“Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises
Background: : Service user involvement has become increasingly prioritised within health research, and more recently, within mental health and psychosocial support (MHPSS). However, there is limited exploration of service user involvement in the development of lay-delivered MHPSS psychological inter...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2022-01-01
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| Series: | Journal of Migration and Health |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2666623522000101 |
| _version_ | 1828820774276825088 |
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| author | Emily Owen Alessandro Massazza Bayard Roberts Michelle Lokot Daniela C. Fuhr |
| author_facet | Emily Owen Alessandro Massazza Bayard Roberts Michelle Lokot Daniela C. Fuhr |
| author_sort | Emily Owen |
| collection | DOAJ |
| description | Background: : Service user involvement has become increasingly prioritised within health research, and more recently, within mental health and psychosocial support (MHPSS). However, there is limited exploration of service user involvement in the development of lay-delivered MHPSS psychological interventions. The aim of this research was to investigate how service users have been involved in the development of lay-delivered psychological interventions for populations affected by humanitarian crises. Methods: : Thirteen semi-structured interviews were conducted with respondents involved in randomized controlled trials (RCTs) of lay-delivered MHPSS psychological interventions, either as principal investigators or as focal points for service user involvement. Thematic data analysis used was used to analyse the data. Results: : There was a common perception that service user involvement is vital to the development of lay-delivered psychological interventions, but there was concern about how that happened in practice. Respondents desired to increase service user involvement, but they either did not know how to do this into practice or felt that they lacked the resources to do so. Recommendations were made for strengthening involvement, such as employing service users onto research teams. However, legal difficulties in compensating service users for their work were raised. Conclusion: : Service user involvement was viewed as vital in the development of lay delivered psychological interventions, but remains predominantly tokenistic, partly due to limited guidance, time, and finances. Guidelines could support more meaningful and ethical service user involvement in lay-delivered psychological interventions in areas affected by humanitarian crises. |
| first_indexed | 2024-12-12T12:40:44Z |
| format | Article |
| id | doaj.art-c6d7df29930d47a7b105e4cf3d54eb28 |
| institution | Directory Open Access Journal |
| issn | 2666-6235 |
| language | English |
| last_indexed | 2024-12-12T12:40:44Z |
| publishDate | 2022-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Journal of Migration and Health |
| spelling | doaj.art-c6d7df29930d47a7b105e4cf3d54eb282022-12-22T00:24:13ZengElsevierJournal of Migration and Health2666-62352022-01-015100087“Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crisesEmily Owen0Alessandro Massazza1Bayard Roberts2Michelle Lokot3Daniela C. Fuhr4Department of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, 15-17 Tavistock Pl, London WC1H 9SH, London, UKDepartment of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, 15-17 Tavistock Pl, London WC1H 9SH, London, UKDepartment of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, 15-17 Tavistock Pl, London WC1H 9SH, London, UKDepartment of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, 15-17 Tavistock Pl, London WC1H 9SH, London, UKDepartment of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, 15-17 Tavistock Pl, London WC1H 9SH, London, UK; Corresponding author.Background: : Service user involvement has become increasingly prioritised within health research, and more recently, within mental health and psychosocial support (MHPSS). However, there is limited exploration of service user involvement in the development of lay-delivered MHPSS psychological interventions. The aim of this research was to investigate how service users have been involved in the development of lay-delivered psychological interventions for populations affected by humanitarian crises. Methods: : Thirteen semi-structured interviews were conducted with respondents involved in randomized controlled trials (RCTs) of lay-delivered MHPSS psychological interventions, either as principal investigators or as focal points for service user involvement. Thematic data analysis used was used to analyse the data. Results: : There was a common perception that service user involvement is vital to the development of lay-delivered psychological interventions, but there was concern about how that happened in practice. Respondents desired to increase service user involvement, but they either did not know how to do this into practice or felt that they lacked the resources to do so. Recommendations were made for strengthening involvement, such as employing service users onto research teams. However, legal difficulties in compensating service users for their work were raised. Conclusion: : Service user involvement was viewed as vital in the development of lay delivered psychological interventions, but remains predominantly tokenistic, partly due to limited guidance, time, and finances. Guidelines could support more meaningful and ethical service user involvement in lay-delivered psychological interventions in areas affected by humanitarian crises.http://www.sciencedirect.com/science/article/pii/S2666623522000101Mental health and psychosocial supportLay-delivered interventionsPsychological interventionsService user involvementService userHumanitarian crises |
| spellingShingle | Emily Owen Alessandro Massazza Bayard Roberts Michelle Lokot Daniela C. Fuhr “Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises Journal of Migration and Health Mental health and psychosocial support Lay-delivered interventions Psychological interventions Service user involvement Service user Humanitarian crises |
| title | “Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises |
| title_full | “Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises |
| title_fullStr | “Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises |
| title_full_unstemmed | “Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises |
| title_short | “Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises |
| title_sort | nothing about us without us a qualitative study of service user involvement in the development of lay delivered psychological interventions in contexts affected by humanitarian crises |
| topic | Mental health and psychosocial support Lay-delivered interventions Psychological interventions Service user involvement Service user Humanitarian crises |
| url | http://www.sciencedirect.com/science/article/pii/S2666623522000101 |
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