As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social

The objective of the present research is to use the network theory to analyze the configuration of the social webs of adults with Down Syndrome (DS). The main potential of social network analysis is to point out that the individual is conditioned by the social network that surrounds him and is also...

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Main Author: Marina Dias de Faria
Format: Article
Language:English
Published: Centro de Estudos Sociais da Universidade de Coimbra 2020-09-01
Series:Revista Crítica de Ciências Sociais
Subjects:
Online Access:http://journals.openedition.org/rccs/10707
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author Marina Dias de Faria
author_facet Marina Dias de Faria
author_sort Marina Dias de Faria
collection DOAJ
description The objective of the present research is to use the network theory to analyze the configuration of the social webs of adults with Down Syndrome (DS). The main potential of social network analysis is to point out that the individual is conditioned by the social network that surrounds him and is also able to modify this network. Interviews were conducted with 34 families in Portugal and Brazil. Respondents were adults with DS and their mothers. The results showed that the network of the DS individuals is narrow and has as main node the maternal figure. The mother is responsible in almost all the families interviewed for taking care of her child with DS, even if she has to give up her moments of leisure and her profession. The network of people with DS is mainly composed of women, and people outside of the family often create negative bonds with these individuals.
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spelling doaj.art-bffa43e3f7e4484383d47c32b6f95a6c2022-12-22T01:12:21ZengCentro de Estudos Sociais da Universidade de CoimbraRevista Crítica de Ciências Sociais0254-11062020-09-0112211914410.4000/rccs.10707As teias que a Síndrome de Down não tece: identidade, estigma e exclusão socialMarina Dias de FariaThe objective of the present research is to use the network theory to analyze the configuration of the social webs of adults with Down Syndrome (DS). The main potential of social network analysis is to point out that the individual is conditioned by the social network that surrounds him and is also able to modify this network. Interviews were conducted with 34 families in Portugal and Brazil. Respondents were adults with DS and their mothers. The results showed that the network of the DS individuals is narrow and has as main node the maternal figure. The mother is responsible in almost all the families interviewed for taking care of her child with DS, even if she has to give up her moments of leisure and her profession. The network of people with DS is mainly composed of women, and people outside of the family often create negative bonds with these individuals.http://journals.openedition.org/rccs/10707disabilityDown Syndromemothersnetwork theorysocial exclusion
spellingShingle Marina Dias de Faria
As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social
Revista Crítica de Ciências Sociais
disability
Down Syndrome
mothers
network theory
social exclusion
title As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social
title_full As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social
title_fullStr As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social
title_full_unstemmed As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social
title_short As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social
title_sort as teias que a sindrome de down nao tece identidade estigma e exclusao social
topic disability
Down Syndrome
mothers
network theory
social exclusion
url http://journals.openedition.org/rccs/10707
work_keys_str_mv AT marinadiasdefaria asteiasqueasindromededownnaoteceidentidadeestigmaeexclusaosocial