Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in England

Objectives To determine General Practice (GP) recording of carer status and the number of patients self-identifying as carers, while self-completing an automated check-in screen prior to a GP consultation.Design A descriptive cross-sectional study.Setting 11 GPs in the West Midlands, England. Recrui...

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Main Authors: Christian Mallen, Clare Jinks, Ram Bajpai, Toby Helliwell, Sarah Lawton, Sara Muller, Zarish Hussain, Cath Holmstrom
Format: Article
Language:English
Published: BMJ Publishing Group 2024-04-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/14/4/e083816.full
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author Christian Mallen
Clare Jinks
Ram Bajpai
Toby Helliwell
Sarah Lawton
Sara Muller
Zarish Hussain
Cath Holmstrom
author_facet Christian Mallen
Clare Jinks
Ram Bajpai
Toby Helliwell
Sarah Lawton
Sara Muller
Zarish Hussain
Cath Holmstrom
author_sort Christian Mallen
collection DOAJ
description Objectives To determine General Practice (GP) recording of carer status and the number of patients self-identifying as carers, while self-completing an automated check-in screen prior to a GP consultation.Design A descriptive cross-sectional study.Setting 11 GPs in the West Midlands, England. Recruitment commenced in September 2019 and concluded in January 2020.Participants All patients aged 10 years and over, self-completing an automated check-in screen, were invited to participate during a 3-week recruitment period.Primary and secondary outcome measures The current coding of carers at participating GPs and the number of patients identifying themselves as a carer were primary outcome measures. Secondary outcome measures included the number of responses attained from automated check-in screens as a research data collection tool and whether carers felt supported in their carer role.Results 80.3% (n=9301) of patients self-completing an automated check-in screen participated in QUantifying the identification Of carers in general practice (STATUS QUO Study) (62.6% (n=5822) female, mean age 52.9 years (10–98 years, SD=20.3)). Prior to recruitment, the clinical code used to denote a carer was identified in 2.7% (n=2739) of medical records across the participating GPs.10.1% (n=936) of participants identified themselves as a carer. They reported feeling supported with their own health and social care needs: always 19.3% (n=150), a lot of the time 13.2% (n=102), some of the time 40.8% (n=317) and never 26.7% (n=207).Conclusions Many more participants self-identified as a carer than were recorded on participating GP lists. Improvements in the recording of the population’s caring status need to be actioned, to ensure that supportive implementation strategies for carers are effectively received. Using automated check-in facilities for research continues to provide high participation rates.
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spelling doaj.art-bc1c4686a7894da3b89ce1633c6782b62024-04-16T17:25:10ZengBMJ Publishing GroupBMJ Open2044-60552024-04-0114410.1136/bmjopen-2023-083816Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in EnglandChristian Mallen0Clare Jinks1Ram Bajpai2Toby Helliwell3Sarah Lawton4Sara Muller5Zarish Hussain6Cath Holmstrom74 Keele School of Medicine, Keele University, Newcastle-under-Lyme, UKPrimary Care Centre Versus Arthritis, School of Medicine, Keele University, Keele, UK1 School of Medicine, Keele University, Keele, UK3 Midlands Partnership NHS Foundation Trust, Stafford, Staffordshire, UKClinical Trials Unit, Keele University, Keele, Staffordshire, UK1 School of Medicine, Keele University, Keele, UK4 Medical University of Bahrain, Adliya, Bahrain2 School of Medicine, Keele University, Keele, Staffordshire, UKObjectives To determine General Practice (GP) recording of carer status and the number of patients self-identifying as carers, while self-completing an automated check-in screen prior to a GP consultation.Design A descriptive cross-sectional study.Setting 11 GPs in the West Midlands, England. Recruitment commenced in September 2019 and concluded in January 2020.Participants All patients aged 10 years and over, self-completing an automated check-in screen, were invited to participate during a 3-week recruitment period.Primary and secondary outcome measures The current coding of carers at participating GPs and the number of patients identifying themselves as a carer were primary outcome measures. Secondary outcome measures included the number of responses attained from automated check-in screens as a research data collection tool and whether carers felt supported in their carer role.Results 80.3% (n=9301) of patients self-completing an automated check-in screen participated in QUantifying the identification Of carers in general practice (STATUS QUO Study) (62.6% (n=5822) female, mean age 52.9 years (10–98 years, SD=20.3)). Prior to recruitment, the clinical code used to denote a carer was identified in 2.7% (n=2739) of medical records across the participating GPs.10.1% (n=936) of participants identified themselves as a carer. They reported feeling supported with their own health and social care needs: always 19.3% (n=150), a lot of the time 13.2% (n=102), some of the time 40.8% (n=317) and never 26.7% (n=207).Conclusions Many more participants self-identified as a carer than were recorded on participating GP lists. Improvements in the recording of the population’s caring status need to be actioned, to ensure that supportive implementation strategies for carers are effectively received. Using automated check-in facilities for research continues to provide high participation rates.https://bmjopen.bmj.com/content/14/4/e083816.full
spellingShingle Christian Mallen
Clare Jinks
Ram Bajpai
Toby Helliwell
Sarah Lawton
Sara Muller
Zarish Hussain
Cath Holmstrom
Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in England
BMJ Open
title Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in England
title_full Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in England
title_fullStr Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in England
title_full_unstemmed Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in England
title_short Identifying carers in general practice (STATUS QUO): a multicentre, cross-sectional study in England
title_sort identifying carers in general practice status quo a multicentre cross sectional study in england
url https://bmjopen.bmj.com/content/14/4/e083816.full
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