A systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research

Abstract Background The aim was to review the literature to identify the most effective methods for creating a representative sample of refugee and asylum seeker groups living in the community to participate in health and mental health survey research. Methods A systematic search of academic and gre...

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Main Authors: Joanne C. Enticott, Frances Shawyer, Shiva Vasi, Kimberly Buck, I-Hao Cheng, Grant Russell, Ritsuko Kakuma, Harry Minas, Graham Meadows
Format: Article
Language:English
Published: BMC 2017-03-01
Series:BMC Medical Research Methodology
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12874-017-0312-x
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author Joanne C. Enticott
Frances Shawyer
Shiva Vasi
Kimberly Buck
I-Hao Cheng
Grant Russell
Ritsuko Kakuma
Harry Minas
Graham Meadows
author_facet Joanne C. Enticott
Frances Shawyer
Shiva Vasi
Kimberly Buck
I-Hao Cheng
Grant Russell
Ritsuko Kakuma
Harry Minas
Graham Meadows
author_sort Joanne C. Enticott
collection DOAJ
description Abstract Background The aim was to review the literature to identify the most effective methods for creating a representative sample of refugee and asylum seeker groups living in the community to participate in health and mental health survey research. Methods A systematic search of academic and grey literature was conducted for relevant literature with ‘hidden’ groups published between January 1995 and January 2016. The main search used Medline, PsycINFO, EMBASE, CINAHL and SCOPUS electronic databases. Hidden groups were defined as refugees, asylum seekers, stateless persons or hard/difficult to reach populations. A supplementary grey literature search was conducted. Identified articles were rated according to a created graded system of ‘level of evidence for a community representative sample’ based on key study factors that indicated possible sources of selection bias. Articles were included if they were assessed as having medium or higher evidence for a representative sample. All full-text papers that met the eligibility criteria were examined in detail and relevant data extracted. Results The searches identified a total of 20 publications for inclusion: 16 peer-reviewed publications and four highly relevant reports. Seventeen studies had sampled refugee and asylum seekers and three other hidden groups. The main search identified 12 (60.0%) and the grey search identified another eight (40.0%) articles. All 20 described sampling techniques for accessing hidden groups for participation in health-related research. Key design considerations were: an a priori aim to recruit a representative sample; a reliable sampling frame; recording of response rates; implementation of long recruitment periods; using multiple non-probability sampling methods; and, if possible, including a probability sampling component. Online social networking sites were used by one study. Engagement with the refugee and asylum seeker group was universally endorsed in the literature as necessary and a variety of additional efforts to do this were reported. Conclusions The strategies for increasing the likelihood of a representative sample of this hidden group were identified and will assist researchers when doing future research with refugee groups. These findings encourage more rigorous reporting of future studies so that the representativeness of samples of these groups in research can be more readily assessed.
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spelling doaj.art-bc99c89b219946919d167ee1246139452022-12-21T19:23:59ZengBMCBMC Medical Research Methodology1471-22882017-03-0117111610.1186/s12874-017-0312-xA systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health researchJoanne C. Enticott0Frances Shawyer1Shiva Vasi2Kimberly Buck3I-Hao Cheng4Grant Russell5Ritsuko Kakuma6Harry Minas7Graham Meadows8Department of Psychiatry, Southern Synergy, Monash UniversityDepartment of Psychiatry, Southern Synergy, Monash UniversitySouthern Academic Primary Care Research Unit, School of Primary Health Care, Monash UniversityDepartment of Psychiatry, Southern Synergy, Monash UniversitySouthern Academic Primary Care Research Unit, School of Primary Health Care, Monash UniversitySouthern Academic Primary Care Research Unit, School of Primary Health Care, Monash UniversityGlobal and Cultural Mental Health Unit, Centre for Mental Health, Melbourne School of Global and Population Health, The University of MelbourneGlobal and Cultural Mental Health Unit, Centre for Mental Health, Melbourne School of Global and Population Health, The University of MelbourneDepartment of Psychiatry, Southern Synergy, Monash UniversityAbstract Background The aim was to review the literature to identify the most effective methods for creating a representative sample of refugee and asylum seeker groups living in the community to participate in health and mental health survey research. Methods A systematic search of academic and grey literature was conducted for relevant literature with ‘hidden’ groups published between January 1995 and January 2016. The main search used Medline, PsycINFO, EMBASE, CINAHL and SCOPUS electronic databases. Hidden groups were defined as refugees, asylum seekers, stateless persons or hard/difficult to reach populations. A supplementary grey literature search was conducted. Identified articles were rated according to a created graded system of ‘level of evidence for a community representative sample’ based on key study factors that indicated possible sources of selection bias. Articles were included if they were assessed as having medium or higher evidence for a representative sample. All full-text papers that met the eligibility criteria were examined in detail and relevant data extracted. Results The searches identified a total of 20 publications for inclusion: 16 peer-reviewed publications and four highly relevant reports. Seventeen studies had sampled refugee and asylum seekers and three other hidden groups. The main search identified 12 (60.0%) and the grey search identified another eight (40.0%) articles. All 20 described sampling techniques for accessing hidden groups for participation in health-related research. Key design considerations were: an a priori aim to recruit a representative sample; a reliable sampling frame; recording of response rates; implementation of long recruitment periods; using multiple non-probability sampling methods; and, if possible, including a probability sampling component. Online social networking sites were used by one study. Engagement with the refugee and asylum seeker group was universally endorsed in the literature as necessary and a variety of additional efforts to do this were reported. Conclusions The strategies for increasing the likelihood of a representative sample of this hidden group were identified and will assist researchers when doing future research with refugee groups. These findings encourage more rigorous reporting of future studies so that the representativeness of samples of these groups in research can be more readily assessed.http://link.springer.com/article/10.1186/s12874-017-0312-xRefugeeAsylum seekerStateless personMental disordersHard-to-reachHidden population
spellingShingle Joanne C. Enticott
Frances Shawyer
Shiva Vasi
Kimberly Buck
I-Hao Cheng
Grant Russell
Ritsuko Kakuma
Harry Minas
Graham Meadows
A systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research
BMC Medical Research Methodology
Refugee
Asylum seeker
Stateless person
Mental disorders
Hard-to-reach
Hidden population
title A systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research
title_full A systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research
title_fullStr A systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research
title_full_unstemmed A systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research
title_short A systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research
title_sort systematic review of studies with a representative sample of refugees and asylum seekers living in the community for participation in mental health research
topic Refugee
Asylum seeker
Stateless person
Mental disorders
Hard-to-reach
Hidden population
url http://link.springer.com/article/10.1186/s12874-017-0312-x
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