Development of the Dutch Structure for Integrated Children’s Palliative Care
Children’s palliative care (CPC) is gaining attention worldwide, facilitated by the exchange of knowledge during regular specialised congresses. This article describes the developments in the Netherlands over the past 15 years. The Foundation for Children’s Palliative Expertise (PAL) was established...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2021-08-01
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| Series: | Children |
| Subjects: | |
| Online Access: | https://www.mdpi.com/2227-9067/8/9/741 |
| _version_ | 1797519859654852608 |
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| author | Stephanie Vallianatos Carolien S. M. Huizinga Meggi A. Schuiling-Otten Antoinette Y. N. Schouten-van Meeteren Leontien C. M. Kremer A. A. Eduard Verhagen |
| author_facet | Stephanie Vallianatos Carolien S. M. Huizinga Meggi A. Schuiling-Otten Antoinette Y. N. Schouten-van Meeteren Leontien C. M. Kremer A. A. Eduard Verhagen |
| author_sort | Stephanie Vallianatos |
| collection | DOAJ |
| description | Children’s palliative care (CPC) is gaining attention worldwide, facilitated by the exchange of knowledge during regular specialised congresses. This article describes the developments in the Netherlands over the past 15 years. The Foundation for Children’s Palliative Expertise (PAL) was established as a nationwide initiative committed to improving palliative care for children countrywide. This led to the development of the first hospital-based CPC team in 2012, which expanded to a total of seven teams adjacent to children’s university hospitals. Regional networks for CPC were developed in parallel to these teams from 2014 onwards. The networks are a collaboration of professionals from different disciplines and organisations, from hospital to homecare, and have covered the aspects of CPC nationally from 2019 onwards. They are connected through the Dutch Knowledge Centre for CPC. This centre was established in 2018 by the PAL Foundation in collaboration with the Dutch Association for Pediatrics. In 2013, the first evidence-based guideline, ‘palliative care for children’, provided access to knowledge for parents and healthcare providers, and in 2017, a format for an individual palliative care plan was established. Within the Knowledge Centre for CPC, a physician’s support centre for dilemma’s regarding the end of life of children was set up. The efforts to have children’s palliative care embedded in the regular Dutch health care insurance are ongoing. |
| first_indexed | 2024-03-10T07:48:45Z |
| format | Article |
| id | doaj.art-c7eacde0fd1047dbb136601e8c84dffb |
| institution | Directory Open Access Journal |
| issn | 2227-9067 |
| language | English |
| last_indexed | 2024-03-10T07:48:45Z |
| publishDate | 2021-08-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Children |
| spelling | doaj.art-c7eacde0fd1047dbb136601e8c84dffb2023-11-22T12:29:20ZengMDPI AGChildren2227-90672021-08-018974110.3390/children8090741Development of the Dutch Structure for Integrated Children’s Palliative CareStephanie Vallianatos0Carolien S. M. Huizinga1Meggi A. Schuiling-Otten2Antoinette Y. N. Schouten-van Meeteren3Leontien C. M. Kremer4A. A. Eduard Verhagen5Dutch Knowledge Centre for Children’s Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The NetherlandsDutch Knowledge Centre for Children’s Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The NetherlandsDutch Knowledge Centre for Children’s Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The NetherlandsPrincess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, 3584 CS Utrecht, The NetherlandsPrincess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, 3584 CS Utrecht, The NetherlandsBeatrix Children’s Hospital, University Hospital Groningen, Hanzeplein 1, 9713 GZ Groningen, The NetherlandsChildren’s palliative care (CPC) is gaining attention worldwide, facilitated by the exchange of knowledge during regular specialised congresses. This article describes the developments in the Netherlands over the past 15 years. The Foundation for Children’s Palliative Expertise (PAL) was established as a nationwide initiative committed to improving palliative care for children countrywide. This led to the development of the first hospital-based CPC team in 2012, which expanded to a total of seven teams adjacent to children’s university hospitals. Regional networks for CPC were developed in parallel to these teams from 2014 onwards. The networks are a collaboration of professionals from different disciplines and organisations, from hospital to homecare, and have covered the aspects of CPC nationally from 2019 onwards. They are connected through the Dutch Knowledge Centre for CPC. This centre was established in 2018 by the PAL Foundation in collaboration with the Dutch Association for Pediatrics. In 2013, the first evidence-based guideline, ‘palliative care for children’, provided access to knowledge for parents and healthcare providers, and in 2017, a format for an individual palliative care plan was established. Within the Knowledge Centre for CPC, a physician’s support centre for dilemma’s regarding the end of life of children was set up. The efforts to have children’s palliative care embedded in the regular Dutch health care insurance are ongoing.https://www.mdpi.com/2227-9067/8/9/741integrated carechildren’s palliative carepaediatric palliative care teamhomecarefamilycare network |
| spellingShingle | Stephanie Vallianatos Carolien S. M. Huizinga Meggi A. Schuiling-Otten Antoinette Y. N. Schouten-van Meeteren Leontien C. M. Kremer A. A. Eduard Verhagen Development of the Dutch Structure for Integrated Children’s Palliative Care Children integrated care children’s palliative care paediatric palliative care team homecare family care network |
| title | Development of the Dutch Structure for Integrated Children’s Palliative Care |
| title_full | Development of the Dutch Structure for Integrated Children’s Palliative Care |
| title_fullStr | Development of the Dutch Structure for Integrated Children’s Palliative Care |
| title_full_unstemmed | Development of the Dutch Structure for Integrated Children’s Palliative Care |
| title_short | Development of the Dutch Structure for Integrated Children’s Palliative Care |
| title_sort | development of the dutch structure for integrated children s palliative care |
| topic | integrated care children’s palliative care paediatric palliative care team homecare family care network |
| url | https://www.mdpi.com/2227-9067/8/9/741 |
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