Psychosocial Impact of Childhood Cancer on Patients and their Families

Background: The presence of cancer has a profound psychological impact on the quality of life of patients and their families, on family and social relationships, and on role functioning. Aim of the study: Assess the impact of childhood cancer on patients and their families. Subjects and method...

Full description

Bibliographic Details
Main Authors: Fawaz Salim Yousif, Hasanein Habeeb Ghali, Safaa Abdelilah Faraj, Mazin Faisal Farhan, Salma Abbas Al-Hadad
Format: Article
Language:English
Published: University of Baghdad/ Al-Kindy College of Medicine 2021-08-01
Series:مجله كليه طب الكندي
Subjects:
Online Access:https://jkmc.uobaghdad.edu.iq/index.php/MEDICAL/article/view/269
_version_ 1819140563610370048
author Fawaz Salim Yousif
Hasanein Habeeb Ghali
Safaa Abdelilah Faraj
Mazin Faisal Farhan
Salma Abbas Al-Hadad
author_facet Fawaz Salim Yousif
Hasanein Habeeb Ghali
Safaa Abdelilah Faraj
Mazin Faisal Farhan
Salma Abbas Al-Hadad
author_sort Fawaz Salim Yousif
collection DOAJ
description Background: The presence of cancer has a profound psychological impact on the quality of life of patients and their families, on family and social relationships, and on role functioning. Aim of the study: Assess the impact of childhood cancer on patients and their families. Subjects and methods: A Prospective questionnaire-based study, for 151 patients, had malignancy identified by tumor registry of Children Welfare Teaching Hospital. The information was taken from the parent(s) in the presence of the patient who sometimes answered some questions during the interview. Result: There was an interview with 151 families of children with cancer in the outpatient clinic. Sixty-two (41%) patients have leukemia while 89 (59%) have solid tumors. Boys were more than girls. Regarding patients, the mean age at the time of the interview was 10.2 years, while the mean age at diagnosis was 7.1 years. The majority of the parents accepted the diagnosis (89.4%), the rest of the parents (10.6%) were skeptical and tried to re-evaluate the condition elsewhere. More than one-half of the parents started to have quick temper (54%) after diagnosis. Most of them had sleep difficulties (83.2%) after diagnosis. Neglection of other siblings in the family was reported in more than one-half of the interviewed families (52.1%). Most of the parents lost their emotional control (69.2%) with the surrounding people after knowing the diagnosis. After an initial period of treatment, there was a decrease in the social activity of the families in 42% of cases. There was a high concern of the parents about the patient’s future marriage (69%), conception (62%), and career (52%). Conclusions: The establishment of a multidisciplinary cancer care team including social workers, teachers, psychologists, and others to support the child and family is seems to be mandatory during the whole period of treatment and thereafter.
first_indexed 2024-12-22T11:40:33Z
format Article
id doaj.art-c19d42d13af94a5b90aa0d34d3c9e897
institution Directory Open Access Journal
issn 1810-9543
2521-4365
language English
last_indexed 2024-12-22T11:40:33Z
publishDate 2021-08-01
publisher University of Baghdad/ Al-Kindy College of Medicine
record_format Article
series مجله كليه طب الكندي
spelling doaj.art-c19d42d13af94a5b90aa0d34d3c9e8972022-12-21T18:27:18ZengUniversity of Baghdad/ Al-Kindy College of Medicineمجله كليه طب الكندي1810-95432521-43652021-08-01172798310.47723/kcmj.v17i2.269269Psychosocial Impact of Childhood Cancer on Patients and their FamiliesFawaz Salim Yousif0Hasanein Habeeb Ghali1Safaa Abdelilah Faraj2Mazin Faisal Farhan3Salma Abbas Al-Hadad4Bone marrow transplant center, Medical City, BaghdadCollege of Medicine, University of BaghdadDepartment of Pediatrics, College of Medicine, University of Wasit / Children Welfare Teaching Hospital, Medical City, BaghdadDepartment of Pediatrics, College of Medicine, University of Baghdad / Children Welfare Teaching Hospital, Medical City, BaghdadDepartment of Pediatrics, College of Medicine, University of Baghdad / Children Welfare Teaching Hospital, Medical City, BaghdadBackground: The presence of cancer has a profound psychological impact on the quality of life of patients and their families, on family and social relationships, and on role functioning. Aim of the study: Assess the impact of childhood cancer on patients and their families. Subjects and methods: A Prospective questionnaire-based study, for 151 patients, had malignancy identified by tumor registry of Children Welfare Teaching Hospital. The information was taken from the parent(s) in the presence of the patient who sometimes answered some questions during the interview. Result: There was an interview with 151 families of children with cancer in the outpatient clinic. Sixty-two (41%) patients have leukemia while 89 (59%) have solid tumors. Boys were more than girls. Regarding patients, the mean age at the time of the interview was 10.2 years, while the mean age at diagnosis was 7.1 years. The majority of the parents accepted the diagnosis (89.4%), the rest of the parents (10.6%) were skeptical and tried to re-evaluate the condition elsewhere. More than one-half of the parents started to have quick temper (54%) after diagnosis. Most of them had sleep difficulties (83.2%) after diagnosis. Neglection of other siblings in the family was reported in more than one-half of the interviewed families (52.1%). Most of the parents lost their emotional control (69.2%) with the surrounding people after knowing the diagnosis. After an initial period of treatment, there was a decrease in the social activity of the families in 42% of cases. There was a high concern of the parents about the patient’s future marriage (69%), conception (62%), and career (52%). Conclusions: The establishment of a multidisciplinary cancer care team including social workers, teachers, psychologists, and others to support the child and family is seems to be mandatory during the whole period of treatment and thereafter.https://jkmc.uobaghdad.edu.iq/index.php/MEDICAL/article/view/269culturefearcancerchildreniraqpsychology
spellingShingle Fawaz Salim Yousif
Hasanein Habeeb Ghali
Safaa Abdelilah Faraj
Mazin Faisal Farhan
Salma Abbas Al-Hadad
Psychosocial Impact of Childhood Cancer on Patients and their Families
مجله كليه طب الكندي
culture
fear
cancer
children
iraq
psychology
title Psychosocial Impact of Childhood Cancer on Patients and their Families
title_full Psychosocial Impact of Childhood Cancer on Patients and their Families
title_fullStr Psychosocial Impact of Childhood Cancer on Patients and their Families
title_full_unstemmed Psychosocial Impact of Childhood Cancer on Patients and their Families
title_short Psychosocial Impact of Childhood Cancer on Patients and their Families
title_sort psychosocial impact of childhood cancer on patients and their families
topic culture
fear
cancer
children
iraq
psychology
url https://jkmc.uobaghdad.edu.iq/index.php/MEDICAL/article/view/269
work_keys_str_mv AT fawazsalimyousif psychosocialimpactofchildhoodcanceronpatientsandtheirfamilies
AT hasaneinhabeebghali psychosocialimpactofchildhoodcanceronpatientsandtheirfamilies
AT safaaabdelilahfaraj psychosocialimpactofchildhoodcanceronpatientsandtheirfamilies
AT mazinfaisalfarhan psychosocialimpactofchildhoodcanceronpatientsandtheirfamilies
AT salmaabbasalhadad psychosocialimpactofchildhoodcanceronpatientsandtheirfamilies