Being well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to home

Abstract Background As the average length of hospital stay decreases, more and more older patients will need support during and after the hospital transition, which will mainly be provided by their relatives. Studies highlight the enormous effect such a transition has on the lives of older patients...

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Main Authors: Aline Dragosits, Bente Martinsen, Ann Hemingway, Annelise Norlyk
Format: Article
Language:English
Published: BMC 2023-02-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-023-09039-w
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author Aline Dragosits
Bente Martinsen
Ann Hemingway
Annelise Norlyk
author_facet Aline Dragosits
Bente Martinsen
Ann Hemingway
Annelise Norlyk
author_sort Aline Dragosits
collection DOAJ
description Abstract Background As the average length of hospital stay decreases, more and more older patients will need support during and after the hospital transition, which will mainly be provided by their relatives. Studies highlight the enormous effect such a transition has on the lives of older patients and their relatives. However, research is lacking regarding in-depth understanding of the complexities and the notions of suffering and well-being the older patients and their relatives describe in the transition from hospital to home. Therefore, this study aims to examine the description of suffering and well-being on a deeper, existential level by drawing on existing phenomenological research. Methods In order to synthesize and reinterpret primary findings, we used the seven-step method for meta-ethnography. Following specific inclusion criteria and focusing on empirical phenomenological studies about older patients and their relatives experiences of hospital to home transitions, a systematic literature search was conducted. Data from ten studies have been analyzed. Results Our analysis identified three intertwined themes: i) ‘Being excluded vs. being included in the transition process’, ii) ‘Being a team: a call for support and a call to support’ and iii) ‘Riding an emotional rollercoaster’. The last theme was unfolded by the two subthemes ‘Taking on the new role as a caregiver: oscillating between struggling and accepting’ and ‘Getting back to normal: oscillating between uncertainty and hope’. Within those themes, older patients and their relatives described rather similar than contradictory aspects. Conclusions This study offers insights into the tension between existential suffering and well-being described by the older patients and their relatives during the transition from hospital to home. Especially, the description of well-being in all its nuances which, if achieved, enables older patients and their relatives to identify with the situation and to move forward, this process can then be supported by the health care professionals. However, there is still lack of knowledge with regards to a deeper understanding of existential well-being in this process. Given the increasing tendency towards early hospital discharges, the findings underpin the need to further investigate the experiences of well-being in this process.
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spelling doaj.art-bd276d2412314561b3f31bf7786754612023-02-12T12:07:36ZengBMCBMC Health Services Research1472-69632023-02-0123111310.1186/s12913-023-09039-wBeing well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to homeAline Dragosits0Bente Martinsen1Ann Hemingway2Annelise Norlyk3Department of Public Health, Faculty of Health, Aarhus UniversityDepartment of Public Health, Faculty of Health, Aarhus UniversityDepartment of Medical Science & Public Health, Bournemouth UniversityDepartment of Public Health, Faculty of Health, Aarhus UniversityAbstract Background As the average length of hospital stay decreases, more and more older patients will need support during and after the hospital transition, which will mainly be provided by their relatives. Studies highlight the enormous effect such a transition has on the lives of older patients and their relatives. However, research is lacking regarding in-depth understanding of the complexities and the notions of suffering and well-being the older patients and their relatives describe in the transition from hospital to home. Therefore, this study aims to examine the description of suffering and well-being on a deeper, existential level by drawing on existing phenomenological research. Methods In order to synthesize and reinterpret primary findings, we used the seven-step method for meta-ethnography. Following specific inclusion criteria and focusing on empirical phenomenological studies about older patients and their relatives experiences of hospital to home transitions, a systematic literature search was conducted. Data from ten studies have been analyzed. Results Our analysis identified three intertwined themes: i) ‘Being excluded vs. being included in the transition process’, ii) ‘Being a team: a call for support and a call to support’ and iii) ‘Riding an emotional rollercoaster’. The last theme was unfolded by the two subthemes ‘Taking on the new role as a caregiver: oscillating between struggling and accepting’ and ‘Getting back to normal: oscillating between uncertainty and hope’. Within those themes, older patients and their relatives described rather similar than contradictory aspects. Conclusions This study offers insights into the tension between existential suffering and well-being described by the older patients and their relatives during the transition from hospital to home. Especially, the description of well-being in all its nuances which, if achieved, enables older patients and their relatives to identify with the situation and to move forward, this process can then be supported by the health care professionals. However, there is still lack of knowledge with regards to a deeper understanding of existential well-being in this process. Given the increasing tendency towards early hospital discharges, the findings underpin the need to further investigate the experiences of well-being in this process.https://doi.org/10.1186/s12913-023-09039-wOlder patientsRelativesSufferingWell-beingTransitionMeta-ethnography
spellingShingle Aline Dragosits
Bente Martinsen
Ann Hemingway
Annelise Norlyk
Being well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to home
BMC Health Services Research
Older patients
Relatives
Suffering
Well-being
Transition
Meta-ethnography
title Being well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to home
title_full Being well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to home
title_fullStr Being well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to home
title_full_unstemmed Being well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to home
title_short Being well? A meta-ethnography of older patients and their relatives’ descriptions of suffering and well-being in the transition from hospital to home
title_sort being well a meta ethnography of older patients and their relatives descriptions of suffering and well being in the transition from hospital to home
topic Older patients
Relatives
Suffering
Well-being
Transition
Meta-ethnography
url https://doi.org/10.1186/s12913-023-09039-w
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