German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors.
The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are still poorly understood, and no TBI-specific instrument has hitherto been available. This paper describes in detail the psychometrics and validity of the German version of an internationally developed, se...
| Main Authors: | , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Public Library of Science (PLoS)
2017-01-01
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| Series: | PLoS ONE |
| Online Access: | http://europepmc.org/articles/PMC5443488?pdf=render |
| _version_ | 1818519622298632192 |
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| author | Nicole von Steinbüchel Ruben G L Real Nadine Sasse Lindsay Wilson Christiane Otto Ryan Mullins Robert Behr Wolfgang Deinsberger Ramon Martinez-Olivera Wolfgang Puschendorf Werner Petereit Veit Rohde Holger Schmidt Stephan Sehmisch Klaus Michael Stürmer Klaus von Wild Henning Gibbons |
| author_facet | Nicole von Steinbüchel Ruben G L Real Nadine Sasse Lindsay Wilson Christiane Otto Ryan Mullins Robert Behr Wolfgang Deinsberger Ramon Martinez-Olivera Wolfgang Puschendorf Werner Petereit Veit Rohde Holger Schmidt Stephan Sehmisch Klaus Michael Stürmer Klaus von Wild Henning Gibbons |
| author_sort | Nicole von Steinbüchel |
| collection | DOAJ |
| description | The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are still poorly understood, and no TBI-specific instrument has hitherto been available. This paper describes in detail the psychometrics and validity of the German version of an internationally developed, self-rated HRQoL tool after TBI-the QOLIBRI (Quality of Life after Brain Injury). Factors associated with HRQoL, such as the impact of cognitive status and awareness, are specifically reported. One-hundred seventy-two participants after TBI were recruited from the records of acute clinics, most of whom having a Glasgow Coma Scale (GCS) 24-hour worst score and a Glasgow Outcome Scale (GOSE) score. Participants had severe (24%), moderate (11%) and mild (56%) injuries as assessed on the GCS, 3 months to 15 years post-injury. The QOLIBRI uses 37 items to measure "satisfaction" in the areas of "Cognition", "Self", "Daily Life and Autonomy", and "Social Relationships", and "feeling bothered" by "Emotions"and "Physical Problems". The scales meet standard psychometric criteria (α = .84 to .96; intra-class correlation-ICC = .72 to .91). ICCs (0.68 to 0.90) and αs (.83 to .96) were also good in a subgroup of participants with lower cognitive performance. The six-subscale structure of the international sample was reproduced for the German version using confirmatory factor analyses and Rasch analysis. Scale validity was supported by systematic relationships observed between the QOLIBRI and the GOSE, Patient Competency Rating Scale for Neurorehabilitation (PCRS-NR), Hospital Anxiety and Depression Scale (HADS), Profile of Mood States (POMS), Short Form 36 (SF-36), and Satisfaction with Life Scale (SWLS). The German QOLIBRI contains novel information not provided by other currently available measures and has good psychometric criteria. It is potentially useful for clinicians and researchers, in post-acute and rehabilitation studies, on a group and individual level. |
| first_indexed | 2024-12-11T01:26:37Z |
| format | Article |
| id | doaj.art-c038020ebe8b4d6084032b605c8c6952 |
| institution | Directory Open Access Journal |
| issn | 1932-6203 |
| language | English |
| last_indexed | 2024-12-11T01:26:37Z |
| publishDate | 2017-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj.art-c038020ebe8b4d6084032b605c8c69522022-12-22T01:25:30ZengPublic Library of Science (PLoS)PLoS ONE1932-62032017-01-01125e017666810.1371/journal.pone.0176668German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors.Nicole von SteinbüchelRuben G L RealNadine SasseLindsay WilsonChristiane OttoRyan MullinsRobert BehrWolfgang DeinsbergerRamon Martinez-OliveraWolfgang PuschendorfWerner PetereitVeit RohdeHolger SchmidtStephan SehmischKlaus Michael StürmerKlaus von WildHenning GibbonsThe consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are still poorly understood, and no TBI-specific instrument has hitherto been available. This paper describes in detail the psychometrics and validity of the German version of an internationally developed, self-rated HRQoL tool after TBI-the QOLIBRI (Quality of Life after Brain Injury). Factors associated with HRQoL, such as the impact of cognitive status and awareness, are specifically reported. One-hundred seventy-two participants after TBI were recruited from the records of acute clinics, most of whom having a Glasgow Coma Scale (GCS) 24-hour worst score and a Glasgow Outcome Scale (GOSE) score. Participants had severe (24%), moderate (11%) and mild (56%) injuries as assessed on the GCS, 3 months to 15 years post-injury. The QOLIBRI uses 37 items to measure "satisfaction" in the areas of "Cognition", "Self", "Daily Life and Autonomy", and "Social Relationships", and "feeling bothered" by "Emotions"and "Physical Problems". The scales meet standard psychometric criteria (α = .84 to .96; intra-class correlation-ICC = .72 to .91). ICCs (0.68 to 0.90) and αs (.83 to .96) were also good in a subgroup of participants with lower cognitive performance. The six-subscale structure of the international sample was reproduced for the German version using confirmatory factor analyses and Rasch analysis. Scale validity was supported by systematic relationships observed between the QOLIBRI and the GOSE, Patient Competency Rating Scale for Neurorehabilitation (PCRS-NR), Hospital Anxiety and Depression Scale (HADS), Profile of Mood States (POMS), Short Form 36 (SF-36), and Satisfaction with Life Scale (SWLS). The German QOLIBRI contains novel information not provided by other currently available measures and has good psychometric criteria. It is potentially useful for clinicians and researchers, in post-acute and rehabilitation studies, on a group and individual level.http://europepmc.org/articles/PMC5443488?pdf=render |
| spellingShingle | Nicole von Steinbüchel Ruben G L Real Nadine Sasse Lindsay Wilson Christiane Otto Ryan Mullins Robert Behr Wolfgang Deinsberger Ramon Martinez-Olivera Wolfgang Puschendorf Werner Petereit Veit Rohde Holger Schmidt Stephan Sehmisch Klaus Michael Stürmer Klaus von Wild Henning Gibbons German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. PLoS ONE |
| title | German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. |
| title_full | German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. |
| title_fullStr | German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. |
| title_full_unstemmed | German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. |
| title_short | German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. |
| title_sort | german validation of quality of life after brain injury qolibri assessment and associated factors |
| url | http://europepmc.org/articles/PMC5443488?pdf=render |
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