Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families
(1) Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Unit. We investigated how the families perceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale d...
| Main Authors: | , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2022-04-01
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| Series: | Children |
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| Online Access: | https://www.mdpi.com/2227-9067/9/4/554 |
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| author | Olga Nigro Giovanna Sironi Andrea Ferrari Gabriele Tinè Gabriele Infante Francesco Barretta Matteo Silva Carlo Alfredo Clerici Stefano Chiaravalli Elisabetta Schiavello Veronica Biassoni Marta Podda Cristina Meazza Filippo Spreafico Michela Casanova Monica Terenziani Roberto Luksch Maura Massimino |
| author_facet | Olga Nigro Giovanna Sironi Andrea Ferrari Gabriele Tinè Gabriele Infante Francesco Barretta Matteo Silva Carlo Alfredo Clerici Stefano Chiaravalli Elisabetta Schiavello Veronica Biassoni Marta Podda Cristina Meazza Filippo Spreafico Michela Casanova Monica Terenziani Roberto Luksch Maura Massimino |
| author_sort | Olga Nigro |
| collection | DOAJ |
| description | (1) Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Unit. We investigated how the families perceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale dei Tumori in Milan in order to explore how the pandemic had affected the experience of patients who had been or were being treated at our hospital, as well as their families. These questionnaires were administered to three groups of individuals. (3) Results: Between July and October 2020, 120 questionnaires were administered to parents of patients. The impact of school closures and the impossibility of attending sports and social activities outside the hospital were regarded as important, and it was reported that 77.5% of parents judged social distancing to have affected their children. Regarding the changes introduced in the management of the ward and outpatient clinic, most parents’ opinions were positive. Differences in the opinions expressed by Groups 2 and 3 were statistically significant on the topics of relationships in the ward and staff workload. The aspect most negatively affected by the pandemic was the support that patients’ parents were able to give each other. Regardless of whether patients were treated before the pandemic or after the first lockdown, all parents indicated strong degrees of satisfaction with the care received and the organizational arrangements. (4) Conclusions: The results of our study point us in the right direction to further improve our daily work and better respond to the needs of our patients and their families. |
| first_indexed | 2024-03-09T11:00:32Z |
| format | Article |
| id | doaj.art-c2728302b4d64063bd64a0f9c63a5472 |
| institution | Directory Open Access Journal |
| issn | 2227-9067 |
| language | English |
| last_indexed | 2024-03-09T11:00:32Z |
| publishDate | 2022-04-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Children |
| spelling | doaj.art-c2728302b4d64063bd64a0f9c63a54722023-12-01T01:19:47ZengMDPI AGChildren2227-90672022-04-019455410.3390/children9040554Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ FamiliesOlga Nigro0Giovanna Sironi1Andrea Ferrari2Gabriele Tinè3Gabriele Infante4Francesco Barretta5Matteo Silva6Carlo Alfredo Clerici7Stefano Chiaravalli8Elisabetta Schiavello9Veronica Biassoni10Marta Podda11Cristina Meazza12Filippo Spreafico13Michela Casanova14Monica Terenziani15Roberto Luksch16Maura Massimino17Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyClinical Epidemiology and Trial Organization Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyClinical Epidemiology and Trial Organization Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyClinical Epidemiology and Trial Organization Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyDepartment of Oncology and Hemato-Oncology, University of Milan, 20100 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, ItalyPediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, Italy(1) Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Unit. We investigated how the families perceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale dei Tumori in Milan in order to explore how the pandemic had affected the experience of patients who had been or were being treated at our hospital, as well as their families. These questionnaires were administered to three groups of individuals. (3) Results: Between July and October 2020, 120 questionnaires were administered to parents of patients. The impact of school closures and the impossibility of attending sports and social activities outside the hospital were regarded as important, and it was reported that 77.5% of parents judged social distancing to have affected their children. Regarding the changes introduced in the management of the ward and outpatient clinic, most parents’ opinions were positive. Differences in the opinions expressed by Groups 2 and 3 were statistically significant on the topics of relationships in the ward and staff workload. The aspect most negatively affected by the pandemic was the support that patients’ parents were able to give each other. Regardless of whether patients were treated before the pandemic or after the first lockdown, all parents indicated strong degrees of satisfaction with the care received and the organizational arrangements. (4) Conclusions: The results of our study point us in the right direction to further improve our daily work and better respond to the needs of our patients and their families.https://www.mdpi.com/2227-9067/9/4/554COVID-19pediatric oncology |
| spellingShingle | Olga Nigro Giovanna Sironi Andrea Ferrari Gabriele Tinè Gabriele Infante Francesco Barretta Matteo Silva Carlo Alfredo Clerici Stefano Chiaravalli Elisabetta Schiavello Veronica Biassoni Marta Podda Cristina Meazza Filippo Spreafico Michela Casanova Monica Terenziani Roberto Luksch Maura Massimino Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families Children COVID-19 pediatric oncology |
| title | Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families |
| title_full | Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families |
| title_fullStr | Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families |
| title_full_unstemmed | Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families |
| title_short | Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families |
| title_sort | managing care during the covid 19 pandemic the point of view and fears of pediatric cancer patients families |
| topic | COVID-19 pediatric oncology |
| url | https://www.mdpi.com/2227-9067/9/4/554 |
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