“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine

“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine

IntroductionMaking bench to bedside advances in cystic fibrosis (CF) care requires the sustained engagement and trust of people living with CF. However, there is a scarcity of studies exploring their concerns and priorities regarding research and its end products. The aim of this qualitative study w...

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Bibliographic Details
Main Authors: Terese Knoppers, Marie Cosquer, Julie Hagan, Minh Thu Nguyen, Bartha Maria Knoppers
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-03-01
Series:Frontiers in Medicine
Subjects:
patient perspectives
caregiver perspectives
cystic fibrosis
personalized medicine
ethics
translation
Online Access:https://www.frontiersin.org/articles/10.3389/fmed.2022.841887/full

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