Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media

Objective: To explore the experiences, expectations, and motivations of parents/caregivers of children with otitis media who were booked to undergo tympanostomy tube insertion. Method: A cross-sectional cohort study was conducted using semistructured interviews with 39 parents. Interviews were condu...

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Main Authors: Jacqueline H Stephens MPH, PhD, Maree O’Keefe MBBS, PhD, Mark Schembri MBBS, Peter A Baghurst MSc, PhD
Format: Article
Language:English
Published: SAGE Publishing 2020-10-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/2374373519883495
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author Jacqueline H Stephens MPH, PhD
Maree O’Keefe MBBS, PhD
Mark Schembri MBBS
Peter A Baghurst MSc, PhD
author_facet Jacqueline H Stephens MPH, PhD
Maree O’Keefe MBBS, PhD
Mark Schembri MBBS
Peter A Baghurst MSc, PhD
author_sort Jacqueline H Stephens MPH, PhD
collection DOAJ
description Objective: To explore the experiences, expectations, and motivations of parents/caregivers of children with otitis media who were booked to undergo tympanostomy tube insertion. Method: A cross-sectional cohort study was conducted using semistructured interviews with 39 parents. Interviews were conducted via telephone and analyzed for key themes. Results: Three themes emerged that incorporated a range of subthemes: (1) the impact of the child’s underlying condition on the family, (2) the cues and prompts that influenced parents to seek intervention, and (3) the parents’ expectations of the health-care system. The child’s otitis media disrupted the day-to-day functioning of the family and the child’s well-being, but despite this, the families found ways to adapt and cope. Parents were influenced by their friends, family, and medical practitioners when making treatment decisions and had differing expectations of the health-care system. Conclusion: Parents need support during their child’s illness to help with pressures placed on the family and also in making health-care decisions for their child. Clinicians should consider these issues when discussing treatment options with parents.
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spelling doaj.art-be212bfa275c4b16a080dd7dfd2709ee2022-12-22T01:52:51ZengSAGE PublishingJournal of Patient Experience2374-37352374-37432020-10-01710.1177/2374373519883495Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis MediaJacqueline H Stephens MPH, PhD0Maree O’Keefe MBBS, PhD1Mark Schembri MBBS2Peter A Baghurst MSc, PhD3 Aboriginal Health Equity, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, South Australia, Australia Ear, Nose and Throat Department, , North Adelaide, South Australia, Australia Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, South Australia, AustraliaObjective: To explore the experiences, expectations, and motivations of parents/caregivers of children with otitis media who were booked to undergo tympanostomy tube insertion. Method: A cross-sectional cohort study was conducted using semistructured interviews with 39 parents. Interviews were conducted via telephone and analyzed for key themes. Results: Three themes emerged that incorporated a range of subthemes: (1) the impact of the child’s underlying condition on the family, (2) the cues and prompts that influenced parents to seek intervention, and (3) the parents’ expectations of the health-care system. The child’s otitis media disrupted the day-to-day functioning of the family and the child’s well-being, but despite this, the families found ways to adapt and cope. Parents were influenced by their friends, family, and medical practitioners when making treatment decisions and had differing expectations of the health-care system. Conclusion: Parents need support during their child’s illness to help with pressures placed on the family and also in making health-care decisions for their child. Clinicians should consider these issues when discussing treatment options with parents.https://doi.org/10.1177/2374373519883495
spellingShingle Jacqueline H Stephens MPH, PhD
Maree O’Keefe MBBS, PhD
Mark Schembri MBBS
Peter A Baghurst MSc, PhD
Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media
Journal of Patient Experience
title Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media
title_full Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media
title_fullStr Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media
title_full_unstemmed Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media
title_short Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media
title_sort parents need more support a qualitative study of the experiences of australian parents who are waiting for surgical intervention for their children with otitis media
url https://doi.org/10.1177/2374373519883495
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