Patient and family engagement in the development of core outcome sets for two rare chronic diseases in children
Plain English summary Core outcome sets (COS) are lists of outcomes agreed upon by a group of people to be measured and reported in studies about certain diseases and populations. Core outcomes are meant to represent what is useful to study from the perspectives of health care providers, researchers...
Main Authors: | Shelley M. Vanderhout, Maureen Smith, Nicole Pallone, Kylie Tingley, Michael Pugliese, Pranesh Chakraborty, Sylvia Stockler, Martin Offringa, Nancy Butcher, Stuart G. Nicholls, Beth K. Potter |
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Format: | Article |
Language: | English |
Published: |
BMC
2021-09-01
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Series: | Research Involvement and Engagement |
Subjects: | |
Online Access: | https://doi.org/10.1186/s40900-021-00304-y |
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