Effect of an app for promoting advance care planning and motivating patients to write their advance directives

Abstract Background Accordons-nous, a smartphone app, was developed to support patients in the advance care planning (ACP) process. The app raises awareness and facilitates communication on this sensitive topic. It helps patients express their values and preferences for care and write their advance...

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Main Authors: Céline Schöpfer, Catherine Bollondi, Mohamed Amir Moussa, Johanna Sommer, Christine Clavien
Format: Article
Language:English
Published: BMC 2023-06-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-023-09593-3
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author Céline Schöpfer
Catherine Bollondi
Mohamed Amir Moussa
Johanna Sommer
Christine Clavien
author_facet Céline Schöpfer
Catherine Bollondi
Mohamed Amir Moussa
Johanna Sommer
Christine Clavien
author_sort Céline Schöpfer
collection DOAJ
description Abstract Background Accordons-nous, a smartphone app, was developed to support patients in the advance care planning (ACP) process. The app raises awareness and facilitates communication on this sensitive topic. It helps patients express their values and preferences for care and write their advance directives (AD). Objective Measure the impact of distributing Accordons-nous on patients’ propensity to engage in the ACP process, compared with the distribution of a leaflet. A secondary objective was to test the effect of socio-demographic factors (age, health status, gender, level of education) on propensity to engage in ACP. Methods Pre-post randomized control study. Participants were patients approached in medical waiting rooms. They received the app (treatment) or an information leaflet (control). They responded to two questionnaires: one at recruitment and a second 3–4 weeks later. Improvement on four variables relevant to ACP was measured: reported contemplation of an event relevant to ACP; decision about treatment in case of that event; discussion about it with relatives or health care professionals; writing advance directives. Statistical analysis included between-group comparisons of pre-post differences with 2-sample tests for equality of proportions and logistic regression models. Results Four hundred seventy three participants were recruited and full responses obtained from 312. Overall, the intervention (control and treatment together) had a positive effect on the mean reported ACP engagement for all variables: new or renewed contemplation 54%; increase in decision 8%, discussion 11%, and writing 1%, compared to the baseline. Compared to the control (leaflet), the treatment group (app) had a larger effect size for all variables: between-group difference in contemplation + 11% (logistic regression, p = .05), decision + 1% (but p > .05 on this variable), discussion + 5% (p = .05), and writing AD + 5% (p = .03). Moreover, greater age was positively correlated with having written AD at inclusion (21% among retired compared to 2% among young adults) and with the propensity to write AD after our intervention (logistic regression, p = .001). Other factors tested (frequency of consultations, gender, level of education) had no effect on participants’ ACP engagement. Conclusions When distributed without specific counselling, the tool increased reported ACP engagement, although effect sizes remain modest. Further studies are needed to investigate whether the app could generate greater ACP engagement if used by professionals in dedicated ACP consultations.
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spelling doaj.art-c1b584551eb94b308d347fde6f6b764a2023-06-04T11:24:30ZengBMCBMC Health Services Research1472-69632023-06-0123111010.1186/s12913-023-09593-3Effect of an app for promoting advance care planning and motivating patients to write their advance directivesCéline Schöpfer0Catherine Bollondi1Mohamed Amir Moussa2Johanna Sommer3Christine Clavien4Institute for Ethics, History, and the Humanities, University of GenevaDirection of Care, University Hospitals of GenevaInstitute of Family and Child Medicine, Faculty of Medicine, University of GenevaInstitute of Family and Child Medicine, Faculty of Medicine, University of GenevaInstitute for Ethics, History, and the Humanities, University of GenevaAbstract Background Accordons-nous, a smartphone app, was developed to support patients in the advance care planning (ACP) process. The app raises awareness and facilitates communication on this sensitive topic. It helps patients express their values and preferences for care and write their advance directives (AD). Objective Measure the impact of distributing Accordons-nous on patients’ propensity to engage in the ACP process, compared with the distribution of a leaflet. A secondary objective was to test the effect of socio-demographic factors (age, health status, gender, level of education) on propensity to engage in ACP. Methods Pre-post randomized control study. Participants were patients approached in medical waiting rooms. They received the app (treatment) or an information leaflet (control). They responded to two questionnaires: one at recruitment and a second 3–4 weeks later. Improvement on four variables relevant to ACP was measured: reported contemplation of an event relevant to ACP; decision about treatment in case of that event; discussion about it with relatives or health care professionals; writing advance directives. Statistical analysis included between-group comparisons of pre-post differences with 2-sample tests for equality of proportions and logistic regression models. Results Four hundred seventy three participants were recruited and full responses obtained from 312. Overall, the intervention (control and treatment together) had a positive effect on the mean reported ACP engagement for all variables: new or renewed contemplation 54%; increase in decision 8%, discussion 11%, and writing 1%, compared to the baseline. Compared to the control (leaflet), the treatment group (app) had a larger effect size for all variables: between-group difference in contemplation + 11% (logistic regression, p = .05), decision + 1% (but p > .05 on this variable), discussion + 5% (p = .05), and writing AD + 5% (p = .03). Moreover, greater age was positively correlated with having written AD at inclusion (21% among retired compared to 2% among young adults) and with the propensity to write AD after our intervention (logistic regression, p = .001). Other factors tested (frequency of consultations, gender, level of education) had no effect on participants’ ACP engagement. Conclusions When distributed without specific counselling, the tool increased reported ACP engagement, although effect sizes remain modest. Further studies are needed to investigate whether the app could generate greater ACP engagement if used by professionals in dedicated ACP consultations.https://doi.org/10.1186/s12913-023-09593-3Mobile appAdvance directivesAdvance care planningACP engagementPatients
spellingShingle Céline Schöpfer
Catherine Bollondi
Mohamed Amir Moussa
Johanna Sommer
Christine Clavien
Effect of an app for promoting advance care planning and motivating patients to write their advance directives
BMC Health Services Research
Mobile app
Advance directives
Advance care planning
ACP engagement
Patients
title Effect of an app for promoting advance care planning and motivating patients to write their advance directives
title_full Effect of an app for promoting advance care planning and motivating patients to write their advance directives
title_fullStr Effect of an app for promoting advance care planning and motivating patients to write their advance directives
title_full_unstemmed Effect of an app for promoting advance care planning and motivating patients to write their advance directives
title_short Effect of an app for promoting advance care planning and motivating patients to write their advance directives
title_sort effect of an app for promoting advance care planning and motivating patients to write their advance directives
topic Mobile app
Advance directives
Advance care planning
ACP engagement
Patients
url https://doi.org/10.1186/s12913-023-09593-3
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