Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER Study
Parents are often appointed a passive role in the care for their hospitalised child. In the family-integrated care (FICare) model, parental involvement in neonatal care is emulated. Parental participation in medical rounds, or family-centred rounds (FCR), forms a key element. A paucity remains of ra...
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| Format: | Article |
| Language: | English |
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MDPI AG
2023-08-01
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| Series: | Children |
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| Online Access: | https://www.mdpi.com/2227-9067/10/9/1482 |
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| author | Hannah Hoeben Milène T. Alferink Anne A. M. W. van Kempen Johannes B. van Goudoever Nicole R. van Veenendaal Sophie R. D. van der Schoor on behalf of the neoPARTNER Study Group |
| author_facet | Hannah Hoeben Milène T. Alferink Anne A. M. W. van Kempen Johannes B. van Goudoever Nicole R. van Veenendaal Sophie R. D. van der Schoor on behalf of the neoPARTNER Study Group |
| author_sort | Hannah Hoeben |
| collection | DOAJ |
| description | Parents are often appointed a passive role in the care for their hospitalised child. In the family-integrated care (FICare) model, parental involvement in neonatal care is emulated. Parental participation in medical rounds, or family-centred rounds (FCR), forms a key element. A paucity remains of randomised trials assessing the outcomes of FCR (embedded in FICare) in families and neonates, and outcomes on an organisational level are relatively unexplored. Likewise, biological mechanisms through which a potential effect may be exerted are lacking robust evidence. Ten level two Dutch neonatal wards are involved in this stepped-wedge cluster-randomised trial FCR (embedded in FICare) by one common implementation strategy. Parents of infants hospitalised for at least 7 days are eligible for inclusion. The primary outcome is parental stress (PSS:NICU) at discharge. Secondary outcomes include parental, neonatal, healthcare professional and organisational outcomes. Biomarkers of stress will be analysed in parent–infant dyads. With a practical approach and broad outcome set, this study aims to obtain evidence on the possible (mechanistic) effect of FCR (as part of FICare) on parents, infants, healthcare professionals and organisations. The practical approach provides (experiences of) FICare material adjusted to the Dutch setting, available for other hospitals after the study. |
| first_indexed | 2024-03-10T22:55:34Z |
| format | Article |
| id | doaj.art-bdaf34d773004ff59f3b1f8278bc4b82 |
| institution | Directory Open Access Journal |
| issn | 2227-9067 |
| language | English |
| last_indexed | 2024-03-10T22:55:34Z |
| publishDate | 2023-08-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Children |
| spelling | doaj.art-bdaf34d773004ff59f3b1f8278bc4b822023-11-19T10:03:06ZengMDPI AGChildren2227-90672023-08-01109148210.3390/children10091482Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER StudyHannah Hoeben0Milène T. Alferink1Anne A. M. W. van Kempen2Johannes B. van Goudoever3Nicole R. van Veenendaal4Sophie R. D. van der Schoor5on behalf of the neoPARTNER Study GroupDepartment of Paediatrics/Neonatology, OLVG, 1091 AC Amsterdam, The NetherlandsDepartment of Paediatrics/Neonatology, OLVG, 1091 AC Amsterdam, The NetherlandsDepartment of Paediatrics/Neonatology, OLVG, 1091 AC Amsterdam, The NetherlandsDepartment of Paediatrics, Emma Children’s Hospital, Amsterdam UMC, Vrije Universiteit Amsterdam, 1105 AZ Amsterdam, The NetherlandsDepartment of Paediatrics/Neonatology, OLVG, 1091 AC Amsterdam, The NetherlandsDepartment of Paediatrics/Neonatology, OLVG, 1091 AC Amsterdam, The NetherlandsParents are often appointed a passive role in the care for their hospitalised child. In the family-integrated care (FICare) model, parental involvement in neonatal care is emulated. Parental participation in medical rounds, or family-centred rounds (FCR), forms a key element. A paucity remains of randomised trials assessing the outcomes of FCR (embedded in FICare) in families and neonates, and outcomes on an organisational level are relatively unexplored. Likewise, biological mechanisms through which a potential effect may be exerted are lacking robust evidence. Ten level two Dutch neonatal wards are involved in this stepped-wedge cluster-randomised trial FCR (embedded in FICare) by one common implementation strategy. Parents of infants hospitalised for at least 7 days are eligible for inclusion. The primary outcome is parental stress (PSS:NICU) at discharge. Secondary outcomes include parental, neonatal, healthcare professional and organisational outcomes. Biomarkers of stress will be analysed in parent–infant dyads. With a practical approach and broad outcome set, this study aims to obtain evidence on the possible (mechanistic) effect of FCR (as part of FICare) on parents, infants, healthcare professionals and organisations. The practical approach provides (experiences of) FICare material adjusted to the Dutch setting, available for other hospitals after the study.https://www.mdpi.com/2227-9067/10/9/1482family-integrated carefamily-centred roundsneonatologyparental participationparental stressshared decision-making |
| spellingShingle | Hannah Hoeben Milène T. Alferink Anne A. M. W. van Kempen Johannes B. van Goudoever Nicole R. van Veenendaal Sophie R. D. van der Schoor on behalf of the neoPARTNER Study Group Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER Study Children family-integrated care family-centred rounds neonatology parental participation parental stress shared decision-making |
| title | Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER Study |
| title_full | Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER Study |
| title_fullStr | Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER Study |
| title_full_unstemmed | Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER Study |
| title_short | Collaborating to Improve Neonatal Care: ParentAl Participation on the NEonatal Ward—Study Protocol of the neoPARTNER Study |
| title_sort | collaborating to improve neonatal care parental participation on the neonatal ward study protocol of the neopartner study |
| topic | family-integrated care family-centred rounds neonatology parental participation parental stress shared decision-making |
| url | https://www.mdpi.com/2227-9067/10/9/1482 |
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