Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs
Objective: To explore parents' self-reported experiences and information needs regarding recognition and management of pediatric anaphylaxis. Methods: We searched Ovid Medline, Ovid PsychInfo, CINAHL Plus, the Cochrane Library, and grey literature to identify primary studies in English or Frenc...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2022-12-01
|
| Series: | PEC Innovation |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2772628222000036 |
| _version_ | 1811295126621782016 |
|---|---|
| author | Sholeh Rahman Sarah A. Elliott Shannon D. Scott Lisa Hartling |
| author_facet | Sholeh Rahman Sarah A. Elliott Shannon D. Scott Lisa Hartling |
| author_sort | Sholeh Rahman |
| collection | DOAJ |
| description | Objective: To explore parents' self-reported experiences and information needs regarding recognition and management of pediatric anaphylaxis. Methods: We searched Ovid Medline, Ovid PsychInfo, CINAHL Plus, the Cochrane Library, and grey literature to identify primary studies in English or French published since 2000. We used a mixed-method appraisal tool and convergent integrated approach to assess quality and synthesize data, respectively. Results: 43 studies were included (22 quantitative, 19 qualitative, and 2 mixed-method); 77% of studies had high methodological quality. Parents' experiences were categorized as: recognizing an anaphylactic reaction; managing and responding to a reaction; emotional impact of caring for a child at risk of anaphylaxis; and interaction with the health system and healthcare providers. Parents' information needs were categorized into themes relating to: gaps in knowledge and information; type of information desired; information sources; and information delivery format. Conclusion: Negative emotional experiences and a general lack of information were commonly reported by parents of included studies. Provision of relevant and comprehensible information may help parents to make informed decisions and manage reactions promptly. Innovation: The findings of this review are guiding the development of an innovative knowledge translation tool (KT) as part of a larger initiative of developing a suite of parent-focused KT tools for acute childhood conditions. |
| first_indexed | 2024-04-13T05:27:56Z |
| format | Article |
| id | doaj.art-c1ae725ebbed49038ec5d29a6e2cb18e |
| institution | Directory Open Access Journal |
| issn | 2772-6282 |
| language | English |
| last_indexed | 2024-04-13T05:27:56Z |
| publishDate | 2022-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | PEC Innovation |
| spelling | doaj.art-c1ae725ebbed49038ec5d29a6e2cb18e2022-12-22T03:00:32ZengElsevierPEC Innovation2772-62822022-12-011100018Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needsSholeh Rahman0Sarah A. Elliott1Shannon D. Scott2Lisa Hartling3Alberta Research Centre for Health Evidence (ARCHE), Department of Pediatrics, University of Alberta, Edmonton, CanadaAlberta Research Centre for Health Evidence (ARCHE), Department of Pediatrics, University of Alberta, Edmonton, CanadaTranslating Evidence in Child Health to Enhance Outcomes (ECHO), Faculty of Nursing, University of Alberta, Edmonton, CanadaAlberta Research Centre for Health Evidence (ARCHE), Department of Pediatrics, University of Alberta, Edmonton, Canada; Correspondence to: L. Hartling, 4-472 Edmonton Clinic Health Academy, University of Alberta, 11405 87 Ave NW, Edmonton, Alberta T6G 1C9, Canada.Objective: To explore parents' self-reported experiences and information needs regarding recognition and management of pediatric anaphylaxis. Methods: We searched Ovid Medline, Ovid PsychInfo, CINAHL Plus, the Cochrane Library, and grey literature to identify primary studies in English or French published since 2000. We used a mixed-method appraisal tool and convergent integrated approach to assess quality and synthesize data, respectively. Results: 43 studies were included (22 quantitative, 19 qualitative, and 2 mixed-method); 77% of studies had high methodological quality. Parents' experiences were categorized as: recognizing an anaphylactic reaction; managing and responding to a reaction; emotional impact of caring for a child at risk of anaphylaxis; and interaction with the health system and healthcare providers. Parents' information needs were categorized into themes relating to: gaps in knowledge and information; type of information desired; information sources; and information delivery format. Conclusion: Negative emotional experiences and a general lack of information were commonly reported by parents of included studies. Provision of relevant and comprehensible information may help parents to make informed decisions and manage reactions promptly. Innovation: The findings of this review are guiding the development of an innovative knowledge translation tool (KT) as part of a larger initiative of developing a suite of parent-focused KT tools for acute childhood conditions.http://www.sciencedirect.com/science/article/pii/S2772628222000036AnaphylaxisChildParent experienceInformation needSystematic review |
| spellingShingle | Sholeh Rahman Sarah A. Elliott Shannon D. Scott Lisa Hartling Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs PEC Innovation Anaphylaxis Child Parent experience Information need Systematic review |
| title | Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs |
| title_full | Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs |
| title_fullStr | Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs |
| title_full_unstemmed | Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs |
| title_short | Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs |
| title_sort | children at risk of anaphylaxis a mixed studies systematic review of parents experiences and information needs |
| topic | Anaphylaxis Child Parent experience Information need Systematic review |
| url | http://www.sciencedirect.com/science/article/pii/S2772628222000036 |
| work_keys_str_mv | AT sholehrahman childrenatriskofanaphylaxisamixedstudiessystematicreviewofparentsexperiencesandinformationneeds AT sarahaelliott childrenatriskofanaphylaxisamixedstudiessystematicreviewofparentsexperiencesandinformationneeds AT shannondscott childrenatriskofanaphylaxisamixedstudiessystematicreviewofparentsexperiencesandinformationneeds AT lisahartling childrenatriskofanaphylaxisamixedstudiessystematicreviewofparentsexperiencesandinformationneeds |