“I Do It With Love”
For caregivers, the impacts of caring for their loved ones with dementia at home are complex. The purpose of this study was to gain understanding of the meaning and experience of engagement for caregivers of individuals with dementia living in the community. Participants are from a culturally divers...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2016-09-01
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| Series: | Global Qualitative Nursing Research |
| Online Access: | https://doi.org/10.1177/2333393616668634 |
| _version_ | 1818516520085487616 |
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| author | Irina Todorova Hope Turner Carmen Castaneda-Sceppa David Young Alice Bonner |
| author_facet | Irina Todorova Hope Turner Carmen Castaneda-Sceppa David Young Alice Bonner |
| author_sort | Irina Todorova |
| collection | DOAJ |
| description | For caregivers, the impacts of caring for their loved ones with dementia at home are complex. The purpose of this study was to gain understanding of the meaning and experience of engagement for caregivers of individuals with dementia living in the community. Participants are from a culturally diverse population of low-income caregivers and care recipients in the northeastern United States. We conducted in-depth semi-structured interviews with caregivers ( n = 17) who were caring for parents, friends, or other relatives with dementia. We used interpretative phenomenological analysis and identified the superordinate themes of connectedness, meaningfulness, acceptance, and vigilance. We conclude that caregiver engagement is a multidimensional phenomenon, with some dimensions being contextual and specific to caregiving. It is a relational concept, referring to a committed, vigilant, and meaningful relationship of caregivers and care recipients as active collaborators. The different aspects of engagement can complement each other, or they can be in contradiction. |
| first_indexed | 2024-12-11T00:43:21Z |
| format | Article |
| id | doaj.art-c61bd38643ef46a28a6f3099b86f6913 |
| institution | Directory Open Access Journal |
| issn | 2333-3936 |
| language | English |
| last_indexed | 2024-12-11T00:43:21Z |
| publishDate | 2016-09-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Global Qualitative Nursing Research |
| spelling | doaj.art-c61bd38643ef46a28a6f3099b86f69132022-12-22T01:26:51ZengSAGE PublishingGlobal Qualitative Nursing Research2333-39362016-09-01310.1177/233339361666863410.1177_2333393616668634“I Do It With Love”Irina Todorova0Hope Turner1Carmen Castaneda-Sceppa2David Young3Alice Bonner4Northeastern University, Boston, Massachusetts, USANortheastern University, Boston, Massachusetts, USANortheastern University, Boston, Massachusetts, USASeniorlink, Boston, Massachusetts, USANortheastern University, Boston, Massachusetts, USAFor caregivers, the impacts of caring for their loved ones with dementia at home are complex. The purpose of this study was to gain understanding of the meaning and experience of engagement for caregivers of individuals with dementia living in the community. Participants are from a culturally diverse population of low-income caregivers and care recipients in the northeastern United States. We conducted in-depth semi-structured interviews with caregivers ( n = 17) who were caring for parents, friends, or other relatives with dementia. We used interpretative phenomenological analysis and identified the superordinate themes of connectedness, meaningfulness, acceptance, and vigilance. We conclude that caregiver engagement is a multidimensional phenomenon, with some dimensions being contextual and specific to caregiving. It is a relational concept, referring to a committed, vigilant, and meaningful relationship of caregivers and care recipients as active collaborators. The different aspects of engagement can complement each other, or they can be in contradiction.https://doi.org/10.1177/2333393616668634 |
| spellingShingle | Irina Todorova Hope Turner Carmen Castaneda-Sceppa David Young Alice Bonner “I Do It With Love” Global Qualitative Nursing Research |
| title | “I Do It With Love” |
| title_full | “I Do It With Love” |
| title_fullStr | “I Do It With Love” |
| title_full_unstemmed | “I Do It With Love” |
| title_short | “I Do It With Love” |
| title_sort | i do it with love |
| url | https://doi.org/10.1177/2333393616668634 |
| work_keys_str_mv | AT irinatodorova idoitwithlove AT hopeturner idoitwithlove AT carmencastanedasceppa idoitwithlove AT davidyoung idoitwithlove AT alicebonner idoitwithlove |