Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities

Abstract Background Students with disabilities are underrepresented in undergraduate science, technology, engineering, and mathematics (STEM) courses. Students with disabilities who engage in self-advocacy earn higher GPAs and are more likely to graduate from college compared to students with disabi...

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Main Authors: Mariel A. Pfeifer, Eve Melanie Reiter, McKenna Hendrickson, Julie Dangremond Stanton
Format: Article
Language:English
Published: SpringerOpen 2020-07-01
Series:International Journal of STEM Education
Subjects:
Online Access:http://link.springer.com/article/10.1186/s40594-020-00233-4
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author Mariel A. Pfeifer
Eve Melanie Reiter
McKenna Hendrickson
Julie Dangremond Stanton
author_facet Mariel A. Pfeifer
Eve Melanie Reiter
McKenna Hendrickson
Julie Dangremond Stanton
author_sort Mariel A. Pfeifer
collection DOAJ
description Abstract Background Students with disabilities are underrepresented in undergraduate science, technology, engineering, and mathematics (STEM) courses. Students with disabilities who engage in self-advocacy earn higher GPAs and are more likely to graduate from college compared to students with disabilities who do not engage in self-advocacy. We utilized Test’s conceptual framework of self-advocacy, which breaks self-advocacy into four components: knowledge of self, knowledge of rights, communication, and leadership to investigate how students with invisible disabilities practice self-advocacy in undergraduate STEM courses. Through a partnership with a disability resource center (DRC), we recruited and interviewed 25 STEM majors who received accommodations for attention-deficit/hyperactivity disorder (ADHD) and/or a specific learning disorder (SLD). Data were collected using semi-structured interviews and analyzed using content analysis. Results We found evidence of all components of Test’s conceptual framework of self-advocacy and operationalize each based on our participants’ experiences. We identified novel components of self-advocacy for students with ADHD/SLD in undergraduate STEM courses, including knowledge of STEM learning contexts and knowledge of accommodations and the process to obtain them, as well as, a novel self-advocacy behavior, filling gaps. Filling gaps involved participants taking action to mitigate a perceived limitation in either their formal accommodations from the DRC or a perceived limitation in the instructional practices used in a STEM course. We also identified beliefs, such as view of disability and agency, which influenced the self-advocacy of our participants. We incorporated the emergent forms of self-advocacy into Test’s conceptual framework to propose a revised model of self-advocacy for students with ADHD/SLD in undergraduate STEM courses. Conclusions We developed a revised conceptual model of self-advocacy for students with ADHD/SLD in undergraduate STEM courses. This conceptual model provides a foundation for researchers who wish to study self-advocacy in undergraduate STEM courses for students with ADHD/SLD in the future. It also offers insights for STEM instructors and service providers about the self-advocacy experiences of students with ADHD/SLD in undergraduate STEM courses. We propose hypotheses for additional study based on our conceptual model of self-advocacy. Implications for research and teaching are discussed.
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spelling doaj.art-c8a262a4ebc8446fb4f3bc20140bf2362022-12-22T01:22:33ZengSpringerOpenInternational Journal of STEM Education2196-78222020-07-017112110.1186/s40594-020-00233-4Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilitiesMariel A. Pfeifer0Eve Melanie Reiter1McKenna Hendrickson2Julie Dangremond Stanton3Department of Plant Biology, University of GeorgiaDepartment of Cellular Biology, University of GeorgiaDepartment of Psychology, Smith CollegeDepartment of Cellular Biology, University of GeorgiaAbstract Background Students with disabilities are underrepresented in undergraduate science, technology, engineering, and mathematics (STEM) courses. Students with disabilities who engage in self-advocacy earn higher GPAs and are more likely to graduate from college compared to students with disabilities who do not engage in self-advocacy. We utilized Test’s conceptual framework of self-advocacy, which breaks self-advocacy into four components: knowledge of self, knowledge of rights, communication, and leadership to investigate how students with invisible disabilities practice self-advocacy in undergraduate STEM courses. Through a partnership with a disability resource center (DRC), we recruited and interviewed 25 STEM majors who received accommodations for attention-deficit/hyperactivity disorder (ADHD) and/or a specific learning disorder (SLD). Data were collected using semi-structured interviews and analyzed using content analysis. Results We found evidence of all components of Test’s conceptual framework of self-advocacy and operationalize each based on our participants’ experiences. We identified novel components of self-advocacy for students with ADHD/SLD in undergraduate STEM courses, including knowledge of STEM learning contexts and knowledge of accommodations and the process to obtain them, as well as, a novel self-advocacy behavior, filling gaps. Filling gaps involved participants taking action to mitigate a perceived limitation in either their formal accommodations from the DRC or a perceived limitation in the instructional practices used in a STEM course. We also identified beliefs, such as view of disability and agency, which influenced the self-advocacy of our participants. We incorporated the emergent forms of self-advocacy into Test’s conceptual framework to propose a revised model of self-advocacy for students with ADHD/SLD in undergraduate STEM courses. Conclusions We developed a revised conceptual model of self-advocacy for students with ADHD/SLD in undergraduate STEM courses. This conceptual model provides a foundation for researchers who wish to study self-advocacy in undergraduate STEM courses for students with ADHD/SLD in the future. It also offers insights for STEM instructors and service providers about the self-advocacy experiences of students with ADHD/SLD in undergraduate STEM courses. We propose hypotheses for additional study based on our conceptual model of self-advocacy. Implications for research and teaching are discussed.http://link.springer.com/article/10.1186/s40594-020-00233-4Students with ADHDStudents with SLDAttention-deficit/hyperactivity disorderSpecific learning disorderSpecific learning disabilityInvisible disability
spellingShingle Mariel A. Pfeifer
Eve Melanie Reiter
McKenna Hendrickson
Julie Dangremond Stanton
Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities
International Journal of STEM Education
Students with ADHD
Students with SLD
Attention-deficit/hyperactivity disorder
Specific learning disorder
Specific learning disability
Invisible disability
title Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities
title_full Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities
title_fullStr Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities
title_full_unstemmed Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities
title_short Speaking up: a model of self-advocacy for STEM undergraduates with ADHD and/or specific learning disabilities
title_sort speaking up a model of self advocacy for stem undergraduates with adhd and or specific learning disabilities
topic Students with ADHD
Students with SLD
Attention-deficit/hyperactivity disorder
Specific learning disorder
Specific learning disability
Invisible disability
url http://link.springer.com/article/10.1186/s40594-020-00233-4
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