Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis
<em>Background:</em> Disease-related stigma is a public health concern steadily gaining global attention. Evidence consistently shows that an individual’s attribution of disease cause can prompt or justify interpersonal stigma. However, few studies have explored causal beliefs about inhe...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2016-09-01
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| Series: | Journal of Public Health Research |
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| Online Access: | http://www.jphres.org/index.php/jphres/article/view/689 |
| _version_ | 1797968587524145152 |
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| author | Desta Ayode Abebayehu Tora David Farrell Getnet Tadele Gail Davey Colleen M. McBride |
| author_facet | Desta Ayode Abebayehu Tora David Farrell Getnet Tadele Gail Davey Colleen M. McBride |
| author_sort | Desta Ayode |
| collection | DOAJ |
| description | <em>Background:</em> Disease-related stigma is a public health concern steadily gaining global attention. Evidence consistently shows that an individual’s attribution of disease cause can prompt or justify interpersonal stigma. However, few studies have explored causal beliefs about inherited disease and their influence on stigmatising behaviours in low and middle income countries. <em>Design and methods:</em> The study was conducted in 2013, in six communities in Wolaita zone, Southern Ethiopia. A total of 1800 respondents took part in the study, 600 were affected by an inherited disease and 1200 were unaffected neighbours. Two versions of the interviewer- administered survey were created, with measures assessed in parallel on <em>experienced</em> stigma for the affected and <em>enacted</em> stigma for unaffected respondents. <em>Results:</em> Mean levels of enacted stigma reported by unaffected respondents were slightly lower (2.0, SD=0.7) than experienced stigma reported by affected respondents [2.2 (standard deviation=1.1)]. Beliefs that podoconiosis was hereditary were significantly and positively associated with levels of enacted stigma reported by unaffected respondents and experienced stigma reported by affected respondents (PConclusions: If stigma reduction interventions are to be successful, culturally tailored, gender inclusive and innovative health education programs are required, directed at the general community as well as individuals affected by inherited diseases. |
| first_indexed | 2024-04-11T02:49:03Z |
| format | Article |
| id | doaj.art-c412ba6a041f4891b453fe2e33626e41 |
| institution | Directory Open Access Journal |
| issn | 2279-9028 2279-9036 |
| language | English |
| last_indexed | 2024-04-11T02:49:03Z |
| publishDate | 2016-09-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Public Health Research |
| spelling | doaj.art-c412ba6a041f4891b453fe2e33626e412023-01-02T17:10:30ZengSAGE PublishingJournal of Public Health Research2279-90282279-90362016-09-015210.4081/jphr.2016.689149Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosisDesta Ayode0Abebayehu Tora1David Farrell2Getnet Tadele3Gail Davey4Colleen M. McBride5College of Social Sciences, Addis Ababa University, Addis AbabaDepartment of Sociology, Wolaita Sodo University, SodoPeople Designs Inc., Durham, NCCollege of Social Sciences, Addis Ababa University, Addis AbabaBrighton and Sussex Medical School, Falmer, BrightonDepartment of Behavioral Sciences and Health Education, Rollins School of Public Health, Emory University, Atlanta, GA<em>Background:</em> Disease-related stigma is a public health concern steadily gaining global attention. Evidence consistently shows that an individual’s attribution of disease cause can prompt or justify interpersonal stigma. However, few studies have explored causal beliefs about inherited disease and their influence on stigmatising behaviours in low and middle income countries. <em>Design and methods:</em> The study was conducted in 2013, in six communities in Wolaita zone, Southern Ethiopia. A total of 1800 respondents took part in the study, 600 were affected by an inherited disease and 1200 were unaffected neighbours. Two versions of the interviewer- administered survey were created, with measures assessed in parallel on <em>experienced</em> stigma for the affected and <em>enacted</em> stigma for unaffected respondents. <em>Results:</em> Mean levels of enacted stigma reported by unaffected respondents were slightly lower (2.0, SD=0.7) than experienced stigma reported by affected respondents [2.2 (standard deviation=1.1)]. Beliefs that podoconiosis was hereditary were significantly and positively associated with levels of enacted stigma reported by unaffected respondents and experienced stigma reported by affected respondents (PConclusions: If stigma reduction interventions are to be successful, culturally tailored, gender inclusive and innovative health education programs are required, directed at the general community as well as individuals affected by inherited diseases.http://www.jphres.org/index.php/jphres/article/view/689Enacted stigmaExperienced stigmaPodoconiosis. |
| spellingShingle | Desta Ayode Abebayehu Tora David Farrell Getnet Tadele Gail Davey Colleen M. McBride Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis Journal of Public Health Research Enacted stigma Experienced stigma Podoconiosis. |
| title | Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis |
| title_full | Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis |
| title_fullStr | Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis |
| title_full_unstemmed | Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis |
| title_short | Dual perspectives on stigma: reports of experienced and enacted stigma by those affected and unaffected by podoconiosis |
| title_sort | dual perspectives on stigma reports of experienced and enacted stigma by those affected and unaffected by podoconiosis |
| topic | Enacted stigma Experienced stigma Podoconiosis. |
| url | http://www.jphres.org/index.php/jphres/article/view/689 |
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