Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users
Mobile health smartphone applications (mHealth-apps) are increasingly emerging to assist children's and young people's management of chronic conditions. However, difficulties persist in applying design approaches in mHealth projects that return apps that are useful to this group. In this a...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2022-06-01
|
| Series: | Digital Health |
| Online Access: | https://doi.org/10.1177/20552076221109531 |
| _version_ | 1818238287622438912 |
|---|---|
| author | Claudia M Bagge-Petersen Henriette Langstrup Jakob E Larsen Anne Frølich |
| author_facet | Claudia M Bagge-Petersen Henriette Langstrup Jakob E Larsen Anne Frølich |
| author_sort | Claudia M Bagge-Petersen |
| collection | DOAJ |
| description | Mobile health smartphone applications (mHealth-apps) are increasingly emerging to assist children's and young people's management of chronic conditions. However, difficulties persist in applying design approaches in mHealth projects that return apps that are useful to this group. In this article, we explore ethnographically two self-proclaimed ‘user-driven’ projects designing mHealth apps for Danish patients below the age of 18 living with, respectively, haemophilia and rheumatoid arthritis. These projects initially included the perspectives of children and young people to inform the designs, however, eventually launched the final apps for adult patients only. Through a concept of ‘critical user-configuration’, we examine the projects’ challenges with attuning the designs to children and young people and how these drove their exclusion as users of the emerging mHealth apps. Critical user-configuration draws attention to critical moments in design practices where significant shifts in user-configurations take place, shaping who can become a user. More specifically, we uncover three critical moments: where mHealth projects expand the group of prospective users; where test subjects are selected; and where data governance systems and digital health infrastructures are mobilised in the design process. Throughout these critical moments, there is a drift from user-driven to data-driven design approaches which increasingly exclude groups of users who are less datafiable – in our case children and young people. We argue that besides giving voice to minors in mHealth design processes, we need to be mindful of the design practices that become decisive for – often implicitly – who can be configured as a user. |
| first_indexed | 2024-12-12T12:39:15Z |
| format | Article |
| id | doaj.art-c2800b86a9694053adad5acd9ed879df |
| institution | Directory Open Access Journal |
| issn | 2055-2076 |
| language | English |
| last_indexed | 2024-12-12T12:39:15Z |
| publishDate | 2022-06-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Digital Health |
| spelling | doaj.art-c2800b86a9694053adad5acd9ed879df2022-12-22T00:24:15ZengSAGE PublishingDigital Health2055-20762022-06-01810.1177/20552076221109531Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth usersClaudia M Bagge-Petersen0Henriette Langstrup1Jakob E Larsen2Anne Frølich3 Department of Public Health, Faculty of Health and Medical Sciences, , Copenhagen, Denmark Department of Public Health, Faculty of Health and Medical Sciences, , Copenhagen, Denmark Department of Applied Mathematics and Computer Science, Section for Cognitive Systems, , Lyngby, Denmark Department of Public Health, Faculty of Health and Medical Sciences, , Copenhagen, DenmarkMobile health smartphone applications (mHealth-apps) are increasingly emerging to assist children's and young people's management of chronic conditions. However, difficulties persist in applying design approaches in mHealth projects that return apps that are useful to this group. In this article, we explore ethnographically two self-proclaimed ‘user-driven’ projects designing mHealth apps for Danish patients below the age of 18 living with, respectively, haemophilia and rheumatoid arthritis. These projects initially included the perspectives of children and young people to inform the designs, however, eventually launched the final apps for adult patients only. Through a concept of ‘critical user-configuration’, we examine the projects’ challenges with attuning the designs to children and young people and how these drove their exclusion as users of the emerging mHealth apps. Critical user-configuration draws attention to critical moments in design practices where significant shifts in user-configurations take place, shaping who can become a user. More specifically, we uncover three critical moments: where mHealth projects expand the group of prospective users; where test subjects are selected; and where data governance systems and digital health infrastructures are mobilised in the design process. Throughout these critical moments, there is a drift from user-driven to data-driven design approaches which increasingly exclude groups of users who are less datafiable – in our case children and young people. We argue that besides giving voice to minors in mHealth design processes, we need to be mindful of the design practices that become decisive for – often implicitly – who can be configured as a user.https://doi.org/10.1177/20552076221109531 |
| spellingShingle | Claudia M Bagge-Petersen Henriette Langstrup Jakob E Larsen Anne Frølich Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users Digital Health |
| title | Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users |
| title_full | Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users |
| title_fullStr | Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users |
| title_full_unstemmed | Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users |
| title_short | Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users |
| title_sort | critical user configurations in mhealth design how mhealth app design practices come to bias design against chronically ill children and young people as mhealth users |
| url | https://doi.org/10.1177/20552076221109531 |
| work_keys_str_mv | AT claudiambaggepetersen criticaluserconfigurationsinmhealthdesignhowmhealthappdesignpracticescometobiasdesignagainstchronicallyillchildrenandyoungpeopleasmhealthusers AT henriettelangstrup criticaluserconfigurationsinmhealthdesignhowmhealthappdesignpracticescometobiasdesignagainstchronicallyillchildrenandyoungpeopleasmhealthusers AT jakobelarsen criticaluserconfigurationsinmhealthdesignhowmhealthappdesignpracticescometobiasdesignagainstchronicallyillchildrenandyoungpeopleasmhealthusers AT annefrølich criticaluserconfigurationsinmhealthdesignhowmhealthappdesignpracticescometobiasdesignagainstchronicallyillchildrenandyoungpeopleasmhealthusers |