Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic

Introduction: The COVID-19 pandemic has disproportionally affected historically marginalized populations and their access to resources and healthcare. In times of crisis, authentic community engagement is more important than ever. This study was Phase 1 of a larger 3-phase study to conduct timely co...

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Main Authors: Lily Huang, Tiera Cleveland, Kristin Clift, Jason S. Egginton, Laura Pacheco-Spann, Matthew G. Johnson, Monica Albertie, Lilliana D. Cardenas, Sean M. Phelan, Megan A. Allyse, Amelia K. Barwise
Format: Article
Language:English
Published: SAGE Publishing 2022-11-01
Series:Journal of Primary Care & Community Health
Online Access:https://doi.org/10.1177/21501319221133076
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author Lily Huang
Tiera Cleveland
Kristin Clift
Jason S. Egginton
Laura Pacheco-Spann
Matthew G. Johnson
Monica Albertie
Lilliana D. Cardenas
Sean M. Phelan
Megan A. Allyse
Amelia K. Barwise
author_facet Lily Huang
Tiera Cleveland
Kristin Clift
Jason S. Egginton
Laura Pacheco-Spann
Matthew G. Johnson
Monica Albertie
Lilliana D. Cardenas
Sean M. Phelan
Megan A. Allyse
Amelia K. Barwise
author_sort Lily Huang
collection DOAJ
description Introduction: The COVID-19 pandemic has disproportionally affected historically marginalized populations and their access to resources and healthcare. In times of crisis, authentic community engagement is more important than ever. This study was Phase 1 of a larger 3-phase study to conduct timely community-engaged research with community members to understand the disproportionate impact of COVID-19 on historically underserved communities. The objective of this work was to conduct key informant (KI) interviews (1) to understand community organizations perspectives about the role that large academic health centers play as they interface with community organizations to support their work, (2) to leverage KI’s expertise to identify needs and assets within the community, and (3) to inform both Phase 2 (focus group qualitative research) and Phase 3 (survey) of the broader study. Methods: A total of 24 key informants were identified through purposeful sampling and one-on-one semi-structured interviews were conducted across 4 states using video conferencing. Results: Barriers to access and lack of transparency were highlighted as major issues requiring reform—in particular, aggressive billing practices and insurance barriers exacerbated local distrust of medical institutions. KIs recognized the health institution’s support for testing and vaccination during the COVID-19 pandemic, but noted other significant gaps in care, especially regarding mental health support. Although communication with the health institution was consistent for some KIs, others experienced unsustained communication efforts that hindered cooperation and relationship building. Conclusions: Leaders in the community as key stakeholders can provide unique insights into the challenges and potential solutions required to promote health equity, and foster understanding between local communities and healthcare institutions.
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spelling doaj.art-c00423a554824e2f9a5c012d7998903a2022-12-22T04:38:36ZengSAGE PublishingJournal of Primary Care & Community Health2150-13272022-11-011310.1177/21501319221133076Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 PandemicLily Huang0Tiera Cleveland1Kristin Clift2Jason S. Egginton3Laura Pacheco-Spann4Matthew G. Johnson5Monica Albertie6Lilliana D. Cardenas7Sean M. Phelan8Megan A. Allyse9Amelia K. Barwise10Mayo Clinic, Jacksonville, FL, USAMayo Clinic, Jacksonville, FL, USAMayo Clinic, Jacksonville, FL, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Jacksonville, FL, USAMaricopa County Department of Public Health, Phoenix, AZ, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Rochester, MN, USAMayo Clinic, Rochester, MN, USAIntroduction: The COVID-19 pandemic has disproportionally affected historically marginalized populations and their access to resources and healthcare. In times of crisis, authentic community engagement is more important than ever. This study was Phase 1 of a larger 3-phase study to conduct timely community-engaged research with community members to understand the disproportionate impact of COVID-19 on historically underserved communities. The objective of this work was to conduct key informant (KI) interviews (1) to understand community organizations perspectives about the role that large academic health centers play as they interface with community organizations to support their work, (2) to leverage KI’s expertise to identify needs and assets within the community, and (3) to inform both Phase 2 (focus group qualitative research) and Phase 3 (survey) of the broader study. Methods: A total of 24 key informants were identified through purposeful sampling and one-on-one semi-structured interviews were conducted across 4 states using video conferencing. Results: Barriers to access and lack of transparency were highlighted as major issues requiring reform—in particular, aggressive billing practices and insurance barriers exacerbated local distrust of medical institutions. KIs recognized the health institution’s support for testing and vaccination during the COVID-19 pandemic, but noted other significant gaps in care, especially regarding mental health support. Although communication with the health institution was consistent for some KIs, others experienced unsustained communication efforts that hindered cooperation and relationship building. Conclusions: Leaders in the community as key stakeholders can provide unique insights into the challenges and potential solutions required to promote health equity, and foster understanding between local communities and healthcare institutions.https://doi.org/10.1177/21501319221133076
spellingShingle Lily Huang
Tiera Cleveland
Kristin Clift
Jason S. Egginton
Laura Pacheco-Spann
Matthew G. Johnson
Monica Albertie
Lilliana D. Cardenas
Sean M. Phelan
Megan A. Allyse
Amelia K. Barwise
Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic
Journal of Primary Care & Community Health
title Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic
title_full Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic
title_fullStr Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic
title_full_unstemmed Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic
title_short Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic
title_sort key stakeholder perspectives of community engagement efforts and the impact of the covid 19 pandemic
url https://doi.org/10.1177/21501319221133076
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