Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study
ABSTRACT BACKGROUND: The Quality of Dying and Death Questionnaire (QoDD) may prove to be an important evaluation tool in the Brazilian context, and, therefore, can contribute to a more precise evaluation of the dying and death process, improving and guiding the end-of-life patient care. OBJECTIVE:...
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| Format: | Article |
| Language: | English |
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Associação Paulista de Medicina
2022-11-01
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| Series: | São Paulo Medical Journal |
| Subjects: | |
| Online Access: | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-31802022005028201&lng=en&tlng=en |
| _version_ | 1828184085420310528 |
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| author | Bianca Sakamoto Ribeiro Paiva Talita Caroline de Oliveira Valentino Mirella Mingardi Marco Antonio de Oliveira Julia Onishi Franco Michelle Couto Salerno Helena Palocci Tais Cruz de Melo Carlos Eduardo Paiva |
| author_facet | Bianca Sakamoto Ribeiro Paiva Talita Caroline de Oliveira Valentino Mirella Mingardi Marco Antonio de Oliveira Julia Onishi Franco Michelle Couto Salerno Helena Palocci Tais Cruz de Melo Carlos Eduardo Paiva |
| author_sort | Bianca Sakamoto Ribeiro Paiva |
| collection | DOAJ |
| description | ABSTRACT BACKGROUND: The Quality of Dying and Death Questionnaire (QoDD) may prove to be an important evaluation tool in the Brazilian context, and, therefore, can contribute to a more precise evaluation of the dying and death process, improving and guiding the end-of-life patient care. OBJECTIVE: To translate and cross-culturally adapt the QoDD into Brazilian Portuguese and measure its validity (convergent and known-groups) and internal consistency DESIGN AND SETTING: A cross-sectional, methodological study was conducted at the Hospital de Câncer de Barretos, Brazil METHODS: A total of 78 family caregivers participated in this study. Semantic, cultural, and conceptual equivalences were evaluated using the content validity index. The construct validity was assessed through convergent validation and known groups analysis [presence of family members at the place of death; feel at peace with dying; and place of death (hospital versus home; hospital versus Palliative Care)]. Internal consistency was evaluated using Cronbach's alpha. RESULTS: The questionnaire was translated into Brazilian Portuguese and presented evidence of a clear understanding of its content. Cronbach's alpha values were ≥ 0.70, except for the domains of treatment preference (α = 0.686) and general concerns (α = 0.599). The convergent validity confirmed a part of the previously hypothesized correlations between the Palliative Care Outcome Scale-Brazil (POS-Br) total scores and the QoDD domain scores. The QoDD-Br domains could distinguish the patients who died in palliative care and general wards. CONCLUSION: The QoDD-Br is a culturally adapted valid instrument, and may be used to assess the quality of death of cancer patients. |
| first_indexed | 2024-04-12T06:42:57Z |
| format | Article |
| id | doaj.art-c741c31633114b95a7c5a3e0650f0d53 |
| institution | Directory Open Access Journal |
| issn | 1806-9460 |
| language | English |
| last_indexed | 2024-04-12T06:42:57Z |
| publishDate | 2022-11-01 |
| publisher | Associação Paulista de Medicina |
| record_format | Article |
| series | São Paulo Medical Journal |
| spelling | doaj.art-c741c31633114b95a7c5a3e0650f0d532022-12-22T03:43:40ZengAssociação Paulista de MedicinaSão Paulo Medical Journal1806-94602022-11-0110.1590/1516-3180.2022.0085.r2.09082022Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological studyBianca Sakamoto Ribeiro Paivahttps://orcid.org/0000-0002-2711-8346Talita Caroline de Oliveira Valentinohttps://orcid.org/0000-0001-7565-4437Mirella Mingardihttps://orcid.org/0000-0001-9012-0601Marco Antonio de Oliveirahttps://orcid.org/0000-0001-6879-2778Julia Onishi Francohttps://orcid.org/0000-0002-1001-4970Michelle Couto Salernohttps://orcid.org/0000-0002-8138-7678Helena Paloccihttps://orcid.org/0000-0002-4486-2118Tais Cruz de Melohttps://orcid.org/0000-0001-6907-142XCarlos Eduardo Paivahttps://orcid.org/0000-0002-7934-1451ABSTRACT BACKGROUND: The Quality of Dying and Death Questionnaire (QoDD) may prove to be an important evaluation tool in the Brazilian context, and, therefore, can contribute to a more precise evaluation of the dying and death process, improving and guiding the end-of-life patient care. OBJECTIVE: To translate and cross-culturally adapt the QoDD into Brazilian Portuguese and measure its validity (convergent and known-groups) and internal consistency DESIGN AND SETTING: A cross-sectional, methodological study was conducted at the Hospital de Câncer de Barretos, Brazil METHODS: A total of 78 family caregivers participated in this study. Semantic, cultural, and conceptual equivalences were evaluated using the content validity index. The construct validity was assessed through convergent validation and known groups analysis [presence of family members at the place of death; feel at peace with dying; and place of death (hospital versus home; hospital versus Palliative Care)]. Internal consistency was evaluated using Cronbach's alpha. RESULTS: The questionnaire was translated into Brazilian Portuguese and presented evidence of a clear understanding of its content. Cronbach's alpha values were ≥ 0.70, except for the domains of treatment preference (α = 0.686) and general concerns (α = 0.599). The convergent validity confirmed a part of the previously hypothesized correlations between the Palliative Care Outcome Scale-Brazil (POS-Br) total scores and the QoDD domain scores. The QoDD-Br domains could distinguish the patients who died in palliative care and general wards. CONCLUSION: The QoDD-Br is a culturally adapted valid instrument, and may be used to assess the quality of death of cancer patients.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-31802022005028201&lng=en&tlng=enValidation studyNeoplasmsDeathThe quality of dying and deathCancerQuestionnaire |
| spellingShingle | Bianca Sakamoto Ribeiro Paiva Talita Caroline de Oliveira Valentino Mirella Mingardi Marco Antonio de Oliveira Julia Onishi Franco Michelle Couto Salerno Helena Palocci Tais Cruz de Melo Carlos Eduardo Paiva Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study São Paulo Medical Journal Validation study Neoplasms Death The quality of dying and death Cancer Questionnaire |
| title | Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study |
| title_full | Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study |
| title_fullStr | Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study |
| title_full_unstemmed | Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study |
| title_short | Translation, Validity and Internal Consistency of the Quality of Dying and Death Questionnaire for Brazilian families of patients that died from cancer: a cross-sectional and methodological study |
| title_sort | translation validity and internal consistency of the quality of dying and death questionnaire for brazilian families of patients that died from cancer a cross sectional and methodological study |
| topic | Validation study Neoplasms Death The quality of dying and death Cancer Questionnaire |
| url | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-31802022005028201&lng=en&tlng=en |
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