Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods study
Abstract Background A large proportion of youth with chronic conditions have mental health comorbidities. However, the effect of these comorbidities on paediatric–adult transition readiness, and the relevance of widely used tools for measuring transition readiness, are unknown. Objective The objecti...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2023-12-01
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| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.13821 |
| _version_ | 1797633232551804928 |
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| author | Brooke Allemang Susan Samuel Katelyn Greer Keighley Schofield Karina Pintson Megan Patton Marcela Farias Kathleen C. Sitter Scott B. Patten Andrew S. Mackie Gina Dimitropoulos |
| author_facet | Brooke Allemang Susan Samuel Katelyn Greer Keighley Schofield Karina Pintson Megan Patton Marcela Farias Kathleen C. Sitter Scott B. Patten Andrew S. Mackie Gina Dimitropoulos |
| author_sort | Brooke Allemang |
| collection | DOAJ |
| description | Abstract Background A large proportion of youth with chronic conditions have mental health comorbidities. However, the effect of these comorbidities on paediatric–adult transition readiness, and the relevance of widely used tools for measuring transition readiness, are unknown. Objective The objectives of this study were to describe and explore the transition readiness of youth with co‐occurring chronic health and mental health conditions using a combination of quantitative data obtained from participants completing the Transition Readiness Assessment Questionnaire (TRAQ) and qualitative data. Design and Participants A three‐phase sequential explanatory mixed methods design was employed, with the qualitative strand taking priority. First, the TRAQ scores (range 1–5) of youth with co‐occurring conditions (n = 61) enroled in a multisite randomized controlled trial were measured, followed by qualitative interviews with a sample of youth (n = 9) to explain the quantitative results. Results from both strands were then integrated, yielding comprehensive insights. Results Median TRAQ scores ranged from 2.86 on the appointment keeping subscale to 5.00 on the talking with providers subscale. The qualitative results uncovered the complexities faced by this group concerning the impact of a mental health comorbidity on transition readiness and self‐management skills across TRAQ domains. The integrated findings identified a diverse and highly individualized set of strengths and challenges amongst this group that did not align with overarching patterns as measured by the TRAQ. Conclusions This mixed methods study generated novel understandings about how youth with co‐occurring conditions develop competencies related to self‐care, self‐advocacy and self‐management in preparation for paediatric–adult service transitions. Results demonstrated the assessment of transition readiness using a generic scale does not address the nuanced and complex needs of youth with co‐occurring chronic health and mental health conditions. Our findings suggest tailoring transition readiness practices for this group based on youths' own goals, symptoms, coping mechanisms and resources. Patient or Public Involvement This study was conducted in collaboration with five young adult research partners (YARP) with lived experience transitioning from paediatric to adult health/mental health services. The YARP's contributions across study phases ensured the perspectives of young people were centred throughout data collection, analysis, interpretation and presentation of findings. All five YARP co‐authored this manuscript. |
| first_indexed | 2024-03-11T11:51:12Z |
| format | Article |
| id | doaj.art-c8f15fef159349bfb0183919d950ed9f |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-03-11T11:51:12Z |
| publishDate | 2023-12-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-c8f15fef159349bfb0183919d950ed9f2023-11-09T06:54:53ZengWileyHealth Expectations1369-65131369-76252023-12-012662228224410.1111/hex.13821Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods studyBrooke Allemang0Susan Samuel1Katelyn Greer2Keighley Schofield3Karina Pintson4Megan Patton5Marcela Farias6Kathleen C. Sitter7Scott B. Patten8Andrew S. Mackie9Gina Dimitropoulos10Department of Social Work University of Calgary Calgary Alberta CanadaDepartment of Pediatrics, Cumming School of Medicine University of Calgary Calgary Alberta CanadaDepartment of Social Work University of Calgary Calgary Alberta CanadaDepartment of Social Work University of Calgary Calgary Alberta CanadaDepartment of Social Work University of Calgary Calgary Alberta CanadaDepartment of Pediatrics, Cumming School of Medicine University of Calgary Calgary Alberta CanadaDepartment of Social Work University of Calgary Calgary Alberta CanadaDepartment of Social Work University of Calgary Calgary Alberta CanadaDepartment of Psychiatry, Mathison Centre for Mental Health Research and Education University of Calgary Calgary Alberta CanadaDepartment of Pediatrics Stollery Children's Hospital Edmonton Alberta CanadaDepartment of Social Work University of Calgary Calgary Alberta CanadaAbstract Background A large proportion of youth with chronic conditions have mental health comorbidities. However, the effect of these comorbidities on paediatric–adult transition readiness, and the relevance of widely used tools for measuring transition readiness, are unknown. Objective The objectives of this study were to describe and explore the transition readiness of youth with co‐occurring chronic health and mental health conditions using a combination of quantitative data obtained from participants completing the Transition Readiness Assessment Questionnaire (TRAQ) and qualitative data. Design and Participants A three‐phase sequential explanatory mixed methods design was employed, with the qualitative strand taking priority. First, the TRAQ scores (range 1–5) of youth with co‐occurring conditions (n = 61) enroled in a multisite randomized controlled trial were measured, followed by qualitative interviews with a sample of youth (n = 9) to explain the quantitative results. Results from both strands were then integrated, yielding comprehensive insights. Results Median TRAQ scores ranged from 2.86 on the appointment keeping subscale to 5.00 on the talking with providers subscale. The qualitative results uncovered the complexities faced by this group concerning the impact of a mental health comorbidity on transition readiness and self‐management skills across TRAQ domains. The integrated findings identified a diverse and highly individualized set of strengths and challenges amongst this group that did not align with overarching patterns as measured by the TRAQ. Conclusions This mixed methods study generated novel understandings about how youth with co‐occurring conditions develop competencies related to self‐care, self‐advocacy and self‐management in preparation for paediatric–adult service transitions. Results demonstrated the assessment of transition readiness using a generic scale does not address the nuanced and complex needs of youth with co‐occurring chronic health and mental health conditions. Our findings suggest tailoring transition readiness practices for this group based on youths' own goals, symptoms, coping mechanisms and resources. Patient or Public Involvement This study was conducted in collaboration with five young adult research partners (YARP) with lived experience transitioning from paediatric to adult health/mental health services. The YARP's contributions across study phases ensured the perspectives of young people were centred throughout data collection, analysis, interpretation and presentation of findings. All five YARP co‐authored this manuscript.https://doi.org/10.1111/hex.13821mixed methodspatient‐oriented researchtransition to adult careyouth mental health |
| spellingShingle | Brooke Allemang Susan Samuel Katelyn Greer Keighley Schofield Karina Pintson Megan Patton Marcela Farias Kathleen C. Sitter Scott B. Patten Andrew S. Mackie Gina Dimitropoulos Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods study Health Expectations mixed methods patient‐oriented research transition to adult care youth mental health |
| title | Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods study |
| title_full | Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods study |
| title_fullStr | Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods study |
| title_full_unstemmed | Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods study |
| title_short | Transition readiness of youth with co‐occurring chronic health and mental health conditions: A mixed methods study |
| title_sort | transition readiness of youth with co occurring chronic health and mental health conditions a mixed methods study |
| topic | mixed methods patient‐oriented research transition to adult care youth mental health |
| url | https://doi.org/10.1111/hex.13821 |
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