Impact of prophylaxis on health‐related quality of life of boys with hemophilia: An analysis of pooled data from 9 countries

Impact of prophylaxis on health‐related quality of life of boys with hemophilia: An analysis of pooled data from 9 countries

Background Prophylaxis reduces the frequency of bleeds in boys with severe hemophilia and is the standard care for their management in resource‐abundant countries. The effect of prophylaxis on Health‐Related Quality of Life (HRQoL) has not been established, because the sample sizes of most studies a...

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Bibliographic Details
Main Authors: Koyo Usuba, Victoria E. Price, Victor Blanchette, Audrey Abad, Carmen Altisent, Loretta Buchner‐Daley, Jorge D. A. Carneiro, Brian M. Feldman, Kathelijn Fischer, John Grainger, Susanne Holzhauer, Koon‐Hung Luke, Sandrine Meunier, Margareth Ozelo, Ling Tang, Sandra V. Antunes, Paula Villaça, Cindy Wakefield, Gilian Wharfe, Runhui Wu, Nancy L. Young
Format: Article
Language:English
Published: Elsevier 2019-07-01
Series:Research and Practice in Thrombosis and Haemostasis
Subjects:
health‐related quality of life
hemophilia A
hemophilia B
outcome measures
pediatrics
Online Access:https://doi.org/10.1002/rth2.12202

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