Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with Endometriosis
Introduction: According to WHO, 190 million reproductive-aged women are affected by endometriosis. Using self-care interventions has a significant impact on managing endometriosis-related pain. Despite the enormous potential of different endometriosis applications, the medical professionals’ role ha...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Hamara Afzar
2023-05-01
|
| Series: | Frontiers in Health Informatics |
| Subjects: | |
| Online Access: | http://ijmi.ir/index.php/IJMI/article/view/416 |
| _version_ | 1797371033116737536 |
|---|---|
| author | Zahra Seyfi Fateme Salehi Shahrbanoo Pahlevanynejad Jaleh Shoshtarian Malak Reza Safdari |
| author_facet | Zahra Seyfi Fateme Salehi Shahrbanoo Pahlevanynejad Jaleh Shoshtarian Malak Reza Safdari |
| author_sort | Zahra Seyfi |
| collection | DOAJ |
| description | Introduction: According to WHO, 190 million reproductive-aged women are affected by endometriosis. Using self-care interventions has a significant impact on managing endometriosis-related pain. Despite the enormous potential of different endometriosis applications, the medical professionals’ role has been neglected in the process of app development. This study aimed to extract the requirements for developing a mobile-based app for self-care of endometriosis patients through an overview of the literature and validate them according to the expert gynecologists’ point of view.
Material and Methods: This cross-sectional descriptive study was carried out in two steps. First, endometriosis-related articles were reviewed. Second, a researcher-made questionnaire (Cronbach’s alpha=0.98) was designed to validate the identified information elements. Elements that obtained at least an average score of 3.2 (60%) out of 5-point Likert scale, were considered as required data elements for designing an android-based mobile app for self-care of endometriosis patients.
Results: Based on the literature review, 36 studies were retrieved and 126 data elements were extracted. The elements were classified into six categories including electronic health record, educational materials, follow-up, pain management, nutritional diet, and lifestyle. All data elements except “using traditional opioids/drugs” were verified.
Conclusion: In this study, a minimum data set was achieved for designing an endometriosis mobile app. Since due to the lack of international standards for designing health apps, the results of this research can be beneficial for the design and development of endometriosis apps. In the current research, an effort has been made to study all related references carefully in order to provide a comprehensive data set for designing and developing an app. This data set could be useful not only for designing a mobile-based app but also for the design of any other systems which is related to endometriosis. |
| first_indexed | 2024-03-08T18:14:03Z |
| format | Article |
| id | doaj.art-c10f3795421148e8b3c2bb3d92eb7056 |
| institution | Directory Open Access Journal |
| issn | 2676-7104 |
| language | English |
| last_indexed | 2024-03-08T18:14:03Z |
| publishDate | 2023-05-01 |
| publisher | Hamara Afzar |
| record_format | Article |
| series | Frontiers in Health Informatics |
| spelling | doaj.art-c10f3795421148e8b3c2bb3d92eb70562023-12-31T18:36:20ZengHamara AfzarFrontiers in Health Informatics2676-71042023-05-0112010.30699/fhi.v12i0.416225Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with EndometriosisZahra Seyfi0Fateme Salehi1Shahrbanoo Pahlevanynejad2Jaleh Shoshtarian Malak3Reza Safdari4Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran,Department of Gynecology and Obstetrics, Yas Hospital, Tehran University of Medical Sciences, Tehran,Department of Health Information Technology, Sorkheh School of Allied Medical Sciences, Semnan University of Medical Sciences, Semnan,Department of Medical Informatics, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran,Department of Health Information Management and Medical Informatics, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran,Introduction: According to WHO, 190 million reproductive-aged women are affected by endometriosis. Using self-care interventions has a significant impact on managing endometriosis-related pain. Despite the enormous potential of different endometriosis applications, the medical professionals’ role has been neglected in the process of app development. This study aimed to extract the requirements for developing a mobile-based app for self-care of endometriosis patients through an overview of the literature and validate them according to the expert gynecologists’ point of view. Material and Methods: This cross-sectional descriptive study was carried out in two steps. First, endometriosis-related articles were reviewed. Second, a researcher-made questionnaire (Cronbach’s alpha=0.98) was designed to validate the identified information elements. Elements that obtained at least an average score of 3.2 (60%) out of 5-point Likert scale, were considered as required data elements for designing an android-based mobile app for self-care of endometriosis patients. Results: Based on the literature review, 36 studies were retrieved and 126 data elements were extracted. The elements were classified into six categories including electronic health record, educational materials, follow-up, pain management, nutritional diet, and lifestyle. All data elements except “using traditional opioids/drugs” were verified. Conclusion: In this study, a minimum data set was achieved for designing an endometriosis mobile app. Since due to the lack of international standards for designing health apps, the results of this research can be beneficial for the design and development of endometriosis apps. In the current research, an effort has been made to study all related references carefully in order to provide a comprehensive data set for designing and developing an app. This data set could be useful not only for designing a mobile-based app but also for the design of any other systems which is related to endometriosis.http://ijmi.ir/index.php/IJMI/article/view/416endometriosisself-careself-managementmobile health, electronic health record |
| spellingShingle | Zahra Seyfi Fateme Salehi Shahrbanoo Pahlevanynejad Jaleh Shoshtarian Malak Reza Safdari Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with Endometriosis Frontiers in Health Informatics endometriosis self-care self-management mobile health, electronic health record |
| title | Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with Endometriosis |
| title_full | Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with Endometriosis |
| title_fullStr | Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with Endometriosis |
| title_full_unstemmed | Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with Endometriosis |
| title_short | Identifying Required Data Elements for Designing A Mobile-Based Application for Self-Care of Women Living with Endometriosis |
| title_sort | identifying required data elements for designing a mobile based application for self care of women living with endometriosis |
| topic | endometriosis self-care self-management mobile health, electronic health record |
| url | http://ijmi.ir/index.php/IJMI/article/view/416 |
| work_keys_str_mv | AT zahraseyfi identifyingrequireddataelementsfordesigningamobilebasedapplicationforselfcareofwomenlivingwithendometriosis AT fatemesalehi identifyingrequireddataelementsfordesigningamobilebasedapplicationforselfcareofwomenlivingwithendometriosis AT shahrbanoopahlevanynejad identifyingrequireddataelementsfordesigningamobilebasedapplicationforselfcareofwomenlivingwithendometriosis AT jalehshoshtarianmalak identifyingrequireddataelementsfordesigningamobilebasedapplicationforselfcareofwomenlivingwithendometriosis AT rezasafdari identifyingrequireddataelementsfordesigningamobilebasedapplicationforselfcareofwomenlivingwithendometriosis |