Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western Kenya

Abstract Background Non-communicable disease (NCD) care in Sub-Saharan Africa is challenging due to barriers including poverty and insufficient health system resources. Local culture and context can impact the success of interventions and should be integrated early in intervention design. Human-cent...

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Main Authors: Claudia L. Leung, Mackenzie Naert, Benjamin Andama, Rae Dong, David Edelman, Carol Horowitz, Peninah Kiptoo, Simon Manyara, Winnie Matelong, Esther Matini, Violet Naanyu, Sarah Nyariki, Sonak Pastakia, Thomas Valente, Valentin Fuster, Gerald S. Bloomfield, Jemima Kamano, Rajesh Vedanthan
Format: Article
Language:English
Published: BMC 2020-05-01
Series:BMC Health Services Research
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12913-020-05199-1
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author Claudia L. Leung
Mackenzie Naert
Benjamin Andama
Rae Dong
David Edelman
Carol Horowitz
Peninah Kiptoo
Simon Manyara
Winnie Matelong
Esther Matini
Violet Naanyu
Sarah Nyariki
Sonak Pastakia
Thomas Valente
Valentin Fuster
Gerald S. Bloomfield
Jemima Kamano
Rajesh Vedanthan
author_facet Claudia L. Leung
Mackenzie Naert
Benjamin Andama
Rae Dong
David Edelman
Carol Horowitz
Peninah Kiptoo
Simon Manyara
Winnie Matelong
Esther Matini
Violet Naanyu
Sarah Nyariki
Sonak Pastakia
Thomas Valente
Valentin Fuster
Gerald S. Bloomfield
Jemima Kamano
Rajesh Vedanthan
author_sort Claudia L. Leung
collection DOAJ
description Abstract Background Non-communicable disease (NCD) care in Sub-Saharan Africa is challenging due to barriers including poverty and insufficient health system resources. Local culture and context can impact the success of interventions and should be integrated early in intervention design. Human-centered design (HCD) is a methodology that can be used to engage stakeholders in intervention design and evaluation to tailor-make interventions to meet their specific needs. Methods We created a Design Team of health professionals, patients, microfinance officers, community health workers, and village leaders. Over 6 weeks, the Design Team utilized a four-step approach of synthesis, idea generation, prototyping, and creation to develop an integrated microfinance-group medical visit model for NCD. We tested the intervention with a 6-month pilot and conducted a feasibility evaluation using focus group discussions with pilot participants and community members. Results Using human-centered design methodology, we designed a model for NCD delivery that consisted of microfinance coupled with monthly group medical visits led by a community health educator and a rural clinician. Benefits of the intervention included medication availability, financial resources, peer support, and reduced caregiver burden. Critical concerns elicited through iterative feedback informed subsequent modifications that resulted in an intervention model tailored to the local context. Conclusions Contextualized interventions are important in settings with multiple barriers to care. We demonstrate the use of HCD to guide the development and evaluation of an innovative care delivery model for NCDs in rural Kenya. HCD can be used as a framework to engage local stakeholders to optimize intervention design and implementation. This approach can facilitate the development of contextually relevant interventions in other low-resource settings. Trial registration Clinicaltrials.gov, NCT02501746 , registration date: July 17, 2015.
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spelling doaj.art-c59e2838c5fe4904b9a9bcf11f43a3592022-12-22T01:39:58ZengBMCBMC Health Services Research1472-69632020-05-0120111310.1186/s12913-020-05199-1Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western KenyaClaudia L. Leung0Mackenzie Naert1Benjamin Andama2Rae Dong3David Edelman4Carol Horowitz5Peninah Kiptoo6Simon Manyara7Winnie Matelong8Esther Matini9Violet Naanyu10Sarah Nyariki11Sonak Pastakia12Thomas Valente13Valentin Fuster14Gerald S. Bloomfield15Jemima Kamano16Rajesh Vedanthan17Duke University Medical CenterIcahn School of Medicine at Mount SinaiAcademic Model Providing Access to Healthcare (AMPATH)Icahn School of Medicine at Mount SinaiDivision of General Internal Medicine, Duke University School of MedicineIcahn School of Medicine at Mount SinaiAcademic Model Providing Access to Healthcare (AMPATH)Academic Model Providing Access to Healthcare (AMPATH)Academic Model Providing Access to Healthcare (AMPATH)Academic Model Providing Access to Healthcare (AMPATH)Department of Behavioral Sciences, School of Medicine, College of Health Science, Moi University College of Health SciencesAcademic Model Providing Access to Healthcare (AMPATH)Purdue University, Purdue University College of Pharmacy, Purdue-Kenya PartnershipDepartment of Preventive Medicine, Keck School of Medicine, University of Southern CaliforniaIcahn School of Medicine at Mount SinaiIcahn School of Medicine at Mount SinaiDepartment of Behavioral Sciences, School of Medicine, College of Health Science, Moi University College of Health SciencesNew York University Grossman School of MedicineAbstract Background Non-communicable disease (NCD) care in Sub-Saharan Africa is challenging due to barriers including poverty and insufficient health system resources. Local culture and context can impact the success of interventions and should be integrated early in intervention design. Human-centered design (HCD) is a methodology that can be used to engage stakeholders in intervention design and evaluation to tailor-make interventions to meet their specific needs. Methods We created a Design Team of health professionals, patients, microfinance officers, community health workers, and village leaders. Over 6 weeks, the Design Team utilized a four-step approach of synthesis, idea generation, prototyping, and creation to develop an integrated microfinance-group medical visit model for NCD. We tested the intervention with a 6-month pilot and conducted a feasibility evaluation using focus group discussions with pilot participants and community members. Results Using human-centered design methodology, we designed a model for NCD delivery that consisted of microfinance coupled with monthly group medical visits led by a community health educator and a rural clinician. Benefits of the intervention included medication availability, financial resources, peer support, and reduced caregiver burden. Critical concerns elicited through iterative feedback informed subsequent modifications that resulted in an intervention model tailored to the local context. Conclusions Contextualized interventions are important in settings with multiple barriers to care. We demonstrate the use of HCD to guide the development and evaluation of an innovative care delivery model for NCDs in rural Kenya. HCD can be used as a framework to engage local stakeholders to optimize intervention design and implementation. This approach can facilitate the development of contextually relevant interventions in other low-resource settings. Trial registration Clinicaltrials.gov, NCT02501746 , registration date: July 17, 2015.http://link.springer.com/article/10.1186/s12913-020-05199-1Non-communicable diseasesKenyaHuman-centered designDelivery of healthcareProblem-solvingMicrofinance
spellingShingle Claudia L. Leung
Mackenzie Naert
Benjamin Andama
Rae Dong
David Edelman
Carol Horowitz
Peninah Kiptoo
Simon Manyara
Winnie Matelong
Esther Matini
Violet Naanyu
Sarah Nyariki
Sonak Pastakia
Thomas Valente
Valentin Fuster
Gerald S. Bloomfield
Jemima Kamano
Rajesh Vedanthan
Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western Kenya
BMC Health Services Research
Non-communicable diseases
Kenya
Human-centered design
Delivery of healthcare
Problem-solving
Microfinance
title Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western Kenya
title_full Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western Kenya
title_fullStr Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western Kenya
title_full_unstemmed Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western Kenya
title_short Human-centered design as a guide to intervention planning for non-communicable diseases: the BIGPIC study from Western Kenya
title_sort human centered design as a guide to intervention planning for non communicable diseases the bigpic study from western kenya
topic Non-communicable diseases
Kenya
Human-centered design
Delivery of healthcare
Problem-solving
Microfinance
url http://link.springer.com/article/10.1186/s12913-020-05199-1
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