Discussion Sharing necessary information with the GP setting could promote patient-centred care for people living with dementia and facilitate appropriate and timely resource allocation and effective healthcare collaboration between the settings, for example, by defining clear care pathways and clarifying roles and expectations.
first_indexed 2024-03-08T14:12:29Z
format Article
id doaj.art-bbe3bfeeb734403abe4b84b6302b937c
institution Directory Open Access Journal
issn 1471-2318
language English
last_indexed 2024-03-08T14:12:29Z
publishDate 2024-01-01
publisher BMC
record_format Article
series BMC Geriatrics
spelling doaj.art-bbe3bfeeb734403abe4b84b6302b937c2024-01-14T12:35:39ZengBMCBMC Geriatrics1471-23182024-01-0124111210.1186/s12877-023-04638-yTransition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping reviewFlora-Marie Hegerath0Chantal Giehl1Michael Pentzek2Horst Christian Vollmar3Ina Carola Otte4Institute of General Practice and Family Medicine (AM RUB), Medical Faculty, Ruhr University BochumInstitute of General Practice and Family Medicine (AM RUB), Medical Faculty, Ruhr University BochumInstitute of Family Practice, Medical Faculty, University of Duisburg-EssenInstitute of General Practice and Family Medicine (AM RUB), Medical Faculty, Ruhr University BochumInstitute of General Practice and Family Medicine (AM RUB), Medical Faculty, Ruhr University BochumAbstract Introduction After being diagnosed with dementia, patients need a medical professional to empathetically address their fears and get initial questions answered. This scoping review therefore addresses how patients newly diagnosed with dementia are cared for in the general practitioner (GP) setting and how the communication between different healthcare professionals and the GP is handled. Methods The scoping review was conducted based on the PRISMA Extension for Scoping Reviews checklist. After developing a search algorithm, literature searches were performed in PubMed, Scopus, Web of Science, Cochrane Library, PsychInfo, GeroLit and Cinahl using defined search criteria, such as a focus on qualitative study designs. After the removal of duplicates, title/abstract and full text screening was carried out. Results Final data extraction included 10 articles out of 12,633 records. Strategies regarding the post-acute care of newly diagnosed patients included providing clarity and comfort to the patients and giving support and information both pre- and post-diagnosis. Care efforts were focused on advanced care planning and deprescribing. Involving people with dementia and their caregivers in further care was seen as crucial to provide them with the support needed. GPs emphasised the importance of listening to concerns, as well as ensuring wishes are respected, and autonomy is maintained. All studies found communication between the GP setting and other healthcare professionals regarding post-acute care to be inadequate. Lack of information sharing, clinical notes and recommendations for the GP setting resulted in inefficient provision of support, as GPs feel limited in their ability to act. Discussion Sharing necessary information with the GP setting could promote patient-centred care for people living with dementia and facilitate appropriate and timely resource allocation and effective healthcare collaboration between the settings, for example, by defining clear care pathways and clarifying roles and expectations.https://doi.org/10.1186/s12877-023-04638-yScoping reviewDementiaAlzheimer’s diseasePrimary careHospitalDischarge management
spellingShingle Flora-Marie Hegerath
Chantal Giehl
Michael Pentzek
Horst Christian Vollmar
Ina Carola Otte
Transition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping review
BMC Geriatrics
Scoping review
Dementia
Alzheimer’s disease
Primary care
Hospital
Discharge management
title Transition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping review
title_full Transition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping review
title_fullStr Transition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping review
title_full_unstemmed Transition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping review
title_short Transition of patients with recently diagnosed Dementia from inpatient to outpatient setting– a scoping review
title_sort transition of patients with recently diagnosed dementia from inpatient to outpatient setting a scoping review
topic Scoping review
Dementia
Alzheimer’s disease
Primary care
Hospital
Discharge management
url https://doi.org/10.1186/s12877-023-04638-y
work_keys_str_mv AT floramariehegerath transitionofpatientswithrecentlydiagnoseddementiafrominpatienttooutpatientsettingascopingreview
AT chantalgiehl transitionofpatientswithrecentlydiagnoseddementiafrominpatienttooutpatientsettingascopingreview
AT michaelpentzek transitionofpatientswithrecentlydiagnoseddementiafrominpatienttooutpatientsettingascopingreview
AT horstchristianvollmar transitionofpatientswithrecentlydiagnoseddementiafrominpatienttooutpatientsettingascopingreview
AT inacarolaotte transitionofpatientswithrecentlydiagnoseddementiafrominpatienttooutpatientsettingascopingreview