Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
<h4>Background</h4>Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly.<h4>Purpose</h4>Therefore, our aim is to describe the barriers and conce...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2021-01-01
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| Series: | PLoS ONE |
| Online Access: | https://doi.org/10.1371/journal.pone.0254202 |
| _version_ | 1818694593493860352 |
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| author | Thijs Devriendt Pascal Borry Mahsa Shabani |
| author_facet | Thijs Devriendt Pascal Borry Mahsa Shabani |
| author_sort | Thijs Devriendt |
| collection | DOAJ |
| description | <h4>Background</h4>Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly.<h4>Purpose</h4>Therefore, our aim is to describe the barriers and concerns for the sharing of cohort data, and the implications for data sharing platforms.<h4>Methods</h4>Seventeen participants involved in developing data sharing platforms or tied to cohorts that are to be submitted to platforms were recruited for semi-structured interviews to share views and experiences regarding data sharing.<h4>Results</h4>Credit and recognition, the potential misuse of data, loss of control, lack of resources, socio-cultural factors and ethical and legal barriers are elements that influence decisions on data sharing. Core values underlying these reasons are equality, reciprocity, trust, transparency, gratification and beneficence.<h4>Conclusions</h4>Data generators might use data sharing platforms primarily for collaborative modes of working and network building. Data generators might be unwilling to contribute and share for non-collaborative work, or if no financial resources are provided for sharing data. |
| first_indexed | 2024-12-17T13:32:03Z |
| format | Article |
| id | doaj.art-bf27bea8a2764add93e4f259fed831a6 |
| institution | Directory Open Access Journal |
| issn | 1932-6203 |
| language | English |
| last_indexed | 2024-12-17T13:32:03Z |
| publishDate | 2021-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj.art-bf27bea8a2764add93e4f259fed831a62022-12-21T21:46:33ZengPublic Library of Science (PLoS)PLoS ONE1932-62032021-01-01167e025420210.1371/journal.pone.0254202Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.Thijs DevriendtPascal BorryMahsa Shabani<h4>Background</h4>Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly.<h4>Purpose</h4>Therefore, our aim is to describe the barriers and concerns for the sharing of cohort data, and the implications for data sharing platforms.<h4>Methods</h4>Seventeen participants involved in developing data sharing platforms or tied to cohorts that are to be submitted to platforms were recruited for semi-structured interviews to share views and experiences regarding data sharing.<h4>Results</h4>Credit and recognition, the potential misuse of data, loss of control, lack of resources, socio-cultural factors and ethical and legal barriers are elements that influence decisions on data sharing. Core values underlying these reasons are equality, reciprocity, trust, transparency, gratification and beneficence.<h4>Conclusions</h4>Data generators might use data sharing platforms primarily for collaborative modes of working and network building. Data generators might be unwilling to contribute and share for non-collaborative work, or if no financial resources are provided for sharing data.https://doi.org/10.1371/journal.pone.0254202 |
| spellingShingle | Thijs Devriendt Pascal Borry Mahsa Shabani Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. PLoS ONE |
| title | Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. |
| title_full | Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. |
| title_fullStr | Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. |
| title_full_unstemmed | Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. |
| title_short | Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. |
| title_sort | factors that influence data sharing through data sharing platforms a qualitative study on the views and experiences of cohort holders and platform developers |
| url | https://doi.org/10.1371/journal.pone.0254202 |
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