Adequacy of care management of patients with polyhandicap in the French health system: A study of 782 patients.

<h4>Background</h4>The aims of this study were 1) to describe the health profiles and care management of polyhandicapped patients according to 2 modalities, specialized rehabilitation centers (SRC) and residential facilities (RF), and 2) to estimate the adequacy of care management of the...

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मुख्य लेखकों: Marie-Christine Rousseau, Thierry Billette de Villemeur, Sherezad Khaldi-Cherif, Catherine Brisse, Agnès Felce, Karine Baumstarck, Pascal Auquier, French Polyhandicap Group
स्वरूप: लेख
भाषा:English
प्रकाशित: Public Library of Science (PLoS) 2018-01-01
श्रृंखला:PLoS ONE
ऑनलाइन पहुंच:https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0199986&type=printable
विवरण
सारांश:<h4>Background</h4>The aims of this study were 1) to describe the health profiles and care management of polyhandicapped patients according to 2 modalities, specialized rehabilitation centers (SRC) and residential facilities (RF), and 2) to estimate the adequacy of care management of these patients.<h4>Methods</h4>This was an 18-month cross-sectional study including patients with a combination of severe motor deficiency and profound intellectual impairment. The patients were from 4 SRC and 9 RF. The following data were collected: sociodemographics, health status, care management, and adequacy of care management.<h4>Results</h4>A total of 782 patients were included: 410 (52%) were cared for in SRC and 372 (48%) in RF. Global objective adequacy (health severity and age category) was higher for patients cared for in SRC compared with patients cared for in RF (57 vs. 44%, p< = 10-3). Global subjective adequacy (self-perception of the referring physician and request of change in structure) was higher for patients cared for in SRC in comparison with patients cared for in RF (98 vs. 92%, p< = 10-3).<h4>Conclusions</h4>This study provides key elements of adequacy of care management modalities for polyhandicapped patients in France.<h4>Trial registration</h4>ClinicalTrials.gov NCT02400528.
आईएसएसएन:1932-6203