Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency
Background: The primary aim of treating congenital adrenal hyperplasia (CAH) due to 21 hydroxylase deficiency is to replace the deficient glucocorticoids and mineralocorticoids, to minimize the excess androgen production and to facilitate normal growth. Children with CAH require daily treatment life...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Wolters Kluwer Medknow Publications
2020-01-01
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| Series: | Journal of Family Medicine and Primary Care |
| Subjects: | |
| Online Access: | http://www.jfmpc.com/article.asp?issn=2249-4863;year=2020;volume=9;issue=6;spage=2814;epage=2817;aulast= |
| _version_ | 1828471493664702464 |
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| author | Vasantha Singarayan Anita David Vageesh Ayyar Saji James |
| author_facet | Vasantha Singarayan Anita David Vageesh Ayyar Saji James |
| author_sort | Vasantha Singarayan |
| collection | DOAJ |
| description | Background: The primary aim of treating congenital adrenal hyperplasia (CAH) due to 21 hydroxylase deficiency is to replace the deficient glucocorticoids and mineralocorticoids, to minimize the excess androgen production and to facilitate normal growth. Children with CAH require daily treatment lifelong and increased dosage plan during acute stress, in order to obtain the benefit of optimal outcome from the ongoing treatment schedule. This emphasizes the need for the parents of affected children to be empowered with adequate knowledge regarding such lifesaving therapy. Aims & Objectives: This study was aimed to assess their knowledge regarding corticosteroid therapy. Materials and methods. Caretakers of children with CAH were recruited by using purposive sampling technique. Data was collected by using structured interview technique. Results: It was observed that only 10% of study group had adequate knowledge about therapy and the majority of them were from rural areas, lacking in awareness of essential steps of management. Conclusion: It was concluded that these caretakers need to be given appropriately planned education regarding corticosteroids, drug actions, and the need for enhanced steroid dosage during stress situations. They should also be given relevant instructional materials to read for improving their knowledge about their child's disorder. |
| first_indexed | 2024-12-11T05:13:36Z |
| format | Article |
| id | doaj.art-bc25081305344d32a2beccd7c68803ee |
| institution | Directory Open Access Journal |
| issn | 2249-4863 |
| language | English |
| last_indexed | 2024-12-11T05:13:36Z |
| publishDate | 2020-01-01 |
| publisher | Wolters Kluwer Medknow Publications |
| record_format | Article |
| series | Journal of Family Medicine and Primary Care |
| spelling | doaj.art-bc25081305344d32a2beccd7c68803ee2022-12-22T01:19:52ZengWolters Kluwer Medknow PublicationsJournal of Family Medicine and Primary Care2249-48632020-01-01962814281710.4103/jfmpc.jfmpc_131_20Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiencyVasantha SingarayanAnita DavidVageesh AyyarSaji JamesBackground: The primary aim of treating congenital adrenal hyperplasia (CAH) due to 21 hydroxylase deficiency is to replace the deficient glucocorticoids and mineralocorticoids, to minimize the excess androgen production and to facilitate normal growth. Children with CAH require daily treatment lifelong and increased dosage plan during acute stress, in order to obtain the benefit of optimal outcome from the ongoing treatment schedule. This emphasizes the need for the parents of affected children to be empowered with adequate knowledge regarding such lifesaving therapy. Aims & Objectives: This study was aimed to assess their knowledge regarding corticosteroid therapy. Materials and methods. Caretakers of children with CAH were recruited by using purposive sampling technique. Data was collected by using structured interview technique. Results: It was observed that only 10% of study group had adequate knowledge about therapy and the majority of them were from rural areas, lacking in awareness of essential steps of management. Conclusion: It was concluded that these caretakers need to be given appropriately planned education regarding corticosteroids, drug actions, and the need for enhanced steroid dosage during stress situations. They should also be given relevant instructional materials to read for improving their knowledge about their child's disorder.http://www.jfmpc.com/article.asp?issn=2249-4863;year=2020;volume=9;issue=6;spage=2814;epage=2817;aulast=21 hydroxylase deficiencycongenital adrenal hyperplasiaparentingsteroid therapy |
| spellingShingle | Vasantha Singarayan Anita David Vageesh Ayyar Saji James Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency Journal of Family Medicine and Primary Care 21 hydroxylase deficiency congenital adrenal hyperplasia parenting steroid therapy |
| title | Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency |
| title_full | Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency |
| title_fullStr | Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency |
| title_full_unstemmed | Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency |
| title_short | Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency |
| title_sort | study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia 21 hydroxylase deficiency |
| topic | 21 hydroxylase deficiency congenital adrenal hyperplasia parenting steroid therapy |
| url | http://www.jfmpc.com/article.asp?issn=2249-4863;year=2020;volume=9;issue=6;spage=2814;epage=2817;aulast= |
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