A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families

Min Li,1 Hongzhen Xie,2 Qing Luo,3 Guangbin Huang,1 Guoxian Xu,1 Ye Cheng,1 Jun Li4 1Department of Traumatology, Chongqing University Central Hospital, Chongqing Emergency Medical Center, Chongqing, People’s Republic of China; 2Department of Health Medicine, General Hospital of Southern Theatre Comm...

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Main Authors: Li M, Xie H, Luo Q, Huang G, Xu G, Cheng Y, Li J
Format: Article
Language:English
Published: Dove Medical Press 2023-03-01
Series:Journal of Multidisciplinary Healthcare
Subjects:
Online Access:https://www.dovepress.com/a-qualitative-study-on-the-humanistic-care-needs-of-patients-with-stro-peer-reviewed-fulltext-article-JMDH
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author Li M
Xie H
Luo Q
Huang G
Xu G
Cheng Y
Li J
author_facet Li M
Xie H
Luo Q
Huang G
Xu G
Cheng Y
Li J
author_sort Li M
collection DOAJ
description Min Li,1 Hongzhen Xie,2 Qing Luo,3 Guangbin Huang,1 Guoxian Xu,1 Ye Cheng,1 Jun Li4 1Department of Traumatology, Chongqing University Central Hospital, Chongqing Emergency Medical Center, Chongqing, People’s Republic of China; 2Department of Health Medicine, General Hospital of Southern Theatre Command, Guangzhou, People’s Republic of China; 3Department of Neurosurgery, General Hospital of Southern Theatre Command, Guangzhou, People’s Republic of China; 4Chongqing Metropolitan College of Science and Technology, Chongqing, People’s Republic of ChinaCorrespondence: Jun Li, Chongqing Metropolitan College of Science and Technology, No. 368, Guangcai Avenue, Yongchuan District, Chongqing, 402160, People’s Republic of China, Tel +86 18084067947, Email lijun20228@163.comBackground: International stroke care guidelines recommend the routine assessment and management of psychological and emotional problems in patients and their families after a stroke. This study aimed to explore the humanistic nursing needs of patients with stroke and their families and provide a basis for the construction of humanistic nursing practice guidelines for advanced stroke.Methods: From September to October 2019, using the descriptive phenomenological research method, a semi-structured interview outline was formed based on a literature review and subject group discussions. A targeted sampling method was used to investigate 21 patients with stroke and 21 family members, respectively, and their care needs were investigated in depth. Colaizzi’s thematic cluster analysis was used to analyse the data, and a total of 6 themes and 14 sub-themes were summarised.Results: The 6 themes and 14 sub-themes were as follows: ① psychological care, ② security concerns (professional personal integrity, timely response), ③ emotional care (service consciousness, positive incentives, empathy, effective communication, provision of a communication platform, personalised care), ④ respect for rights, ⑤ rehabilitation care (rehabilitation programme, professional guidance, rehabilitation configuration, continuation of services) and ⑥ family care (physical and psychological support, care guidance).Conclusion: Among the humanistic care needs of patients with stroke and their families, the most basic physiological care accounts for the largest proportion of emotional and rehabilitation care, followed by safety care, respect for rights and family care. Based on the actual humanistic care needs of patients with stroke and their families, the practical effect of humanistic care in stroke wards can be improved. This study provides a reference for the construction of humanistic nursing practice guidelines for late stroke.Keywords: stroke, humanistic care, qualitative research
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spelling doaj.art-c86b76122392435fa7fe7786ee6f79e52023-03-16T18:09:45ZengDove Medical PressJournal of Multidisciplinary Healthcare1178-23902023-03-01Volume 1671773082332A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their FamiliesLi MXie HLuo QHuang GXu GCheng YLi JMin Li,1 Hongzhen Xie,2 Qing Luo,3 Guangbin Huang,1 Guoxian Xu,1 Ye Cheng,1 Jun Li4 1Department of Traumatology, Chongqing University Central Hospital, Chongqing Emergency Medical Center, Chongqing, People’s Republic of China; 2Department of Health Medicine, General Hospital of Southern Theatre Command, Guangzhou, People’s Republic of China; 3Department of Neurosurgery, General Hospital of Southern Theatre Command, Guangzhou, People’s Republic of China; 4Chongqing Metropolitan College of Science and Technology, Chongqing, People’s Republic of ChinaCorrespondence: Jun Li, Chongqing Metropolitan College of Science and Technology, No. 368, Guangcai Avenue, Yongchuan District, Chongqing, 402160, People’s Republic of China, Tel +86 18084067947, Email lijun20228@163.comBackground: International stroke care guidelines recommend the routine assessment and management of psychological and emotional problems in patients and their families after a stroke. This study aimed to explore the humanistic nursing needs of patients with stroke and their families and provide a basis for the construction of humanistic nursing practice guidelines for advanced stroke.Methods: From September to October 2019, using the descriptive phenomenological research method, a semi-structured interview outline was formed based on a literature review and subject group discussions. A targeted sampling method was used to investigate 21 patients with stroke and 21 family members, respectively, and their care needs were investigated in depth. Colaizzi’s thematic cluster analysis was used to analyse the data, and a total of 6 themes and 14 sub-themes were summarised.Results: The 6 themes and 14 sub-themes were as follows: ① psychological care, ② security concerns (professional personal integrity, timely response), ③ emotional care (service consciousness, positive incentives, empathy, effective communication, provision of a communication platform, personalised care), ④ respect for rights, ⑤ rehabilitation care (rehabilitation programme, professional guidance, rehabilitation configuration, continuation of services) and ⑥ family care (physical and psychological support, care guidance).Conclusion: Among the humanistic care needs of patients with stroke and their families, the most basic physiological care accounts for the largest proportion of emotional and rehabilitation care, followed by safety care, respect for rights and family care. Based on the actual humanistic care needs of patients with stroke and their families, the practical effect of humanistic care in stroke wards can be improved. This study provides a reference for the construction of humanistic nursing practice guidelines for late stroke.Keywords: stroke, humanistic care, qualitative researchhttps://www.dovepress.com/a-qualitative-study-on-the-humanistic-care-needs-of-patients-with-stro-peer-reviewed-fulltext-article-JMDHstrokehumanistic carequalitative research
spellingShingle Li M
Xie H
Luo Q
Huang G
Xu G
Cheng Y
Li J
A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families
Journal of Multidisciplinary Healthcare
stroke
humanistic care
qualitative research
title A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families
title_full A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families
title_fullStr A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families
title_full_unstemmed A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families
title_short A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families
title_sort qualitative study on the humanistic care needs of patients with stroke and their families
topic stroke
humanistic care
qualitative research
url https://www.dovepress.com/a-qualitative-study-on-the-humanistic-care-needs-of-patients-with-stro-peer-reviewed-fulltext-article-JMDH
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