‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative study

ABSTRACTChildren in Africa are disproportionately burdened by the neurosurgical condition hydrocephalus. In Blantyre, Malawi, paediatric hydrocephalus represents the majority of surgical procedures performed in the neurosurgical department at Queen Elizabeth Central Hospital. To reduce morbidity and...

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Main Authors: Camilla G. Aukrust, Patrick D. Kamalo, Gertrude Finyiza, Chimwemwe Mula, Blessings A. Chapweteka, Heidi E. Fjeld, Lucinda Manda-Taylor
Format: Article
Language:English
Published: Taylor & Francis Group 2023-01-01
Series:Global Public Health
Subjects:
Online Access:https://www.tandfonline.com/doi/10.1080/17441692.2023.2276242
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author Camilla G. Aukrust
Patrick D. Kamalo
Gertrude Finyiza
Chimwemwe Mula
Blessings A. Chapweteka
Heidi E. Fjeld
Lucinda Manda-Taylor
author_facet Camilla G. Aukrust
Patrick D. Kamalo
Gertrude Finyiza
Chimwemwe Mula
Blessings A. Chapweteka
Heidi E. Fjeld
Lucinda Manda-Taylor
author_sort Camilla G. Aukrust
collection DOAJ
description ABSTRACTChildren in Africa are disproportionately burdened by the neurosurgical condition hydrocephalus. In Blantyre, Malawi, paediatric hydrocephalus represents the majority of surgical procedures performed in the neurosurgical department at Queen Elizabeth Central Hospital. To reduce morbidity and mortality, timely detection followed by referral from surrounding primary health centres is crucial. Aiming to explore perceptions and identify enablers and barriers to detection and referral, we conducted a qualitative study among primary healthcare providers (n = 30) from ten health centres in Blantyre district. Using a semi-structured interview-guide, we audio-recorded and transcribed the interviews before conducting a thematic analysis. One main finding is that there is a potential to improve detection through head circumference measurements, which is the recommended way to detect hydrocephalus early, yet healthcare providers did not carry this out systematically. They described the health passport provided by the Malawian Ministry of Health as an important tool for clinical communication. However, head circumference growth charts are not included. To optimise outcomes for paediatric hydrocephalus we suggest including head circumference growth charts in the health passports. To meet the need for comprehensive management of paediatric hydrocephalus, we recommend more research from the continent, focusing on bridging the gap between primary care and neurosurgery.
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spelling doaj.art-bf2a3ad2788f4381b6d1ca8f1ab60fa02023-11-08T22:53:59ZengTaylor & Francis GroupGlobal Public Health1744-16921744-17062023-01-0118110.1080/17441692.2023.2276242‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative studyCamilla G. Aukrust0Patrick D. Kamalo1Gertrude Finyiza2Chimwemwe Mula3Blessings A. Chapweteka4Heidi E. Fjeld5Lucinda Manda-Taylor6Department of Neurosurgery, Oslo University Hospital-Rikshospitalet, Oslo, NorwayDepartment of Neurosurgery, Queen Elizabeth Central Hospital, Ministry of Health, Blantyre Institute of Neurological Sciences, Blantyre, MalawiIndependent Researcher, Blantyre, MalawiClinical Nursing Department, Kamuzu University of Health Sciences, Blantyre, MalawiChild Help Spina Bifida and Hydrocephalus, Blantyre, MalawiDepartment of Community Medicine and Global Health, Institute of Health and Society, University of Oslo, Oslo, NorwayDepartment of Health Systems and Policy, School of Global and Public Health, Kamuzu University of Health Sciences, Blantyre, MalawiABSTRACTChildren in Africa are disproportionately burdened by the neurosurgical condition hydrocephalus. In Blantyre, Malawi, paediatric hydrocephalus represents the majority of surgical procedures performed in the neurosurgical department at Queen Elizabeth Central Hospital. To reduce morbidity and mortality, timely detection followed by referral from surrounding primary health centres is crucial. Aiming to explore perceptions and identify enablers and barriers to detection and referral, we conducted a qualitative study among primary healthcare providers (n = 30) from ten health centres in Blantyre district. Using a semi-structured interview-guide, we audio-recorded and transcribed the interviews before conducting a thematic analysis. One main finding is that there is a potential to improve detection through head circumference measurements, which is the recommended way to detect hydrocephalus early, yet healthcare providers did not carry this out systematically. They described the health passport provided by the Malawian Ministry of Health as an important tool for clinical communication. However, head circumference growth charts are not included. To optimise outcomes for paediatric hydrocephalus we suggest including head circumference growth charts in the health passports. To meet the need for comprehensive management of paediatric hydrocephalus, we recommend more research from the continent, focusing on bridging the gap between primary care and neurosurgery.https://www.tandfonline.com/doi/10.1080/17441692.2023.2276242HydrocephalusMalawipaediatricsglobal neurosurgeryIGAP
spellingShingle Camilla G. Aukrust
Patrick D. Kamalo
Gertrude Finyiza
Chimwemwe Mula
Blessings A. Chapweteka
Heidi E. Fjeld
Lucinda Manda-Taylor
‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative study
Global Public Health
Hydrocephalus
Malawi
paediatrics
global neurosurgery
IGAP
title ‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative study
title_full ‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative study
title_fullStr ‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative study
title_full_unstemmed ‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative study
title_short ‘It is the child with the big head’ – Primary healthcare providers’ perceptions of paediatric hydrocephalus in Blantyre, Malawi: A qualitative study
title_sort it is the child with the big head primary healthcare providers perceptions of paediatric hydrocephalus in blantyre malawi a qualitative study
topic Hydrocephalus
Malawi
paediatrics
global neurosurgery
IGAP
url https://www.tandfonline.com/doi/10.1080/17441692.2023.2276242
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