As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social
The objective of the present research is to use the network theory to analyze the configuration of the social webs of adults with Down Syndrome (DS). The main potential of social network analysis is to point out that the individual is conditioned by the social network that surrounds him and is also...
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Format: | Article |
Language: | English |
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Centro de Estudos Sociais da Universidade de Coimbra
2020-09-01
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Series: | Revista Crítica de Ciências Sociais |
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Online Access: | http://journals.openedition.org/rccs/10707 |
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author | Marina Dias de Faria |
author_facet | Marina Dias de Faria |
author_sort | Marina Dias de Faria |
collection | DOAJ |
description | The objective of the present research is to use the network theory to analyze the configuration of the social webs of adults with Down Syndrome (DS). The main potential of social network analysis is to point out that the individual is conditioned by the social network that surrounds him and is also able to modify this network. Interviews were conducted with 34 families in Portugal and Brazil. Respondents were adults with DS and their mothers. The results showed that the network of the DS individuals is narrow and has as main node the maternal figure. The mother is responsible in almost all the families interviewed for taking care of her child with DS, even if she has to give up her moments of leisure and her profession. The network of people with DS is mainly composed of women, and people outside of the family often create negative bonds with these individuals. |
first_indexed | 2024-12-11T09:52:52Z |
format | Article |
id | doaj.art-bffa43e3f7e4484383d47c32b6f95a6c |
institution | Directory Open Access Journal |
issn | 0254-1106 |
language | English |
last_indexed | 2024-12-11T09:52:52Z |
publishDate | 2020-09-01 |
publisher | Centro de Estudos Sociais da Universidade de Coimbra |
record_format | Article |
series | Revista Crítica de Ciências Sociais |
spelling | doaj.art-bffa43e3f7e4484383d47c32b6f95a6c2022-12-22T01:12:21ZengCentro de Estudos Sociais da Universidade de CoimbraRevista Crítica de Ciências Sociais0254-11062020-09-0112211914410.4000/rccs.10707As teias que a Síndrome de Down não tece: identidade, estigma e exclusão socialMarina Dias de FariaThe objective of the present research is to use the network theory to analyze the configuration of the social webs of adults with Down Syndrome (DS). The main potential of social network analysis is to point out that the individual is conditioned by the social network that surrounds him and is also able to modify this network. Interviews were conducted with 34 families in Portugal and Brazil. Respondents were adults with DS and their mothers. The results showed that the network of the DS individuals is narrow and has as main node the maternal figure. The mother is responsible in almost all the families interviewed for taking care of her child with DS, even if she has to give up her moments of leisure and her profession. The network of people with DS is mainly composed of women, and people outside of the family often create negative bonds with these individuals.http://journals.openedition.org/rccs/10707disabilityDown Syndromemothersnetwork theorysocial exclusion |
spellingShingle | Marina Dias de Faria As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social Revista Crítica de Ciências Sociais disability Down Syndrome mothers network theory social exclusion |
title | As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social |
title_full | As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social |
title_fullStr | As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social |
title_full_unstemmed | As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social |
title_short | As teias que a Síndrome de Down não tece: identidade, estigma e exclusão social |
title_sort | as teias que a sindrome de down nao tece identidade estigma e exclusao social |
topic | disability Down Syndrome mothers network theory social exclusion |
url | http://journals.openedition.org/rccs/10707 |
work_keys_str_mv | AT marinadiasdefaria asteiasqueasindromededownnaoteceidentidadeestigmaeexclusaosocial |