Secondary Use of Clinical Data in Data-Gathering, Non-Interventional Research or Learning Activities: Definition, Types, and a Framework for Risk Assessment
BackgroundThe secondary use of clinical data in data-gathering, non-interventional research or learning activities (SeConts) has great potential for scientific progress and health care improvement. At the same time, it poses relevant risks for the privacy and informational self-determination of pati...
Main Authors: | Jungkunz, Martin, Köngeter, Anja, Mehlis, Katja, Winkler, Eva C, Schickhardt, Christoph |
---|---|
Format: | Article |
Language: | English |
Published: |
JMIR Publications
2021-06-01
|
Series: | Journal of Medical Internet Research |
Online Access: | https://www.jmir.org/2021/6/e26631 |
Similar Items
-
Physicians’ attitudes towards secondary use of clinical data for biomedical research purposes in Germany. Results of a quantitative survey
by: Anja Köngeter, et al.
Published: (2024-01-01) -
Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer
by: Anja Köngeter, et al.
Published: (2022-08-01) -
Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis
by: Christoph Schickhardt, et al.
Published: (2020-01-01) -
A Framework for Water Security Data Gathering Strategies
by: Giacomo Butte, et al.
Published: (2022-09-01) -
Neither carrots nor sticks? Challenges surrounding data sharing from the perspective of research funding agencies-A qualitative expert interview study.
by: Michael Anger, et al.
Published: (2022-01-01)