Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery
Introduction: Epilepsy is the most common neurological condition globally. Integrating health and social care is fundamental in epilepsy management, but the scope of progress in this area is unclear. This scoping review aimed to capture the range and type of integrated care components and models in...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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Ubiquity Press
2024-03-01
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| Series: | International Journal of Integrated Care |
| Subjects: | |
| Online Access: | https://account.ijic.org/index.php/up-j-ijic/article/view/7659 |
| _version_ | 1797202911726403584 |
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| author | Samantha Spanos Karen Hutchinson Tayhla Ryder Frances Rapport Nicholas Goodwin Yvonne Zurynski |
| author_facet | Samantha Spanos Karen Hutchinson Tayhla Ryder Frances Rapport Nicholas Goodwin Yvonne Zurynski |
| author_sort | Samantha Spanos |
| collection | DOAJ |
| description | Introduction: Epilepsy is the most common neurological condition globally. Integrating health and social care is fundamental in epilepsy management, but the scope of progress in this area is unclear. This scoping review aimed to capture the range and type of integrated care components and models in epilepsy management. Methods: Four databases were searched for articles published since 2010 that reported on integrated care in epilepsy. Data were extracted and synthesised into components of integrated care that had been implemented or recommended only. Models of integrated care were identified, and their components tabulated. Results: Fifteen common and interrelated components of integrated care emerged that were aligned with four broad areas: healthcare staff and pathways (e.g., epilepsy nurses); tasks and services (e.g., care coordination); education and engagement (e.g., shared decision making); and technology for diagnosis and communication (e.g., telehealth). Twelve models of integrated care were identified; seven were implemented and five were recommended. Discussion: There is a growing evidence-base supporting integrated, person-centred epilepsy care, but implementation is challenged by entrenched silos, underdeveloped pathways for care, and deficits in epilepsy education. Conclusion: Integrating epilepsy care relies on changes to workforce development and policy frameworks to support whole-of-system vision for improving care. |
| first_indexed | 2024-04-24T08:10:58Z |
| format | Article |
| id | doaj.art-c9a9558734af4417adda6909afb41aa9 |
| institution | Directory Open Access Journal |
| issn | 1568-4156 |
| language | English |
| last_indexed | 2024-04-24T08:10:58Z |
| publishDate | 2024-03-01 |
| publisher | Ubiquity Press |
| record_format | Article |
| series | International Journal of Integrated Care |
| spelling | doaj.art-c9a9558734af4417adda6909afb41aa92024-04-17T06:45:00ZengUbiquity PressInternational Journal of Integrated Care1568-41562024-03-0124181810.5334/ijic.76597555Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care DeliverySamantha Spanos0https://orcid.org/0000-0003-3734-3907Karen Hutchinson1https://orcid.org/0000-0002-1353-3100Tayhla Ryder2https://orcid.org/0000-0002-8761-4552Frances Rapport3https://orcid.org/0000-0002-4428-2826Nicholas Goodwin4https://orcid.org/0000-0003-4900-3352Yvonne Zurynski5https://orcid.org/0000-0001-7744-8717Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, SydneyCentre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney; Central Coast Local Health District, Gosford, NSWCentre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney; CanTeen Australia, SydneyCentre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, SydneyCentral Coast Local Health District, Gosford, NSW; Central Coast Research Institute for Integrated Care, University of Newcastle, Gosford, NSWCentre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney; NHMRC Partnership Centre for Health System Sustainability, Australian Institute of Health Innovation, Macquarie University, SydneyIntroduction: Epilepsy is the most common neurological condition globally. Integrating health and social care is fundamental in epilepsy management, but the scope of progress in this area is unclear. This scoping review aimed to capture the range and type of integrated care components and models in epilepsy management. Methods: Four databases were searched for articles published since 2010 that reported on integrated care in epilepsy. Data were extracted and synthesised into components of integrated care that had been implemented or recommended only. Models of integrated care were identified, and their components tabulated. Results: Fifteen common and interrelated components of integrated care emerged that were aligned with four broad areas: healthcare staff and pathways (e.g., epilepsy nurses); tasks and services (e.g., care coordination); education and engagement (e.g., shared decision making); and technology for diagnosis and communication (e.g., telehealth). Twelve models of integrated care were identified; seven were implemented and five were recommended. Discussion: There is a growing evidence-base supporting integrated, person-centred epilepsy care, but implementation is challenged by entrenched silos, underdeveloped pathways for care, and deficits in epilepsy education. Conclusion: Integrating epilepsy care relies on changes to workforce development and policy frameworks to support whole-of-system vision for improving care.https://account.ijic.org/index.php/up-j-ijic/article/view/7659epilepsyintegrated careshared careperson-centred care |
| spellingShingle | Samantha Spanos Karen Hutchinson Tayhla Ryder Frances Rapport Nicholas Goodwin Yvonne Zurynski Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery International Journal of Integrated Care epilepsy integrated care shared care person-centred care |
| title | Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery |
| title_full | Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery |
| title_fullStr | Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery |
| title_full_unstemmed | Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery |
| title_short | Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery |
| title_sort | integrated care in epilepsy management a scoping review of the models and components of health and social care delivery |
| topic | epilepsy integrated care shared care person-centred care |
| url | https://account.ijic.org/index.php/up-j-ijic/article/view/7659 |
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