Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions
Abstract Objective Provision of care for patients with amyotrophic lateral sclerosis (ALS) is complex and requires the contribution of multiple healthcare professionals. Several international ALS care measures were developed to ensure optimal care for ALS patients. We looked at the rate of inconsist...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2020-10-01
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| Series: | Brain and Behavior |
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| Online Access: | https://doi.org/10.1002/brb3.1795 |
| _version_ | 1828519655963099136 |
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| author | Ahmad R. Abuzinadah Aysha A. AlShareef Abdullah AlKutbi Ahmed K. Bamaga Ali Alshehri Hussein Algahtani Edward Cupler Mohammed H. Alanazy |
| author_facet | Ahmad R. Abuzinadah Aysha A. AlShareef Abdullah AlKutbi Ahmed K. Bamaga Ali Alshehri Hussein Algahtani Edward Cupler Mohammed H. Alanazy |
| author_sort | Ahmad R. Abuzinadah |
| collection | DOAJ |
| description | Abstract Objective Provision of care for patients with amyotrophic lateral sclerosis (ALS) is complex and requires the contribution of multiple healthcare professionals. Several international ALS care measures were developed to ensure optimal care for ALS patients. We looked at the rate of inconsistency in providing standard ALS care measures in Saudi Arabia (SA). Methods A 5‐point response survey was distributed to practicing neurologists in SA. They were asked to grade their perceived consistency of accessibility for 19 items of ALS care measures at their center. The list of ALS care measures items was derived from international ALS guidelines. Results The response rate from neurologists was 47.3% (62/131), and the responses of 39 neurologists who follow ALS cases were included. Most of the selected ALS care measure items, 63.1% (12/19), were perceived by 50% or more of the ALS care providers to be not consistently accessible to their patients. The perception of ALS care providers of the inconsistent accessibility for ALS patients to ALS care measures was high for communication devices (92.3%), supportive equipment such as motorized wheelchairs (76.9%), end‐of‐life discussion (74.4%), and respiratory monitoring (66.7%). Conclusion Our data show that ALS patients in SA do not have consistent access to the recommended ALS care measures. |
| first_indexed | 2024-12-11T19:17:02Z |
| format | Article |
| id | doaj.art-c6963afd0d474adfbeb4866cce17d22f |
| institution | Directory Open Access Journal |
| issn | 2162-3279 |
| language | English |
| last_indexed | 2024-12-11T19:17:02Z |
| publishDate | 2020-10-01 |
| publisher | Wiley |
| record_format | Article |
| series | Brain and Behavior |
| spelling | doaj.art-c6963afd0d474adfbeb4866cce17d22f2022-12-22T00:53:38ZengWileyBrain and Behavior2162-32792020-10-011010n/an/a10.1002/brb3.1795Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptionsAhmad R. Abuzinadah0Aysha A. AlShareef1Abdullah AlKutbi2Ahmed K. Bamaga3Ali Alshehri4Hussein Algahtani5Edward Cupler6Mohammed H. Alanazy7Neuroscience Unit Neurology Division Internal Medicine Department Faculty of Medicine King Abdulaziz University Hospital King Abdulaziz University Jeddah Saudi ArabiaNeurology Division Internal Medicine Department Faculty of Medicine King Abdulaziz University Hospital King Abdulaziz University Jeddah Saudi ArabiaNeurology Department International Medical Center Jeddah Saudi ArabiaPediatric Department Faculty of Medicine King Abdulaziz University Hospital King Abdulaziz University Jeddah Saudi ArabiaNeurosciences Department King Faisal Specialist Hospital and Research Center Riyadh Saudi ArabiaNeurology Department King Abdulaziz Medical City National Guard Hospital King Saud bin Abdulaziz University for Health Sciences Riyadh Saudi ArabiaNeurosciences Department King Faisal Specialist Hospital and Research Center Jeddah Saudi ArabiaDepartment of Internal Medicine King Saud University Medical City King Saud University Riyadh Saudi ArabiaAbstract Objective Provision of care for patients with amyotrophic lateral sclerosis (ALS) is complex and requires the contribution of multiple healthcare professionals. Several international ALS care measures were developed to ensure optimal care for ALS patients. We looked at the rate of inconsistency in providing standard ALS care measures in Saudi Arabia (SA). Methods A 5‐point response survey was distributed to practicing neurologists in SA. They were asked to grade their perceived consistency of accessibility for 19 items of ALS care measures at their center. The list of ALS care measures items was derived from international ALS guidelines. Results The response rate from neurologists was 47.3% (62/131), and the responses of 39 neurologists who follow ALS cases were included. Most of the selected ALS care measure items, 63.1% (12/19), were perceived by 50% or more of the ALS care providers to be not consistently accessible to their patients. The perception of ALS care providers of the inconsistent accessibility for ALS patients to ALS care measures was high for communication devices (92.3%), supportive equipment such as motorized wheelchairs (76.9%), end‐of‐life discussion (74.4%), and respiratory monitoring (66.7%). Conclusion Our data show that ALS patients in SA do not have consistent access to the recommended ALS care measures.https://doi.org/10.1002/brb3.1795amyotrophic lateral sclerosiscaremultidisciplinarySaudi Arabia |
| spellingShingle | Ahmad R. Abuzinadah Aysha A. AlShareef Abdullah AlKutbi Ahmed K. Bamaga Ali Alshehri Hussein Algahtani Edward Cupler Mohammed H. Alanazy Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions Brain and Behavior amyotrophic lateral sclerosis care multidisciplinary Saudi Arabia |
| title | Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions |
| title_full | Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions |
| title_fullStr | Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions |
| title_full_unstemmed | Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions |
| title_short | Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions |
| title_sort | amyotrophic lateral sclerosis care in saudi arabia a survey of providers perceptions |
| topic | amyotrophic lateral sclerosis care multidisciplinary Saudi Arabia |
| url | https://doi.org/10.1002/brb3.1795 |
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