I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective

A growing homebound population may be at risk for social isolation and loneliness. Health-related social needs play a contributing role in these conditions. Research shows social isolation and loneliness are drivers of health outcomes. This pilot feasibility study seeks to explore patient-centered i...

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Main Authors: Julia Bedard-Thomas, Christian Gausvik, Jonathan Wessels, Saundra Regan, Keesha Goodnow, Anna Goroncy
Format: Article
Language:English
Published: Advocate Aurora Health 2019-10-01
Series:Journal of Patient-Centered Research and Reviews
Subjects:
Online Access:https://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1715&context=jpcrr
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author Julia Bedard-Thomas
Christian Gausvik
Jonathan Wessels
Saundra Regan
Keesha Goodnow
Anna Goroncy
author_facet Julia Bedard-Thomas
Christian Gausvik
Jonathan Wessels
Saundra Regan
Keesha Goodnow
Anna Goroncy
author_sort Julia Bedard-Thomas
collection DOAJ
description A growing homebound population may be at risk for social isolation and loneliness. Health-related social needs play a contributing role in these conditions. Research shows social isolation and loneliness are drivers of health outcomes. This pilot feasibility study seeks to explore patient-centered insight into perceptions of social isolation and loneliness in a homebound population. Eight participants were recruited from a home-based primary care practice within a family medicine residency program. One 30-minute semi-structured interview was completed in participants’ homes. The interview focused on loneliness and social isolation, using the 6-item De Jong Gerveld loneliness scale. Three qualitative analysts open-coded transcriptions independently. Themes were defined using thematic analysis, then triangulated around a consensus of themes. Patients denied loneliness, but most described social isolation, highlighting the potential need for more targeted documentation and intervention in this arena. The most reported barrier affecting social isolation in our study population was mobility issues. The patient perspective is useful to focus the target of approach. Based on this pilot, additional research with a larger sample size across multiple sites is warranted to further explore homebound patients’ experience of loneliness and social isolation in order to better guide assessment and interventions for these common problems.
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spelling doaj.art-bc04410ced2e46dd997b9f35f36ac1fd2023-02-02T17:05:03ZengAdvocate Aurora HealthJournal of Patient-Centered Research and Reviews2330-06982019-10-016426226610.17294/2330-0698.1715I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient PerspectiveJulia Bedard-Thomas0Christian Gausvik1Jonathan Wessels2Saundra Regan3Keesha Goodnow4Anna Goroncy5University of Cincinnati/The Christ Hospital, Cincinnati, OHUniversity of Cincinnati/The Christ Hospital, Cincinnati, OHUniversity of Cincinnati, Cincinnati, OHUniversity of Cincinnati, Cincinnati, OHUniversity of Cincinnati, Cincinnati, OHUniversity of Cincinnati/The Christ Hospital, Cincinnati, OHA growing homebound population may be at risk for social isolation and loneliness. Health-related social needs play a contributing role in these conditions. Research shows social isolation and loneliness are drivers of health outcomes. This pilot feasibility study seeks to explore patient-centered insight into perceptions of social isolation and loneliness in a homebound population. Eight participants were recruited from a home-based primary care practice within a family medicine residency program. One 30-minute semi-structured interview was completed in participants’ homes. The interview focused on loneliness and social isolation, using the 6-item De Jong Gerveld loneliness scale. Three qualitative analysts open-coded transcriptions independently. Themes were defined using thematic analysis, then triangulated around a consensus of themes. Patients denied loneliness, but most described social isolation, highlighting the potential need for more targeted documentation and intervention in this arena. The most reported barrier affecting social isolation in our study population was mobility issues. The patient perspective is useful to focus the target of approach. Based on this pilot, additional research with a larger sample size across multiple sites is warranted to further explore homebound patients’ experience of loneliness and social isolation in order to better guide assessment and interventions for these common problems.https://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1715&context=jpcrrsocial isolationlonelinesshomebound personsqualitative researchpatient-centered care
spellingShingle Julia Bedard-Thomas
Christian Gausvik
Jonathan Wessels
Saundra Regan
Keesha Goodnow
Anna Goroncy
I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective
Journal of Patient-Centered Research and Reviews
social isolation
loneliness
homebound persons
qualitative research
patient-centered care
title I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective
title_full I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective
title_fullStr I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective
title_full_unstemmed I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective
title_short I Live Alone but Don't Feel Alone: Social Isolation and Loneliness From the Patient Perspective
title_sort i live alone but don t feel alone social isolation and loneliness from the patient perspective
topic social isolation
loneliness
homebound persons
qualitative research
patient-centered care
url https://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1715&context=jpcrr
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