Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept
Background: Amidst the acceleration of digital health deployment in the province of Québec, the need to clarify the role of patients and caregivers was deemed essential to guide the deployment of telehealth strategies. A patient learning pathway (PLP) approach to patient and caregiver engagement was...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2023-12-01
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| Series: | PEC Innovation |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2772628223001036 |
| _version_ | 1827577209282363392 |
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| author | Mathieu Jackson Tiffany Clovin Corentin Montiel Eleonora Bogdanova Catherine Côté Annie Descoteaux Caroline Wong Vincent Dumez Marie-Pascale Pomey |
| author_facet | Mathieu Jackson Tiffany Clovin Corentin Montiel Eleonora Bogdanova Catherine Côté Annie Descoteaux Caroline Wong Vincent Dumez Marie-Pascale Pomey |
| author_sort | Mathieu Jackson |
| collection | DOAJ |
| description | Background: Amidst the acceleration of digital health deployment in the province of Québec, the need to clarify the role of patients and caregivers was deemed essential to guide the deployment of telehealth strategies. A patient learning pathway (PLP) approach to patient and caregiver engagement was developed, containing knowledge, abilities, and skills mobilized by patients and caregivers at key moments of the life course with an illness, as well as emerging educational needs. Objective: The objective of the current paper is to present the innovative PLP approach to patient and caregiver engagement in telehealth by applying it to three medical specialties within the context of the Québec healthcare system: dermatology, oncology, and mental health/psychiatry. Methods: The PLP methodology is constituted of five chronological phases: 1) identification and engagement of main stakeholders; 2) exploration; 3) recruitment of patient and caregiver partners; 4) co-development of PLP first draft; and 5) validation and consensus building regarding competencies. Results: Three PLPs (dermatology, oncology, and mental health/psychiatry) have already been mapped using this participatory approach, showing that the proposed PLP approach to patient and caregiver engagement in telehealth is feasible. Conclusions: Mapping patient and caregiver competencies organized throughout patients' life course with an illness can lead to a highly operationalizable tool, which relevant stakeholders can use in a way that promotes patient self-management, shared decision-making, and empowerment. Innovation: The five-step PLP methodology developed proposes an innovative and structured approach to partnership with patients and caregivers in telehealth by outlining their roles throughout their life course with an illness. |
| first_indexed | 2024-03-08T21:23:33Z |
| format | Article |
| id | doaj.art-c2640bab2fbe46c3984644b34d304940 |
| institution | Directory Open Access Journal |
| issn | 2772-6282 |
| language | English |
| last_indexed | 2024-03-08T21:23:33Z |
| publishDate | 2023-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | PEC Innovation |
| spelling | doaj.art-c2640bab2fbe46c3984644b34d3049402023-12-21T07:38:55ZengElsevierPEC Innovation2772-62822023-12-013100223Adopting a learning pathway approach to patient partnership in telehealth: A proof of conceptMathieu Jackson0Tiffany Clovin1Corentin Montiel2Eleonora Bogdanova3Catherine Côté4Annie Descoteaux5Caroline Wong6Vincent Dumez7Marie-Pascale Pomey8Centre of Excellence on Partnership with Patients and the Public, 850, St-Denis Street, door S03.900, Montreal, Quebec H2X 0A9, Canada; Corresponding author.Centre of Excellence on Partnership with Patients and the Public, 850, St-Denis Street, door S03.900, Montreal, Quebec H2X 0A9, CanadaUniversité du Québec à Montréal, 405 Rue Sainte-Catherine Est, Montréal, QC H2L 2C4, CanadaCentre of Excellence on Partnership with Patients and the Public, 850, St-Denis Street, door S03.900, Montreal, Quebec H2X 0A9, CanadaCentre of Excellence on Partnership with Patients and the Public, 850, St-Denis Street, door S03.900, Montreal, Quebec H2X 0A9, CanadaBureau du Patient Partenaire, Faculty of Medicine de l'Université de Montréal, 2900 Edouard Montpetit Blvd, Montreal, Quebec H3T 1J4, CanadaCentre of Excellence on Partnership with Patients and the Public, 850, St-Denis Street, door S03.900, Montreal, Quebec H2X 0A9, CanadaCentre of Excellence on Partnership with Patients and the Public, 850, St-Denis Street, door S03.900, Montreal, Quebec H2X 0A9, Canada; Université de Montréal, 2900 Edouard Montpetit Blvd, Montreal, Quebec H3T 1J4, CanadaCentre of Excellence on Partnership with Patients and the Public, 850, St-Denis Street, door S03.900, Montreal, Quebec H2X 0A9, Canada; Université de Montréal, 2900 Edouard Montpetit Blvd, Montreal, Quebec H3T 1J4, Canada; Centre de recherche du Centre hospitalier universitaire de l'Université de Montréal, 900 rue Saint-Denis, Montréal, QC H2X 0A, CanadaBackground: Amidst the acceleration of digital health deployment in the province of Québec, the need to clarify the role of patients and caregivers was deemed essential to guide the deployment of telehealth strategies. A patient learning pathway (PLP) approach to patient and caregiver engagement was developed, containing knowledge, abilities, and skills mobilized by patients and caregivers at key moments of the life course with an illness, as well as emerging educational needs. Objective: The objective of the current paper is to present the innovative PLP approach to patient and caregiver engagement in telehealth by applying it to three medical specialties within the context of the Québec healthcare system: dermatology, oncology, and mental health/psychiatry. Methods: The PLP methodology is constituted of five chronological phases: 1) identification and engagement of main stakeholders; 2) exploration; 3) recruitment of patient and caregiver partners; 4) co-development of PLP first draft; and 5) validation and consensus building regarding competencies. Results: Three PLPs (dermatology, oncology, and mental health/psychiatry) have already been mapped using this participatory approach, showing that the proposed PLP approach to patient and caregiver engagement in telehealth is feasible. Conclusions: Mapping patient and caregiver competencies organized throughout patients' life course with an illness can lead to a highly operationalizable tool, which relevant stakeholders can use in a way that promotes patient self-management, shared decision-making, and empowerment. Innovation: The five-step PLP methodology developed proposes an innovative and structured approach to partnership with patients and caregivers in telehealth by outlining their roles throughout their life course with an illness.http://www.sciencedirect.com/science/article/pii/S2772628223001036Patient educationCompetenciesPatient-partnershipTelehealthLife courseIllness |
| spellingShingle | Mathieu Jackson Tiffany Clovin Corentin Montiel Eleonora Bogdanova Catherine Côté Annie Descoteaux Caroline Wong Vincent Dumez Marie-Pascale Pomey Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept PEC Innovation Patient education Competencies Patient-partnership Telehealth Life course Illness |
| title | Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept |
| title_full | Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept |
| title_fullStr | Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept |
| title_full_unstemmed | Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept |
| title_short | Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept |
| title_sort | adopting a learning pathway approach to patient partnership in telehealth a proof of concept |
| topic | Patient education Competencies Patient-partnership Telehealth Life course Illness |
| url | http://www.sciencedirect.com/science/article/pii/S2772628223001036 |
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