Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life
To support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different c...
| Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2019-04-01
|
| Series: | Gerontology and Geriatric Medicine |
| Online Access: | https://doi.org/10.1177/2333721419842672 |
| _version_ | 1818497102173437952 |
|---|---|
| author | David Edvardsson PhD Rebecca Baxter MSN Laura Corneliusson MSN Ruth A. Anderson PhD Anna Beeber PhD Paulo Villas Boas PhD Kirsten Corazzini PhD Adam L. Gordon PhD Barbara Hanratty PhD Alessandro Jacinto PhD Michael Lepore PhD Angela Y.M. Leung PhD Katherine S. McGilton PhD Julienne Meyer PhD Jos M.G.A. Schols PhD Lindsay Schwartz PhD Victoria Shepherd MA Anders Skoldunger PhD Roy Thompson MSN Mark Toles PhD Patrick Wachholz PhD Jing Wang MSN Bei Wu PhD Franziska Zúñiga PhD |
| author_facet | David Edvardsson PhD Rebecca Baxter MSN Laura Corneliusson MSN Ruth A. Anderson PhD Anna Beeber PhD Paulo Villas Boas PhD Kirsten Corazzini PhD Adam L. Gordon PhD Barbara Hanratty PhD Alessandro Jacinto PhD Michael Lepore PhD Angela Y.M. Leung PhD Katherine S. McGilton PhD Julienne Meyer PhD Jos M.G.A. Schols PhD Lindsay Schwartz PhD Victoria Shepherd MA Anders Skoldunger PhD Roy Thompson MSN Mark Toles PhD Patrick Wachholz PhD Jing Wang MSN Bei Wu PhD Franziska Zúñiga PhD |
| author_sort | David Edvardsson PhD |
| collection | DOAJ |
| description | To support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models. |
| first_indexed | 2024-12-10T18:41:10Z |
| format | Article |
| id | doaj.art-bc872d259feb4a17b158fea96f3f5c32 |
| institution | Directory Open Access Journal |
| issn | 2333-7214 |
| language | English |
| last_indexed | 2024-12-10T18:41:10Z |
| publishDate | 2019-04-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Gerontology and Geriatric Medicine |
| spelling | doaj.art-bc872d259feb4a17b158fea96f3f5c322022-12-22T01:37:39ZengSAGE PublishingGerontology and Geriatric Medicine2333-72142019-04-01510.1177/2333721419842672Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of LifeDavid Edvardsson PhD0Rebecca Baxter MSN1Laura Corneliusson MSN2Ruth A. Anderson PhD3Anna Beeber PhD4Paulo Villas Boas PhD5Kirsten Corazzini PhD6Adam L. Gordon PhD7Barbara Hanratty PhD8Alessandro Jacinto PhD9Michael Lepore PhD10Angela Y.M. Leung PhD11Katherine S. McGilton PhD12Julienne Meyer PhD13Jos M.G.A. Schols PhD14Lindsay Schwartz PhD15Victoria Shepherd MA16Anders Skoldunger PhD17Roy Thompson MSN18Mark Toles PhD19Patrick Wachholz PhD20Jing Wang MSN21Bei Wu PhD22Franziska Zúñiga PhD23La Trobe University, Victoria, AustraliaUmeå University, Umeå, SwedenUmeå University, Umeå, SwedenThe University of North Carolina at Chapel Hill, NC, USAThe University of North Carolina at Chapel Hill, NC, USASão Paulo State University (UNESP), BrazilDuke University, Durham, NC, USAUniversity of Nottingham, Nottingham, UKNewcastle University, Newcastle, UKSão Paulo State University (UNESP), BrazilRTI International, Washington, DC, USAThe Hong Kong Polytechnic University, Kowloon, Hong KongToronto Rehabilitation Institute-UHN, Ontario, CanadaCity, University of London, UKMaastricht University, Maastricht, The NetherlandsAmerican Health Care Association/National Center for Assisted Living, Washington, DC, USACardiff University, Cardiff, UKKarolinska Institutet, Stockholm, SwedenDuke University, Durham, NC, USAThe University of North Carolina at Chapel Hill, NC, USASão Paulo State University (UNESP), BrazilDuke University, Durham, NC, USANew York University, New York City, USAUniversity of Basel, Basel, SwitzerlandTo support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models.https://doi.org/10.1177/2333721419842672 |
| spellingShingle | David Edvardsson PhD Rebecca Baxter MSN Laura Corneliusson MSN Ruth A. Anderson PhD Anna Beeber PhD Paulo Villas Boas PhD Kirsten Corazzini PhD Adam L. Gordon PhD Barbara Hanratty PhD Alessandro Jacinto PhD Michael Lepore PhD Angela Y.M. Leung PhD Katherine S. McGilton PhD Julienne Meyer PhD Jos M.G.A. Schols PhD Lindsay Schwartz PhD Victoria Shepherd MA Anders Skoldunger PhD Roy Thompson MSN Mark Toles PhD Patrick Wachholz PhD Jing Wang MSN Bei Wu PhD Franziska Zúñiga PhD Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life Gerontology and Geriatric Medicine |
| title | Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life |
| title_full | Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life |
| title_fullStr | Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life |
| title_full_unstemmed | Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life |
| title_short | Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life |
| title_sort | advancing long term care science through using common data elements candidate measures for care outcomes of personhood well being and quality of life |
| url | https://doi.org/10.1177/2333721419842672 |
| work_keys_str_mv | AT davidedvardssonphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT rebeccabaxtermsn advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT lauracorneliussonmsn advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT ruthaandersonphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT annabeeberphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT paulovillasboasphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT kirstencorazziniphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT adamlgordonphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT barbarahanrattyphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT alessandrojacintophd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT michaelleporephd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT angelaymleungphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT katherinesmcgiltonphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT juliennemeyerphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT josmgascholsphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT lindsayschwartzphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT victoriashepherdma advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT andersskoldungerphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT roythompsonmsn advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT marktolesphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT patrickwachholzphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT jingwangmsn advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT beiwuphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife AT franziskazunigaphd advancinglongtermcaresciencethroughusingcommondataelementscandidatemeasuresforcareoutcomesofpersonhoodwellbeingandqualityoflife |