The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic
Background The global COVID-19 pandemic has shown the vulnerability of some population groups, including persons with intellectual and developmental disabilities (IDD). Aim The present paper will provide more clarity and understanding of the experiences of family members of persons with IDD housed i...
| Main Authors: | , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | International Journal of Qualitative Studies on Health & Well-Being |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/17482631.2023.2288100 |
| _version_ | 1797401375870550016 |
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| author | Montserrat Puig Llobet Montserrat Roca Roger Teresa Nicolàs Silva Gemma Pérez Gimenez Zaida Agüera Maria-Teresa Lluch Canut Juan Francisco Roldan Merino Carmen Moreno Arroyo Marta Prats Arimon Maria Aurelia Sánchez Ortega Xavier Domènech Mascaró Miguel Angel Hidalgo Blanco Antonio Moreno Poyato |
| author_facet | Montserrat Puig Llobet Montserrat Roca Roger Teresa Nicolàs Silva Gemma Pérez Gimenez Zaida Agüera Maria-Teresa Lluch Canut Juan Francisco Roldan Merino Carmen Moreno Arroyo Marta Prats Arimon Maria Aurelia Sánchez Ortega Xavier Domènech Mascaró Miguel Angel Hidalgo Blanco Antonio Moreno Poyato |
| author_sort | Montserrat Puig Llobet |
| collection | DOAJ |
| description | Background The global COVID-19 pandemic has shown the vulnerability of some population groups, including persons with intellectual and developmental disabilities (IDD). Aim The present paper will provide more clarity and understanding of the experiences of family members of persons with IDD housed in residential facilities in Catalonia within the period of maximum restrictions during the COVID-19 pandemic. Methods and procedures Semi-structured interviews were conducted using an interpretive phenomenological qualitative approach. Study participants consisted of 14 relatives of IDD individuals who were institutionalized in residence facilities or homes. The guiding questions emerged from group discussions with relatives of those with IDD who did not participate in the subsequent interviews. Drawing from this group, the factors that were identified to have had the greatest impact on their lives were later used to guide the interviews. Data collection was carried out in face-to-face individual interviews that were recorded together with the observations of two researchers between February and October 2022. Results Our analysis identified 4 main themes that developed into additional factors: the decision to stay at home or in the residence, fear, illness, and protocol. Individuals with IDD lost their daily routines, suffered from social isolation, and did not understand the situation. Conclusion The results of this study allow for a better understanding of the experiences of families of persons with IDD in residential centres during the lockdown by identifying their needs and how to better support them in the future. Outcomes and results Knowledge and understanding of these events should allow for better management of similar situations in the future. |
| first_indexed | 2024-03-09T02:09:07Z |
| format | Article |
| id | doaj.art-bdd4ad39691b4f2fa1a13bd586909abd |
| institution | Directory Open Access Journal |
| issn | 1748-2623 1748-2631 |
| language | English |
| last_indexed | 2024-03-09T02:09:07Z |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Qualitative Studies on Health & Well-Being |
| spelling | doaj.art-bdd4ad39691b4f2fa1a13bd586909abd2023-12-07T15:12:03ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312024-12-0119110.1080/17482631.2023.22881002288100The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemicMontserrat Puig Llobet0Montserrat Roca Roger1Teresa Nicolàs Silva2Gemma Pérez Gimenez3Zaida Agüera4Maria-Teresa Lluch Canut5Juan Francisco Roldan Merino6Carmen Moreno Arroyo7Marta Prats Arimon8Maria Aurelia Sánchez Ortega9Xavier Domènech Mascaró10Miguel Angel Hidalgo Blanco11Antonio Moreno Poyato12University of Barcelona, Health Sciences Campus Bellvitge, L’Hospitalet de LlobregatUniversity of Barcelona, Health Sciences Campus Bellvitge, L’Hospitalet de LlobregatLa Vinyota. Mollet Health Foundation, MolletGranollers General HospitalUniversity of Barcelona, Health Sciences Campus Bellvitge, L’Hospitalet de LlobregatUniversity of Barcelona, Health Sciences Campus Bellvitge, L’Hospitalet de LlobregatUniversity of BarcelonaUniversity of Barcelona (UB)University of Barcelona (UB)Universitat Autònoma de BarcelonaPersonal attention to citizens. Upper Penedès Territorial Pediatric Care Team Upper Penedès-Garraf-Baix Llobregat Nord Primary Care Service. Vilafranca del PenedèsUniversity of Barcelona (UB)University of Barcelona, Health Sciences Campus Bellvitge, L’Hospitalet de LlobregatBackground The global COVID-19 pandemic has shown the vulnerability of some population groups, including persons with intellectual and developmental disabilities (IDD). Aim The present paper will provide more clarity and understanding of the experiences of family members of persons with IDD housed in residential facilities in Catalonia within the period of maximum restrictions during the COVID-19 pandemic. Methods and procedures Semi-structured interviews were conducted using an interpretive phenomenological qualitative approach. Study participants consisted of 14 relatives of IDD individuals who were institutionalized in residence facilities or homes. The guiding questions emerged from group discussions with relatives of those with IDD who did not participate in the subsequent interviews. Drawing from this group, the factors that were identified to have had the greatest impact on their lives were later used to guide the interviews. Data collection was carried out in face-to-face individual interviews that were recorded together with the observations of two researchers between February and October 2022. Results Our analysis identified 4 main themes that developed into additional factors: the decision to stay at home or in the residence, fear, illness, and protocol. Individuals with IDD lost their daily routines, suffered from social isolation, and did not understand the situation. Conclusion The results of this study allow for a better understanding of the experiences of families of persons with IDD in residential centres during the lockdown by identifying their needs and how to better support them in the future. Outcomes and results Knowledge and understanding of these events should allow for better management of similar situations in the future.http://dx.doi.org/10.1080/17482631.2023.2288100qualitative researchcovid-19familyintellectual and developmental disabilities (idd)experiencies |
| spellingShingle | Montserrat Puig Llobet Montserrat Roca Roger Teresa Nicolàs Silva Gemma Pérez Gimenez Zaida Agüera Maria-Teresa Lluch Canut Juan Francisco Roldan Merino Carmen Moreno Arroyo Marta Prats Arimon Maria Aurelia Sánchez Ortega Xavier Domènech Mascaró Miguel Angel Hidalgo Blanco Antonio Moreno Poyato The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic International Journal of Qualitative Studies on Health & Well-Being qualitative research covid-19 family intellectual and developmental disabilities (idd) experiencies |
| title | The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic |
| title_full | The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic |
| title_fullStr | The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic |
| title_full_unstemmed | The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic |
| title_short | The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic |
| title_sort | experiences of family members of persons with intellectual disabilities who used residential care homes during the covid 19 pandemic |
| topic | qualitative research covid-19 family intellectual and developmental disabilities (idd) experiencies |
| url | http://dx.doi.org/10.1080/17482631.2023.2288100 |
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